Trigeminal Neuralgia & Covid-19 shots
My wife suffers from Trigeminal Neuralgia and is concerned that having it would stop her from getting the Covid shot since she has read that with the Pizer shot people with Neurological disorders are advised not to get the injection. Thoughts?
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There’s not many positive remedies out there for a persistent Trigiminal Neuralgia exacerbation. My TN pain was so bad (10 out of 10 on the pain scale) that I also had spontaneous vomiting, stabbing, cutting pain cutting through my eyeball and an unilateral forehead pain that felt like my forehead was going to explode. I went to a Chiropractor who has given me two laser treatments, over a week (on the side of the TN) and it appears to be helping keep the TN under control for now (or maybe the TN exacerbation has just ran it’s course). Has anyone else had laser treatment for TN with persistent relief?
I had a terrible case of Trigeminal Neuralgia back in 1983. It was a terrible burning and alternating train hitting the side of my head. Aspirin did nothing.
I was living in Italy at the time and had several doctor friends. They recognized what I had and sent me to a neurologist who put me on Tegretol, carbamazepine. I was out of commission for a month. Then I noticed that a molar had lost a big filling in that part of my mouth. I think that might have been the trigger. Some years later I suspected something might be returning and ran to the Neurologist. Fortunately, things did not develop and I have not had a reoccurrence. The Neurologist explained to me that nerves have memories so that can contribute to reoccurrences. My dentist wanted to do an implant for that tooth, but I refuse to touch that area. I do not want to wake something up!
Regarding the Pfizer vaccine, I have had 7 doses now with absolutely no complications. With my lungs I need all the vaccines as I cannot afford a serious case of any lung disease.
Found this article
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10189574/#:~:text=TN%20can%20occur%20as%20a,possible%20complication%20of%20COVID%20vaccination.
I have had TN 1 twice. I have had all my covid shots and don't believe the most recent TN was caused by a covid-19 shot.
Six years ago I had damage to the side of my head and Immediately came down with TN. This lasted seven months and was the most painful condition I have ever had. Two months ago it came back. I'm on a mild antidepressant and anti seizure medication. I became aware that the shocks I was experiencing were always due to something I did if I wasn't careful. A lifetime of habits now lead to excruciating pain. Touching my face, brushing my teeth, chewing on the wrong side etc. When I was careful I might only have one shock a day. Then I thought what if I was extremely careful and had no shocks for three days. I accomplished this and decided to go for eight days. This was very difficult. After eight days I was curious to see what would happen if I touched my nose which always produced the most painful shocks. I touched my nose and nothing happened! It was gone! And it hasn't come back. I know every case is different but this is what worked for me. I hope it might help someone with this problem. The pain is excruciating and TN is demoralizing.
Your story sounds familiar to me. I have an autoimmune disease and my PCP wanted me to get the COVID vaccine but I was weary because I had read people getting Bells Palsy within 30 day after they had the vaccine and I already had BP and didn’t t want to be at risk again to get it. I listened to my PCP bc she was concerned that if if got COVID I would be a high risk bc of the autoimmune condition. I got the vaccine and within 30 days I got the Bells Palsy and it lasted quite a while. After that not sure how long after, I felt a tingling around my lips and thought I was getting a fever sore (Herpes Virus) it just spread to the whole side of my face and scalp, teeth and gums and I had the lightning bolts of pain intermittently, but mostly it was the numbness that bothered me the most, Trigeminal Neuralgia has been ruled out bc TN doesn’t usually cause numbness. I did 4 months of Prednisone, didn’t work, went on Gabapentin for about 4 months it helped with the pain but not the numbness. Had two MRIs and a Spinal Tap. The MRI showed no enhancement to the nerve, the ST was normal, no cancer or tumors. I was tested for Alzheimer’s & MS from the ST and thank God that was negative. The only thing they found was a protein called Tau Protein and they do not know what it means because it is usually a protein that is high when people have Alzheimer’s, and I tested negative to that. My Neuro/Rheum. Believe it is a complication of my autoimmune condition, causing inflammation or infection but I swear its from the COVID vaccine and like you I’m done with vaccines. In July 2025 it will two years and no answers. They call it a rare disease because they have never seen anything like it and basically don’t know how to treat it. It does involve the Trigeminal Nerve, so they are calling it Trigeminal Neuropathy. I tried Methatrexate, but it gave me too many side effects. They wanted to try IVIG infusions but I had some GI Issues and they didn’t want me to go through possibly having side effects and making GI issues worse. You know what, I’m glad they didn’t have me try it because I’m done, I feel good not having all these drugs in my body. I have accepted what is and am hopeful that things will eventually get better and burn out. I eat clean and healthy and I think that has a lot to do with inflammation so maybe in time I will wake up one morning and it will all be gone, not going to stress over it anymore because it has been controlling my life for two years and there’s too much in my life that makes me happy so thats my focus.