Radiation or not after surgery for endometrial cancer?

Posted by marceyw @marceyw, Feb 4 9:49pm

I was diagnosed with early stage endometrial cancer at Christmas. Had complete hysterectomy on 1/9/24. There was no cancer in the sentinel lymph nodes, ovaries or tubes. My doctor is suggesting brachytherapy to cut my 10% chance of recurrence to 5%. I’m concerned about the side effects. Has anyone been thru this and what are the possible side affects of this type of radiation? Dr said I don’t have the harmful P53 gene but do have a gene that would qualify me for immunotherapy if it were to come back. Really torn about what to do next. Would like to think I could fight the return with diet and lifestyle. Ideas and experiences appreciated.

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@again2

Thank you so very much. And the answer if yes..I did lie on a table,etc. I'm so glad you're here.

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You're welcome. I try to help out when I can.

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@marceyw

I had the complete hysterectomy and several nodes removed on 1/9. I am feeling remarkably well. Since it was done robotically through 5 small incisions and removed vaginally, I didn’t take pain medication for more than 4 days. Then I moved to Tylenol for another 3-4 days. I haven’t had to have anything else. There is still a lot of fatigue and my other organs trying to sort themselves out to their new spots when I cough or laugh. I still have to restrict heavy lifting for a couple of weeks. However, I’ve been able to return to running our business and cooking meals. I can drive again. I’d say fatigue and moving or stretching wrong causes the most discomfort. Prayers that your Grandmother does well.

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Such positive comments. Didn't realize any one could have such a terrific experience.

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@again2

I had 25 rounds of radiation after my endometrial cancer surgery in 2020. I went along with whatever the doctor said and never questioned the oncologist/surgeon,radiologist/hemotologist. Now that I am more knowledgeable I would never have radiation again. It was brutal while having it and all these years later I have late side effects that have been very difficult to live with.
I had recurrent endo cancer earlier this year with 6 rounds of chemo and keytruda and finished up in May. Pet scan showed all clear and had another petscan in Nov. Next one is Feb.21. I will be on maintenance as the very tiny cells were impossible to remove. As you all know,treatment after the first time is much more difficult. My vision is poor, as is my hearing.Neuropathy in hands and feet make like difficult and the joint pain is tough.
All of you who have praised radiation have been very fortunate but not every one has the same experience.

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So true! I blame my incontinence on radiation. Done in a distant room, all protections taken. I am in a fog about it all due to the length of time since it happened.

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@nupenini

So true! I blame my incontinence on radiation. Done in a distant room, all protections taken. I am in a fog about it all due to the length of time since it happened.

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Sorry to hear that. Did they make sure your bladder was full when radiation was administered? My family member was checked for that on a CT scanner before every radiation treatment. Radiation is an art and a science!

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@nupenini

So true! I blame my incontinence on radiation. Done in a distant room, all protections taken. I am in a fog about it all due to the length of time since it happened.

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@nupenini, welcome. How long ago did you have radiation?

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@gisellef

Hi. There are quite a number of good resources out there on diet. One is Dr William Li‘s “Eat to beat Disease.” Also, you might look for “Outlive” by Dr Peter Attia. Essentially, the message from both is to eat healthy vegetables, lean proteins and healthier fats. Aim for a healthy body weight and in particular keep your blood sugar levels in a healthy range. That most likely means cutting sugar and empty carbs to the degree you can. All improvements, even small ones, are worth striving for. Don’t forget exercise as a helpful way to assist your dietary goals and as a way to improve metabolic health. Look at “Moving Through Cancer” by Dr Kathryn Schmitz. She provides a framework for cardio and strength training that provides remarkable benefits in terms of health outcomes. Every single thing you do that is in a good direction will pay off in quality of life and longevity. ♥️

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Thank you so much - I'll check out these resources. I had already been eating organic as well as grass fed meat, but am doing a ton of research. Been listening to ChrisBeatCancer.com modules and learning about Juicing etc. Walking every day the last few weeks and working to lose weight. I also had a condition, Exocrine Pancreatic Insufficiency, which has depleted my body the last couple of years - this may have contributed to the cancer? But just had results today that my pancreas has healed enough to be back in normal range for the first time in 2.5 years. Praise the Lord! Maybe this will help me keep from having a recurrence.

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@marceyw

Thank you so much - I'll check out these resources. I had already been eating organic as well as grass fed meat, but am doing a ton of research. Been listening to ChrisBeatCancer.com modules and learning about Juicing etc. Walking every day the last few weeks and working to lose weight. I also had a condition, Exocrine Pancreatic Insufficiency, which has depleted my body the last couple of years - this may have contributed to the cancer? But just had results today that my pancreas has healed enough to be back in normal range for the first time in 2.5 years. Praise the Lord! Maybe this will help me keep from having a recurrence.

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Sounds as though you have found a workable pathway to better health. You have achieved a great milestone and undoubtedly your health indicators will continue to improve and you will feel so much better as time goes on. How wonderful it is to know you have the power to make these changes. Thanks so much for sharing. ♥️

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I had 3 radiation treatments at Abbott Northwestern. I had no side effects from this treatment and haven't had any symptoms of any kind since. All my checkups have been negative.

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I had 3 brachytherapy sessions with no side effects. This treatment is to reduce endometrial cancer recurrence at the vaginal cuff.

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@jc100

I had 3 brachytherapy sessions with no side effects. This treatment is to reduce endometrial cancer recurrence at the vaginal cuff.

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I too had three brachytherapy treatments and found it to be easy and have not had any side effects

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