I am extremely disappointed in my care. I have an onc/ heme who refuses to work with a cll specialist. I can tell, from discussing treatment options, he is not up- to-date with treatments. He does not answer my questions. I need a cll specialist and a trustworthy onc/ heme. There are no cll specialists here.
To allow me to be seen by Mayo, I changed my insurance...Only to be told Mayo won't see me because I come from an area where hospitals are closing or being bought out....
I feel completely thrown away and at the mercy of people who see me as a mere income rather than a valuable life. I was an oncology nurse, so I do not make this statement lightly.