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Anyone else dealing with Demodex Mites? What helps?

Skin Health | Last Active: Sep 17 9:54pm | Replies (181)

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@cmcg

Hi….
It sounds like you are doing everything possible. I am hoping I am on “the other side” of this problem…. But think they are more under control than eliminated. I am using John Mitchell tea tree oil products…. Shampoo, conditioner, and a leave in conditioner/moisturizer. I needed two rounds of XDEMVY and have been off of it for two weeks using only Avenova to clean my eyelashes twice a day. I am interested in your 2% salicylic acid …. Is that an eye drop solution? As for makeup, I wore no makeup for 6 months and have just started but not daily. I have read in the literature that alcohol does not kill Demodex. I have also started moisturizer on my face but after the tea tree oil has dried. I also purchased 100% tea tree oil and I intend to strengthen my shampoo, body wash and moisturizer though I know that you have to be careful w skin sensitivity. I also used metronidazole and ivermectin on my face, neck, chest and back for about a month while also using all the tea tree oil. Good luck w all your strategies. When I was at the peak of infestation I washed sheets, towels, pillowcases and all clothing after one day of use. I am now washing my sheets every 4-5 days. And I am back to my usual clothing was routine.

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Replies to "Hi…. It sounds like you are doing everything possible. I am hoping I am on “the..."

I was looking last night for 100% tea tree oil on Amazon and was turned off by the multiple uses suggested - aromatherapy, use for crafts, household cleaning. What does that mean? Maybe 100% is too strong but I don't want a lot of additives or chemicals either. Are there directions on how much to use ? I concluded that using full strength is not the way to do. There are many products to chose from. What brand do you use.
I am using a sulfer face wash at least once a day. My eyes are very itchy and my eyelashes are so thin and barely visible . I just bought OCuSoft's Demodex Cleanser but have not used it yet.

I've learned that if I leave this site to research something I lose everything I've just written.
: > (

CMCG, You are inspiring and hopefully I'll be in better shape soon and won't have to do two XDEMVY. So expensive! But I hear they're trying to get it to $100 in 2025 (I paid $997!) and they may have it covered by Medicare (I'm 74).

The 2% salicylic acid is an exfoliator that you leave on overnight that removes the sebum 'stuff' on your skin that the DX thrive on. It's really amazing and I just learned about it last week. If you don't exfoliate, go easy in the beginning. I've used an exfoliator for years but not one that got rid of sebum. After researching it I bought it from Sephora, which carries Paula's Choice products (something else new I've learned about in the past two weeks).

For alcohol killing the DX, I read in an NIH report: "In vitro killing effect...
We first surveyed the effect of a number of agents listed in table 1 1 on D folliculorum, and noted that 50% baby shampoo, 100% mineral oil, 75% alcohol, 10% povidone-iodine, or 4% pilocarpine could not kill Demodex in 150 minutes. In contrast, 100% alcohol killed them in 3.9 (SD 1.2) minutes." (I had noted this and another study earlier today but it was lost and fortunately this was still on my clipboard. I'd give you the URL but I fear I'll lose everything I've written again.)

Despite what I pasted in above, the tea tree oil (TTO) seems to be the best and killed the DX at just 3.7 minutes and it's more tolerable than 100% alcohol (which I can't find - just 99%). Two days ago I put 100% TTO throughout my scalp and neck and waited ten minutes before washing my hair. I don't know if it did any good, but I feel that anything I do is better than nothing, especially after getting lots of facial creams that only made the problem worse. I've been using AI to find out which products have oils or shea butter in them so I can avoid them or throw them out. It saves a lot of time! I name multiple products specifically, saying I have a Dermodex problem, and it gives me the ingredients and warns me off the ones with oil.

I wash my sheets every 5 days but change the pillow cases every morning and wash them in hot water with a 'sanitary' dry. It's time consuming but worth it.

I bought my 100% tea tree oil on Amazon and it's important for alju to read the reviews. To avoid irrelevant ones I click on the number of reviews on the product page and then scroll up to where there's a box to fill in what I'm searching for. If you put in 'Demodex' it'll take you to the people who mentioned it in their review. Hundreds!! Or use other key words since there are too many people who don't know about DX but have dry eye, mites, rosacea, etc.

I'm stunned by the YouTube videos that have dermatologists touting cures for rosacea that don't even mention DX, but am happy I found doctors who really do discuss it.

I'm sorry this is so long, but I'm like the others who have been dismissed by doctors who aren't properly educated (one thought I was crazy), and am eager to share what I've learned.

I'm in Philadelphia and fortunately one of the country's leading doctors on dry eye is here - Dr. Massaro. She's great and is part of Scheie Eye Institute which is part of HUP (Hospital of the University of Pennsylvania). She's the first one who told me about those damned mites! I think others know but don't want to alarm their patients. That's not good.

I'm happy to have found this support group. Good luck with your progress!

I just reread this post. Did you ever have any adverse reactions to any of the several products you used? Did you use them over the same period or keep them somewhat separate ? I was thinking I was finally having some improvement but yesterday my face looked so awful - many red bumps, blotches , tiny white spots under the skin - looks a lot like milia but don't think that's what it is. Plus my eyes were itching like crazy. So I'm wondering if I'm overdoing these daily "treatments" or having some reaction to a product OR if this is what I've seen some refer to as "die off". Is that really a visible happening - die off? This daily regimen is becoming time consuming; I'd be more encouraged to keep at it if I saw some improvments.