Myelogram for all spine - Experiences

Posted by soccer1477 @soccer1477, Feb 19 6:31am

Hello,
I have been scheduled for a Myelogram CT scan with Dye, and I have many fears, one I'm allergic to the Dye, and two, I have read that Arachnoiditis can develop due to Myelogram, I would like to know more about experiences and what are the possibilities of developing Arachnoiditis from it, I have already had 4 ESI with no success, I have issues on my Cervical, thoracic and Lumbar, so had the shots in C5 - T1 - T5 - S1 and we still do not know what is going on. I was also wondering if we should try an MRI with Contrast before we jump into a Myelogram.
Thnaks

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I believe there was a problem with the dye several years ago and Arachnoiditis could develop from it. I had a Myelogram in 2015 and had no concern.

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@sophie46

I believe there was a problem with the dye several years ago and Arachnoiditis could develop from it. I had a Myelogram in 2015 and had no concern.

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Thank you so much for the information.

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@soccer1477 Do your doctors know about your allergy to the dye? You should discuss this with them. I would expect that they would not want put you through tests with risks that could send you to the emergency room. You do not have to consent. If you truly have an allergy to it, your response can be completely different than someone else's here.

The example I can give you is that I had a bad reaction to an epidural injection that caused random burning electric shock type pain for about 6 weeks because I was allergic to the polyethylene glycol in it. I didn't know that at the time, but after having a vaccination for Covid that also had PEG in it, I started having a reaction and went to the emergency room and they cleared it right away. If something you are allergic to is injected near your nerves, it might cause inflammation there. Isn't that how Arachnoiditis starts with inflammation of nerves that doesn't go away?

Jennifer

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@jenniferhunter

@soccer1477 Do your doctors know about your allergy to the dye? You should discuss this with them. I would expect that they would not want put you through tests with risks that could send you to the emergency room. You do not have to consent. If you truly have an allergy to it, your response can be completely different than someone else's here.

The example I can give you is that I had a bad reaction to an epidural injection that caused random burning electric shock type pain for about 6 weeks because I was allergic to the polyethylene glycol in it. I didn't know that at the time, but after having a vaccination for Covid that also had PEG in it, I started having a reaction and went to the emergency room and they cleared it right away. If something you are allergic to is injected near your nerves, it might cause inflammation there. Isn't that how Arachnoiditis starts with inflammation of nerves that doesn't go away?

Jennifer

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Hello Jennifer, yes, I have mentioned it and they explained that because it was injected to via veins and i also had to drink the solution is very different than the one that is injected in your medulla, so they were not too concerned but they said they would monitor it. Not sure how Arachonoiditis starts, what I understand is that it can be caused by ESI and also the Myelogram based on what is injected inside your spine.
I'm wondering if there is any other test that can be done such as MRI with Contrast through all the spine, and then if there are any more options, go with the Myelogram and pray and hope everything goes well, I have three doctors, two that says no to the myelogram and one that says yes, the two say to continue ESI and PT the other feels is something related to my Cervical and he wants to investigate more, the only thing I know is that I'm in lots of pain on my mid back, pecs, hamstrings, tibialis and perones and the medicine is not working or PT, including the ESIs i have had one on C6, other on T1 another on T4 and another on S1 - L4.
Thanks,

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I had a myelogram+nerve ultrasound last June without any problem.
It didn't help to improve my spine diseases, or to fix the spinal fusion between L2-L5, or to improve my foot drop, but it didn't cause any adverse event. It wasn't even painful, but the diagnosis didn't leave me with any hope for less pain, increased mobility or any chance of improvement of my foot drop.
Below is the summary of the 3-page long EMG results.
"Conclusion:
This is an abnormal study. There is electrodiagnostic evidence
of right L5 and S1 radiculopathy with ongoing denervation."

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@verahars

I had a myelogram+nerve ultrasound last June without any problem.
It didn't help to improve my spine diseases, or to fix the spinal fusion between L2-L5, or to improve my foot drop, but it didn't cause any adverse event. It wasn't even painful, but the diagnosis didn't leave me with any hope for less pain, increased mobility or any chance of improvement of my foot drop.
Below is the summary of the 3-page long EMG results.
"Conclusion:
This is an abnormal study. There is electrodiagnostic evidence
of right L5 and S1 radiculopathy with ongoing denervation."

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Thank you for your reply @verahars hope you find some answers for your pain.

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The MRI should be as definitive as the Myelogram with less insult to you re: die allergy unless there is another compelling reason to not have an MRI? I have stainless steel plates and screws in my lumbar spine L4-S1 so I cannot have an MRI as yet. I’ve heard that some new devices are out that may change that too. I may be able to have an MRI of my upper body though but haven’t had a need as yet.

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