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Angioimmuneoblastic T-Cell Lymphoma???
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (10)Comment receiving replies
My daughter, age 34, was just diagnosed this week with Angioimmunoblastic T-cell Lymphoma. Needless to say, we are terrified. How is your chemo going? Any insight on your short journey would help us immensely. Are you getting treatment at the Mayo? I apologize for all the questions my head is spinning.
Replies to "My daughter, age 34, was just diagnosed this week with Angioimmunoblastic T-cell Lymphoma. Needless to say,..."
@kthomson
I was diagnosed with AITL in August of this year.
I am on round 5 of 6 BV-CHP and will have a autologous stem cell transplant in March.
PET shows I am in remission after rounds 3.
I am wondering how your daughter is doing? I know this is a very scary, rare disease and it is hard to find others who have AITL.
Thank you for any advice or suggestions.
Jennifer
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Hi @kthomson, I'm tagging @thorsmom1959 to make sure that they saw your post about your dauther's recent diagnosis with angioimmunoblastic T-cell lymphoma. I can imagine you are both terrified. What treatment had been recommended for her? When does she start?