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Essential Thrombocythemia: Making treatment decisions

Blood Cancers & Disorders | Last Active: Sep 15 11:57am | Replies (160)
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@janetbender

My hem/oncologist said you live a normal lifespan with regulated platelet count.
I see people in town Not wearing a mask - not me.
Just be vigilant with your health - mask, wash hands, follow doctor’s orders.
The first month after diagnosis I was a wreck - then you settle into a routine.

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Replies to "My hem/oncologist said you live a normal lifespan with regulated platelet count. I see people in..."
dkmitchell | @dkmitchell | Feb 21 9:39am

I am a mask-wearer at all times. I am usually the only mask-wearing person in stores but better safe than sorry. Yes, we can have a normal life span if we have ET. I also developed kidney disease at age 5 and if I catch a cold, I have to get a prescription for antibiotics right away or my kidenys fail.

My hematologist at University of Chicago Hematoloty and Oncology told me repeatedly "ET is not cancer" again and again and again.

Yes, it is always nice when we settle into a routine. 🙂

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