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Post Interferon Syndrome

Infectious Diseases | Last Active: 6 days ago | Replies (515)

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@rlxdlr

I am 10 years post tx and barely have a life. I had 4 years (trials) attempting to clear hep c the 4th year using the current drug (which cleared me) on the market. The first 3 years (attempt/fails) included interferon, ribavirin and an experimental drug. Needless to say, like the others posting here, I have slowly been affected by post interferon side effects until now...where I barely exist every day. I have chronic Epstein Barr as of approximately 8 years ago and have contributed my condition to it. My Osteopath recently ordered an ANA test and I was positive (dictating past exposure to interferon). I don't really know where I go from here. I have spent 10's of 1000's on medical chasing this. I feel for everybody on here...I am living the nightmare myself. Existing is about all I do so fatigued with other weird symptoms daily. Hoping a Rheumatologist might have some answers.

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Replies to "I am 10 years post tx and barely have a life. I had 4 years (trials)..."

We are not alone. Life is so tough. All this crying and frustration.

Not that it helps you, but I've gone through the exact issues and happen to mirror your timeline with Interferon and Ribavirin. My Rheumatologist has heard of this problem, but had no answers for the pain and fatigue that I've had for the last 5 years. Absolute torture!