1. < Gynecologic Cancers

Radiation or not after surgery for endometrial cancer?

Posted by marceyw @marceyw, Feb 4 9:49pm

I was diagnosed with early stage endometrial cancer at Christmas. Had complete hysterectomy on 1/9/24. There was no cancer in the sentinel lymph nodes, ovaries or tubes. My doctor is suggesting brachytherapy to cut my 10% chance of recurrence to 5%. I’m concerned about the side effects. Has anyone been thru this and what are the possible side affects of this type of radiation? Dr said I don’t have the harmful P53 gene but do have a gene that would qualify me for immunotherapy if it were to come back. Really torn about what to do next. Would like to think I could fight the return with diet and lifestyle. Ideas and experiences appreciated.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Mentor
Helen, Volunteer Mentor | @naturegirl5 | Apr 1 8:49am
In reply to @tg24 "Thanks for your response! I haven’t had the hysterectomy yet. Got the news Friday morning but..." + (show)
@tg24

Thanks for your response! I haven’t had the hysterectomy yet. Got the news Friday morning but haven’t spoken with oncology. I want this to happen asap but want to know what questions to ask. I understand from my ob/gyn that it will most likely be laparoscopic hysterectomy and they will check lymph nodes at that time. She said stage 1 adenocarcinoma which i believe is the slow growing type.?

Jump to this post

@tg24 Did your doctor say FIGO Stage 1? That means that the cells from the biopsy are not organized yet. Adenocarcinoma is the most common and the least aggressive of endometrial cancers. The cancer will be staged after the hysterectomy and pathology examines the specimen. The stage will help your oncologist to determine what if any treatment is recommended after the surgery.

Here is more information on endometrial cancer that explains FIGO Stage and Staging:

What is Endometrial Cancer? (American Cancer Society):

-- https://www.cancer.org/cancer/types/endometrial-cancer/about/what-is-endometrial-cancer.html

The above website will also help you to formulate questions to ask your doctor. Please write your questions down as this will help you to remember what to ask. If you need help with questions will you come back and ask us?

REPLY
jomamapb | @jomamapb | Apr 2 11:51am
In reply to @tg24 "Thanks for your response! I haven’t had the hysterectomy yet. Got the news Friday morning but..." + (show)
@tg24

Thanks for your response! I haven’t had the hysterectomy yet. Got the news Friday morning but haven’t spoken with oncology. I want this to happen asap but want to know what questions to ask. I understand from my ob/gyn that it will most likely be laparoscopic hysterectomy and they will check lymph nodes at that time. She said stage 1 adenocarcinoma which i believe is the slow growing type.?

Jump to this post

I had endometrial cancer diagnosed after having a biopsy last May 23. I saw a gynecological oncology surgeon that did a complete robotic hysterectomy with sentinel node biopsies that came back negative. I have had two exams since by him and he is pretty confident it won't come back. He did not recommend any other intervention. I am in Colorado. Everything was done at Rose Medical in Denver.

REPLY
2 replies
gisellef | @gisellef | Apr 3 8:24am
In reply to @jomamapb "I had endometrial cancer diagnosed after having a biopsy last May 23. I saw a gynecological..." + (show)
@jomamapb

I had endometrial cancer diagnosed after having a biopsy last May 23. I saw a gynecological oncology surgeon that did a complete robotic hysterectomy with sentinel node biopsies that came back negative. I have had two exams since by him and he is pretty confident it won't come back. He did not recommend any other intervention. I am in Colorado. Everything was done at Rose Medical in Denver.

Jump to this post

Hi. Very much hoping you won’t have a reoccurrence. What kind of regular follow up are you having? Best to be aware of anything that might be off and have it checked out. Take care and best of luck.

REPLY
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Apr 3 10:32am
In reply to @jomamapb "I had endometrial cancer diagnosed after having a biopsy last May 23. I saw a gynecological..." + (show)
@jomamapb

I had endometrial cancer diagnosed after having a biopsy last May 23. I saw a gynecological oncology surgeon that did a complete robotic hysterectomy with sentinel node biopsies that came back negative. I have had two exams since by him and he is pretty confident it won't come back. He did not recommend any other intervention. I am in Colorado. Everything was done at Rose Medical in Denver.

Jump to this post

@jomamapb May I ask about your exams post-hysterectomy? Do these include pelvic exams with a speculum with a light into the vagina so he can get a good luck at your vagina and vaginal cuff? I ask this because I have learned here from other members that some doctors do not do this. My nurse practitioner at Mayo Clinic does a pelvic exam including a vaginal exam with speculum. That is how she found a recurrence I experienced two years after my hysterectomy. I had no symptoms at the time so I'm thankful that she is so thorough.

I hope that you will have no recurrence and that your exams continue to give you the all clear. When is your next exam?

REPLY
tcy941 | @tcy941 | Apr 3 8:14pm

I was just diagnosed with this and right now I am more worried about what happens after surgery than the surgery. My prayers are with you through this

REPLY
pat2628 | @pat2628 | Apr 5 1:42pm

I have been diagnosed with cancer tumors returning after having 8 rounds of chemo and HIPEc surgery. It has been 15 months since last chemo. My cancer was peritoneal carsanomatosis so I am fortunate for this time. I was wondering if anyone else has been diagnosed with this and what has been their treatment. Has anyone had proton radiation. Thank you

REPLY
2 replies
val64 | @val64 | Apr 5 2:35pm
In reply to @pat2628 "I have been diagnosed with cancer tumors returning after having 8 rounds of chemo and HIPEc..." + (show)
@pat2628

I have been diagnosed with cancer tumors returning after having 8 rounds of chemo and HIPEc surgery. It has been 15 months since last chemo. My cancer was peritoneal carsanomatosis so I am fortunate for this time. I was wondering if anyone else has been diagnosed with this and what has been their treatment. Has anyone had proton radiation. Thank you

Jump to this post

Have they offered you proton radiation? Where are you being treated?

REPLY
1 reply
pat2628 | @pat2628 | Apr 5 4:40pm
In reply to @val64 "Have they offered you proton radiation? Where are you being treated?" + (show)
@val64

Have they offered you proton radiation? Where are you being treated?

Jump to this post

I am being treated at Fl Mayo at present time. And I have only been reading about Proton radiation. Mayo has suggested several options. Waiting for next tests to make some decisions

REPLY
2 replies
val64 | @val64 | Apr 5 6:26pm
In reply to @pat2628 "I am being treated at Fl Mayo at present time. And I have only been reading..." + (show)
@pat2628

I am being treated at Fl Mayo at present time. And I have only been reading about Proton radiation. Mayo has suggested several options. Waiting for next tests to make some decisions

Jump to this post

Best of luck. I'd be interested to hear what you're going to do, if you want to share.

REPLY
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Apr 5 6:59pm
In reply to @pat2628 "I am being treated at Fl Mayo at present time. And I have only been reading..." + (show)
@pat2628

I am being treated at Fl Mayo at present time. And I have only been reading about Proton radiation. Mayo has suggested several options. Waiting for next tests to make some decisions

Jump to this post

@pat2628 I'm sending you my heartfelt wishes as you go through this process. When will the tests be happening? I hope you will come back and share with us and I'm quite certain that you will receive support from us but your information will help to support others. I'm so glad you are here.

REPLY
View MoreView Less
Please sign in or register to post a reply.