How do you, as a parent, deal with the anger? Son has sarcoma

Posted by bkayk @bkayk, Feb 19 1:25pm

My son was diagnosed with Ewing Sarcoma February of 2022 when he was 17. Had chemotherapy and surgery. Was doing great working out playing on college basketball team. Then December of 2022 he had a recurrence. Now doing proton radiation and oral chemotherapy.
I am just do angry! It’s not fair!

Interested in more discussions like this? Go to the Adolescent & Young Adult (AYA) Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | Feb 23 4:41pm

Hi @bkayk, I added your message to the Caregivers as well as the Cancer support groups so you can easily connect with other parents whose young adult children were diagnoses with sarcoma like @interruptedivc @amd123 @erasahai @jennifer0726 @madstrong @janezum @phuds01 and others.

I get the anger. It's just not right that life in adolescence and young adulthood gets brutally interrupted by cancer. Just. Not. Right. But you have a right to your emotions. Feel free to vent.

Has your son had to delay his semester in order to go back on treatment? Did he return home to be with you? Is the proton therapy facility close to home?

bkayk | @bkayk | Feb 24 6:39am

Yes, he went down to just 2 online classes. He was going to Ridgewater in Willmar so he moved back to Mankato where we live and drove back and forth every day to Rochester for the proton radiation.
Yesterday was actually his last treatment but will still continue with oral chemotherapy. He wants to go back to Willmar, I am worried about him taking the medicine correctly. The guys from his basketball team surprised him 🥹

hshearer | @hshearer | Feb 25 4:54pm

@bkayk, I hear you! There are no words to describe what we are going through.

It's been one year since my 29 year old daughter was diagnosed with grade 3 brain cancer. She has completed Proton radiation and is on session four of oral chemotherapy.

Anger is definitely an emotion I have experienced frequently this past year. While I might not be experiencing anger as frequently as I have in the past, the emotional rollercoaster is something I experience almost daily. This diagonsis has changed our lives forever.

You are valid when you say it is not fair. In my year's experience, young adults with cancer are overlooked and escpecially those with rare cancers. I think even the medical professionals are not quite sure what to do with them. They just do not fit in the "typical" demographic of those with cancer. It's all so very frustrating.

Right now, I spend as much time as I can with her doing as many "normal" things as we possibly can. Normal is what she craves. There are many days where she wants to talk about anything other than the cancer.