I found an answer to the pain and burning at night, I hope that it you

I’m sorry to hear you have all those other symptoms. I go back and forth between having a little bit of hope on my better days and hopelessness on my worst days. I wish you the best.

Has anyone tried stem cell therapy, along with red light therapy? I went to a seminar about this and they told me they have a 95% success rate with these therapies for treating PN. Very expensive and time consuming. The starting rate was $10,000. Would love to hear if anyone out there has tried this or know someone that has tried it.

I have a question for anyone trying alpha lipoic acid. I just started using it and noticed that my urine has a fruity smell. I stopped taking it and it stopped. When I resumed the dosage it started again. So I know that is the cause. Anyone ever notice this?
I've posted this in a couple of places.

I've been on a gluten-free diet ever since my daughter found out she was gluten intolerant, some 30+ years ago. I have PN but no tingling nor pain. For several years after her initial diagnosis, she still lived at home, so I learned to cook gluten-free. She is highly gluten-sensitive and also sensitive to other foods. She used a specifid Elimination Diet (Bastyr Naturopatic College, Seattle) where one eats only a very few foods for about 3 weeks, then begins to add other foods back one at a time. That is how she pinpointed what she is allergic to: all gluten-containing foods (wheat, spelt, barley, rye, oats, etc.), but can eat rice and quinoa; allergic to all cow's milk products except butter (because it doesn't contain much protein), but can eat goat and sheep dairy products; and it goes on and on. I've learned to cook this way and it is surprisingly easy. When she is not here I do use regular flour and other grains and also cow's milk and milk products, but whenever she visits we move right back to her diet. It isn't that hard to do, but it is different. She is also highly sensitive to odors/aromas/scents.
Has anybody found a good dishwasher detergent without scent?

Hi @allegheny

I have done cold laser therapy, it worked for me. I also do many other things: diet, exercise, shock wave therapy, and IVig. I did the cold laser therapy before the IVig, it decreased the tingling at least 80%.

@joanland
Seventh generation and Finish make unscented dishwasher detergent. As for the elimination diet, I did straight rice for a week, then added a new food every three days. First thing I added I was allergic to! I have done this more than once....
As for cleaning around the house, I have various steamers.
JFN

Stem cell therapy recommended by functional physician. LLLT (red lite), specifically 630nm and 810 - 860nm (NIR) also recommended by my D.C.

Stem Cell Therapy sounds very expensive…. although will be multi-thousand$.

Ordered LLLT wraps with correct specs from Jurawave. Will follow-up with results.

I have a small red light unit that I purchased for under $1000 that I have used for the last 4 months 1 hour daily. It may be helping the symptoms at night somewhat, hard to tell. I also hae done some alternative treatments at the same time like shock wave therapy on the bottom of my feet and vibration plate. Sometime I think it has made a difference other nights are bad with the pins and needles. I am trying not to go on meds which is the only answer the neurologists seem to have. If you are considering red light research the best ones because it makes a difference.

I gave this a try the other night when my left foot was really hurting. And it worked! I couldn’t believe it. The pain subsided and I was able to sleep. It also softens callouses.

I, too, have reduced symptoms by eliminating gluten. I noticed also that pain and burning, zapping, and odd miscellaneous sensations like water rolling down limbs, or something crawling or brushing up against my legs have all been reduced or eliminated by also halting sugar intake. I still have neuropathy, and walking is still unpleasant, but I can at least sleep at night, and I am functioning better.
What is curious is that I tried the elimination diet twice and it was only when I eliminated gluten, sugar, and dairy for a long span of time (much longer than they typical elimination period) that I finally felt better and learned that I have become gluten sensitive.
I recommend trying it if you are willing. It isn’t the easiest lifestyle to maintain, but you may find it worth the inconvenience.