PMR Flare with New Issues

Posted by marilyncarkner @marilyncarkner, Feb 12 7:02am

I have had PMR for 5 years and GCA for 3
Years.GCA seems under control or gone now PMR flared when I hit 3 /4 mgs alternating.
Additional symptoms with Flare are burning in upper arms and itching like my nerve endings are on fire. My rheumatoid doesn’t see the connection to PMR.
Very very irritating
Anyone else experience this ?

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richardab | @richardab | Feb 13 10:22am

After a rheumatologist visit last week, I went from 15 mg daily to 12.5 one day and 15 the next. Unfortunately, my PMR has been flaring more and more each day, lots of body aches from shoulders to knees. Ran a fever all day yesterday, down a bit today. I'm going to stick with the new regime until my body gets used to less Prednisone. No burning, sounds like some type of neuropathy which you should consult with your rheumatolgist regarding. Best of luck, I hope you get your condition under control.

marilyncarkner | @marilyncarkner | Feb 13 1:53pm

In reply to @gila "Well acquainted with skin discomfort. I have PMR and the Morphea form of scleroderma. The skin..." + (show)

Thanks so much for your informative reply.
I dont have a diagnosis but electrical zaps just after Rheumy upped me to 10 mg from 3
Last night I was miserable,I didnt sleep all night
I took more Benadryl than normal 3 pills and also extra strength Tylenol . My pain has decreased by 90 per cent today. Go figure

pb50 | @pb50 | Feb 13 4:11pm

In reply to @marilyncarkner "Unfortunately not other than I am already taking" + (show)

Maybe worth a question to your doc - should we consider, etc.

pkalkstein | @pkalkstein | Feb 14 6:11pm

In reply to @windyshores "For others: GCA is giant cell arteritis (I looked it up). I am not clear on..." + (show)

Low-dose naltrexone fixed my neuropathy. You might want to check it out.

linda7 | @linda7 | Feb 14 7:56pm

I have read in several sources that biceps tendonitis is often a symptom of PMR. When my PMR first started I would get shooting pains in the area of this tendon, on the front side of the upper arm below the shoulder. Burning would not be the first word I would choose to describe it, but many of the PMR pains I have around my shoulders have a burning quality to them. I just wanted to let you know that there is a "classic" PMR symptom that occurs in the upper arm.

sloped483 | @sloped483 | Feb 15 6:04am

Itching in sunlight, hot showers, exercising, and sex can be attributed to iron deficiency anemia.

It took 20 years as well as several endocrinologists later to finally check my iron levels even though I had high normal red blood cells.

After 2 iron infusions I am itch-free.

marilyncarkner | @marilyncarkner | Feb 15 7:32am

In reply to @linda7 "I have read in several sources that biceps tendonitis is often a symptom of PMR. When..." + (show)

Thanks very much for your reply … food for thought for sure

nancy53 | @nancy53 | Feb 15 9:01am

In reply to @windyshores "What is PMR?" + (show)

PMR is hell on earth. The BEAST of a disease. The internet has a lot of information. Are you just curious, or think that you have it?

marilyncarkner | @marilyncarkner | Feb 15 5:55pm

For sure I have it and had it for 5 years . For me it has been pretty easy until this flare because the has nerve endings in Arms were driving me crazy. Doc said not connected to PMR but don’t know where it comes from.