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@lindagi

Hi Marylou,
I have been taking decitabine together with venetoclax throughout my treatment so I am not sure exactly which side effects are caused by decitabine. I believe my most serious side effect (neutropenia and consequent immunosuppression) is attributable to venetoclax. At times I do have fatigue, constipation and shortness of breath with exertion but I think those things could be because of either drug and/or because of the AML itself. Good luck in the weeks ahead. I hope your treatment brings you relief from all you are struggling with.

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Replies to "Hi Marylou, I have been taking decitabine together with venetoclax throughout my treatment so I am..."

Thank you Linda. I currently feel very good which is why I was asking about side effects from Decitabine. I need to be functional. They want to lower my blast for a clinical trial, but I don't have any info on the trail and don't know the time commitment for the trail. I have not made a decision yet about going forward with the trail. I am being scheduled in a few months for an Allogeneic Stem Cell Transplant and will have conditioning chemo for that as well. I am.meeting with my Leukemia Doctor this coming Friday and I will have questions for him. Then I will decide about the trial.
Glad your medication is working for you. Stay hopeful.