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@blondie65

No symptoms at all. Found on routine blood work. It’s such a scary situation. My mother had lymphoma and passed at age 56. Talking to my oncologist about it and he said you both had blood disorders. He does not call it a blood cancer. Said I should live to be 80. I freaked out I’m already 65 this is not long enough.

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Replies to "No symptoms at all. Found on routine blood work. It’s such a scary situation. My mother..."

Good morning, @blondie65 I expect you have a doctor who is younger than 65, right? From his perspective, 80 is ‘old’. Telling you that you’ll live to be 80 isn’t a firm date…it’s letting you know, with treatment, you have a long life ahead of you. 80 isn’t the cut-off date.

In my previous reply for you, I posted inks to conversations with other members who have both ET and PV. Those comments contained links to artcles on myeloproliferative neoplasms (MPN) the classification of blood disorder with your diagnoses.
Here are two of the articles. Some doctors refer to MPNs as disorders. Others call these disorders blood cancers…depends on the doctors. Either way, with treatment, often these can be well controlled.
https://my.clevelandclinic.org/health/diseases/24144-myeloproliferative-neoplasms
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https://www.healthline.com/health/cancer/myeloproliferative-disorders
I know how frightening it is to have any diagnosis with ‘cancer’ in its name’. In my case it was an aggressive form of leukemia diagnosied at 65. I’m now 70, in full remission and have no cut off date! My doctor said I have a normal life expectancy now and the way I feel this should have me riding into triple digits. 😅
So my advice is just continue to live and enjoy your life…to 80 and beyond!

In my research after receiving an ET diagnosis, I've read that the "average" life expectancy of someone in their 60s with ET is 15 years. Lots of ET people whose platelet levels are controlled live decades with it. My guess is something else will get me before ET does 🙂

I am 72 and I agree, 80 is not long enough