Welcome to Connect @69holding.
I moved your message to this discussion thread so that you could connect with other members talking about CLL. Like you @nellieblue has had CLL for a long time (12 years) and not needed treatment. @KathleenWarren @ikampel2 and @katemn may also be able to share experiences to help answer your questions. When is your next 6 month check up?

Hello 69, If you do get to the point of treatment .. ask your Oncologist about the newly approved chemotherapy 'IMBRUVICA". My husband was diagnosed in 1996 but is now Stage 4 .. is doing really well with: Imbruvica 140mg 3 capsules 1x day since 11/12/14 for his CLL.

He went from having his lymph nodes showing up in photos .. to now his doctor can't even FEEL THEM!! Almost no side effects .. bruising and some fatigue but minor!! Frankly the chemo has been a "piece of cake" .. we are traveling .. living our lives and having fun! He is 75!

Hello 69, you asked about hair lose. I just asked him. Keep in mind .. he does not have a full head so I asked him if he noticed hair loss when he took a shower .. he said absolutely not! And I would say he has nice hair for his age! Each person is different and their bodies react differently .. but it has been great for him. Also remember that you can't go on it until you have tried one other treatment .. at least that was true when he started. Good luck! Sending you a hug!

Thank you Katemn this give me lots of hope--I so appreciate you letting me know your husband's experience with Imbruvica, I have heard lots about it. I go next week to my Oncologist so I will see what he says. Did your husband lose his hair? Being a woman just aksing?? Thanks again.