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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@allstaedt57

Jeannie, I will be having my third BMB at Sloan on the 19th. My first was in my hometown of Asheville, NC. My Oncologist did it himself after providing me with 1 mg of Ativan IV push, 1 mg of Dilaudid IVP and topical Lidocaine. It was very comfortable, unlike my second one (first at MSK) which they only gave me a total of 1 mg of Ativan by mouth (PO) broken up in 0.5 mg followed a half hour later with another 0.5 mg and apparently some topical numbing factor. I'm sorry to say that was inadequate coverage. I found it to be very uncomfortable to the point of painful, but for a short duration. I have told my Provider that I do not want a Fellow/Resident doing my upcoming one - only a seasoned professional. I allowed a novice to practice on me the first time. Not again. Guess it depends on your tolerance for pain? I had no complications otherwise and no residual issues.

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Replies to "Jeannie, I will be having my third BMB at Sloan on the 19th. My first was..."

@allstaedt57 agree! I receive most of my care in a teaching hospital and although I have great respect for the experiential learning piece, I am clear about communicating what I will agree to let a resident take the lead on.
My MGUS care is in a cancer treatment facility so that’s not a problem.
You definitely want someone doing the BMB who does several a week rather than someone who has done one or two before.

I have had 4 BMB. All were done by my oncologist at the time. The first one was very uncomfortable! Then I moved 800 miles, and have a new doctor. He has done 3 BMB on me, with no sedation, no ativan, nothing. He is just the tops in my book. No pain, no issue, no discomfort. In fact, I drove 2 hours home after each one! A lot has to do with technique, and general approach to patient care, in my opinion.
Ginger