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@eileen11108

@preacherswife1977,
I have been on 500 mg Hydroxyurea since June 2022. Because of side effects like headaches, diarrhea, lightheaded, etc. I have had time off, and then taking at different timelines. Platelets have been staying around 550 but my hematologist would like me to get below 400.
My timelines have been daily, month off, every other day, three days a week, and the last four days a week. Headaches suddenly became too much so I am stopping for a month, Then I will try Anagrelide at the lowest dose twice daily. Not sure yet what the lowest dose will be as waiting to get it, If Anagrelide does not work for me the next step will be Pegasys.
Best wishes, Eileen

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Replies to "@preacherswife1977, I have been on 500 mg Hydroxyurea since June 2022. Because of side effects like..."

Hello, my oncologist is happy with my platelets at 600 or below. I’ve been sticking around 450 now for a few months taking Hydroxyurea 3X a week. Took about 7 months to get the dosage right. Not sure about what everyone else’s doctor says but mine assures me that up to 600 is completely safe and acceptable. Minimal
Side effects on the low dosage but had some when I was taking it daily. Keep us posted!