Jittery feeling, toe twitching, involuntary leg movements and more

Hey, all.  I'm pretty relieved to see this message board.  I'm kind of out of options.  I'll try to keep things short, but I wanna be thorough.  I'm primarily making this post because I live in Japan now, and need advice, in whatever form it may come.  If you wanna skip the history and get straight to the heart of the matter, read the last 2 paragraphs.

First of all, I never considered myself necessarily an anxious person or high stress, but I'll admit that some of these symptoms are intensified or more frequent due to stress at times.  However, I'm pretty sure that even a decade ago, on a very rare occasion, I'd have Restless Leg Syndrome symptoms.

In December 2020, I had hernia surgery.  About a week after the surgery itself, and as tired as I was, I just couldn't get to sleep one night.  I couldn't help notice...my teeth were chattering.  Not heavily.  Barely perceptible, but it was more like I was trembling or something.  I learned to live with it.

Fast forward a few months into the pandemic, and a few sleepless nights returned.  We're talking awake for 24 hours+, super tired, but unable to sleep.  I had a few anxiety-caused sleepless nights in my youth, but this was different.  Like...heavy pressure on my body .  Went to the hospital, had blood/urine tests, brain CAT scan.  Doc said nothing looks wrong, though blood pressure, weight, and cholesterol are a bit high.  But the problem is all mental.  Tried to live with it...

Fast forward again a few more months, same problems, but now a heavier jittery feeling.  Like...having nothing but espresso and no food, and my left foot feeling a little tingly, almost like my bare feet "slipped" on carpet.  Saw a psychiatrist.  She put me on several medicines, one being Landsen.  They helped me sleep, but problems persist.  Tried again to live with it.

Then I developed...I'm not sure!  What's the difference between a spasm, a twitch, a tick, a tremor and a palpitation?  Just about to fall asleep...boom, leg kick.  Not all the time, but enough to not call it a one time deal.  Local psychiatrist put me on different meds, a beta blocker and a serotonin uptake inhibitor.  Didn't really fix the problem.  She assigned me a specialist at the big hospital, with a nerve retention test and brain MRI.  When the results came, he didn't really say anything was unusual, but didn't say I'm good either.  Maybe bad translation.  Bless the Dr.s heart, he has to deal with advanced Alzheimer's and ALS patients, but he seemed very dismissive of me, almost irritated or myopic about it, ultimately saying he doesn't know what it is, kind of like "What do you want me to do about it?" attitude.  Basically, he shrugged.  The kicking thing kind of went away...thought it happened rarely.

During work one day, in December of '21, I noticed my middle toes of my right foot twitching in my shoe.  It was happening kind of frequently when my foot was at rest, but didn't think much of it.
In early Spring of this year, I woke up with my middle, index, and thumb numb.  Maybe I was lying on it.  Strange at first, but then it started happening more, with the whole hand.  One day, it was the whole right arm.  Neurologist time...a different one than before.  This guy put me on Tarlige, ordered a neck MRI, more blood work, and some other Chinese herbal stuff that I didn't continue past 4 days.  A few weeks later, muscle twitches (like heartbeats) randomly happening everywhere, noticed at rest.  Back, shoulder, stomach, calve, thigh, toe, fingers, arm, buttocks.  That's when he mentioned it as a symptom of ALS, mentioning higher CK levels, although my numbness is not a part of that.  No lie, I had a lot of anxiety over this, and body trembling.  Eventually, after looking over the MRI results and other blood work, he says it's "unlikely to be ALS".  So...I've calmed down a bit.  The numbness in my fingers and arm also went away completely. Because of Covid here, I haven't been working all that much.  Doctor basically said my symptoms are from stress, that I'm "lacking purpose", and if I go home for a bit I'll probably recover.  I went home for a month.  I didn't recover.  In fact, I'm now pretty scared.

So we're in the now.  (It may or may not be related, but I had a lithotripsy procedure 3 times in the past 3 months to get rid of a peanut-M&M-sized kidney stone.  We knew about it for years, but just didn't have the time to get it taken care of.  The first 2 lithotripsies didn't do much, but the most recent one seems to really have worked this time, so I'm dealing with all the joys of that at present.)  Since most of the medical professionals I've encountered have been...mm...disappointing, Dr. Google has pretty much been how I've tried to figure out WTF is wrong with me, or how to curb symptoms.  Most of the top contenders for what I may have (ALS, MS, Parkinson's) don't fit the bill, as none mention a jittery or shaky feeling, and all are accompanied by symptoms I don't have.  Teeth are still chattering if I close my jaw just right, but it's not noticeable in daily life (again, more "trembling" than "chattering").  As I said at the top, a lot of these seem to be kind of like side-effects of extreme anxiety.  I know that my wife told me she can feel the "bumping" of my muscles when I was asleep a month ago, that worried me.  A few times in the past week, I've woken up with a heart-racing feeling, checked it as soon as I woke up; 91BPM.  Starting around a week ago, the toe-twitching has returned.  This time, with a very jittery foot when at rest.  This is now constant.  I involuntarily move my foot from time to time.  I almost always feel like I'm heavily caffeinated, even if I ingested none.  I do not drink alcohol, but do drink a fair amount of milk.  My thighs on both legs feel a bit sore, but this might be nothing.  I've been drinking plenty of fluids, and tried electrolyte-replenishing drinks with little effect.  Last night, a horrible impulse to move my leg happened a few times, I assume RLS.  The toe-twitching, once confined to my right foot middle/4th toe, now may be happening to my LEFT foot big toe now.  I'm having a terrible time getting to sleep, even with ZzzQuil or Landsen.  I don't know how else to call this feeling other than "very jittery", but the more frequent involuntary movements have me pretty scared. I know I seem to be getting worse...

I've been on Landsen, Tarlige, Lexapro, and tried homeopathic Hyland's Restless Legs PM, and Nerve Renew.  Please, if anyone has any suggestions, advice, references, or knows a neurologist that can be contacted, or someone even get close to identifying what it is I may have, please reply.

-Brandon