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Post Interferon Syndrome

Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)

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@robbyd

We understand, unfortunately the Medical community does not. It helps to understand our symptoms are real. You go through all the side effects while you’re on it and 10 years later they come back.

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Replies to "We understand, unfortunately the Medical community does not. It helps to understand our symptoms are real...."

Agree. If we do not complain and keep it to ourselves, how is anyone going to know what we are going through! It’s so darn painful. Some days I wish I could die but that’s not my call, it’s my Creators! The last ten years have gotten so bad. The constant pain, I cry myself to sleep but only sleep for a couple hours at a time. I went the full 48-weeks/eleven month of doing my own subcutaneous injections every Wednesday with nine Ribavarin pills daily. I now deal with thyroid issues, constant muscle and joint pain, migraines, insomnia and now I’m dealing with my bowels and bladder quit working properly. Oh, and because of our COLA raise for social security, I got dropped from Medicaid. Rent went up fifty dollars, auto insurance also went up twenty two dollars….i got cut from food stamps, down to $36/month, our raise was forty five dollars. So, what the heck do we do now that we are old and hurting?