← Return to Essential Thrombocythemia: Making treatment decisions

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@loribmt

Welcome to Connect, @clareaq. Your experince shows the importance of working with a MPN specialist when you have a myeloproliferative disorder such as PV or ET. Thank you for sharing your story and valuable insight with other members in the group.
How often do you have followup blood work?

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Replies to "Welcome to Connect, @clareaq. Your experince shows the importance of working with a MPN specialist when..."

As my hemoglobin has been so low, they’ve had to modify my meds a bit and keep checking my iron, I have labs done every 3 weeks. Even though my iron has been ‘normal’ my doctor decided to have me get two iron infusions because a low hemoglobin can also cause platelets to rise. It actually helped. My hemoglobin went from 9.2 to 11 in three weeks. My platelets did not go up. It does seem my low hemoglobin will be a constant battle.