Anyone here have Fuch's Dystrophy?

Posted by Bettyann @bettyann, Dec 11, 2011

I would really like to hear from people who have Fuch's Dystrophy. I would especialloy appreciate hearing from those who have NOT yet had DSAEK surgery so far. This includes knowledge from those of you who have friends or relatives that might have Fuch's.
I was diagnosed with Fuch's (only in my Left eye) in July...it 'showed up' after my cataract surgery in that eye. Before that, I had no real problems in that eye (aside from the cloudiness caused by the cataract.
THANK YOU for any and all of your replies! =)

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pleinairpainter | @pleinairpainter | Jan 30 10:02pm

I went in to have an initial consultation for a cataract surgery that I have actually looked forward to as an artist with increasingly blurry vision. The surgeon mentioned I have mild Fuchs Dystrophy and said I could still have the cataract surgery, but now that I look it up, it seems that maybe I shouldn't. Appreciate Thoughts on this.

italywoman | @italywoman | Feb 27 8:49pm

Please visit cornealdystrophyfoundation.org
There is a group for support and info among other things. Very helpful.

John, Volunteer Mentor | @johnbishop | Feb 28 8:35am

In reply to @italywoman "Please visit cornealdystrophyfoundation.org There is a group for support and info among other things. Very helpful." + (show)

Welcome @italywoman, Thanks for the great reference. I thought I would share the link for you since new members are not allowed to share links for a short period of time to prevent advertisers from spamming our community.

--- The Corneal Dystrophy Foundation: https://www.cornealdystrophyfoundation.org/

Are you able to share a little more about your experience with Fuchs and what has helped you?

linda888 | @linda888 | Oct 23 12:11pm

In reply to @bettyann "Hi...I hope I am posting this in the right place. My computer is acting up a..." + (show)

I had cataract surgery on my right eye and it became blurry. I couldn't see anything when I went back the next day. So we waited a bit and it got a little bit better. The eye specialist was in the next room and she came and looked at my eyes. It took her all of two minutes to say, "You have Fuch's". My cataract was very large and dense. I think it just weakened the tissue. So I had a transplant. The next day "WOW" I could see. Week later I had 20/25 vision. I will be having the transplant/cataract surgery both at the same time in a couple weeks. I don't know if my parents had Fuch's but the doctor said it could be random. Mostly seen in Norwegians/Germans, the guy who discovered it was from Austria. Also the specialist told me that if you don't look at the eye from a specific angle and with the right lighting and equipment it can be missed. If you do have Fuch's and you are considering cataract surgery I would do them both at the same time.