Hi there @smiddy73, welcome. Thanks for your reply to one of my older posts. I feel for your situation and understand how complicated it can be having a plethora of symptoms while trying to be patient and optimistic throughout testing and diagnosing. Your neurologist seems to be right on par with trouble shooting and it sounds like you're in good hands.
Luckily, you've come to the right place by finding Connect. There are so many helpful folks here that offer great suggestions and share common experiences. I love the fact that you're keeping up with physical activity. That is so important! I recall being scared of what I used to feel in my body, but these years later I've come to find acceptance and ways to work through pain, discomfort, cold feet and all.
Like @minfromtexas finds distraction through art, reading or exercise, I also use distraction as a tool. Humor is a good distraction - funny movies, pod casts, comedy shows. Journaling is great for mental health to release swirling thoughts or fears. On the flip side, journaling is also great for finding gratitude and shifting mindset to what is good in life and what we CAN do. You will find a neuropathy ally in @artscaping who shares a wonderful outlook of honing in on a quality care plan. Mindfulness, deep belly breathing and meditation helps many of us keep calm and cope with neuropathy symptoms.
You asked for comments as you ended your post...my final comments are that you appear to be very resourceful and determined to persevere. With a little help from Connect and it's members, I have a feeling you will manage whatever comes your way, neuropathy or not, and keep on playing competitive table tennis (which is awesome by the way)!
Will you report back on the March testing results?
Thanks for your reply. It sounds like you have a lot more to deal with than I have. And I get relief from my ice cold feet( mainly left one) when I go to bed. I wake up in the morning as warm as toast. Beats me why this is so. The only sign as far as i can see, that I have SFN is that my left foot seems warm enough to touch, but I find it is freezing, or my brain is telling me this.
I sometimes wonder if my problem is down to me losing muscle mass which makes my body colder, and the warmth all goes to my body core, leaving my feet cold. I certainly noticed a big difference after the pandemic: my torso and legs/arms looked puny compared to how they used to look. But the neurologist dismissed this theory of mine..it would certainly explain why I warm up in bed.
Tests are next month, nerve conduction ones first , and, yes, I will post the results on here. Table tennis is something I first played in my teens. Back then my home was a small mining village. To be able to take the right school exams and go to University, if you were deemed capable enough, meant living away from home at a school where the Scottish " highers" were taught. We lived in a boys hostel and there was a table tennis table in a hut in the garden. Some of us got quite good at it and won the Dumfries junior league. After Uni I stopped playing but revisited when I retired. Football was my primary sport in my early years and I had wondered if all that hard running had contributed to my supposed nerve damage. But, no, said the neurologist.
I'll leave it at that but will post when I can.
Regards..