Pudendal Nerve Entrapment/Neuropathy/Damage

Hello I think I have pudendal neuralgia. I was at Mayo clinic in the hospital for 11 days dealing with colorectal and liver surgery. I was in a very hard bed with the foam mattresses. I kept telling them my back was hurting. They gave me muscle relaxant. 5 or 6 days later I could feel the bed affecting my ability to sit and I worried this wasn't good. By the 5-6 day the gynecologist came bcs I had a UTI. I told them my vagina area was all numb and towards buttocks. And mentioned it to the nurse. Nothing was done. Then 2 days before I'm leaving a nurse not assigned to me that I saw passing in the hall/ had helped me before said to ne you'll sleep better now. I said I don't think so because the bed is so uncomfortable. She said I can fix that and put a machine on the bed that puffed up the mattress. They stuck a pillow under it because it was rattling into the bed. 2 days before i leave and this was a problem 5 days or less into my hospital stay. I was upset because it's like why wasn't this provided earlier. Or put in a different bed because I saw some rooms with real mattresses. The doctor who was in training and would come see me just gave me the muscle relaxant. Anyways I hate that I'm now dealing with this horrid pain. I live in a state where it's difficult to get care. Nobody knows anything except basic stuff. The cancer surgery isn't bothering me much it's this horrible pain in vag/buttocks numbness/pain in my side. I was smushed on my side in that hospital bed and now have excruciating pain on my right side under my ribcage cage and down my side. That is horrid as well. And it's not like its going away any time soon because it's been almost 4 weeks. Thanks Mayo Clinic for making me worse off than when i came in. I can't find anyone to deal with to help me here in HI the cesspool of healthcare. Plus, I'm put of leave from work. Now I have to go out and find someone to help me. An added bonus/more time off work when I'm in LWOP to my chemo treatment. I can't even get into a urogynecologist. Everything is delayed bcs it requires referrals so you have to wait a month to get into see one doctor who then gives you a referral but nothing stating urgency so you have to wait another 3 months for them. I don't like what went on in the hospital. Mayo clinic has me in more worse shape tgen when I went in. Surgery I guess successful but this other stuff. I don't think it should have happened. And since ce I live out of state they don't help you. Your left to deal with stuff on your own in place where healthcare system is s$%@!!!

Experienced the same ailments, but from a different medical center also recently discovered that the antibiotic: FDA updates warnings for fluoroquinolone antibiotics, which I have been perscribed in a couple of different forms may cause the same conditions you described. I have just notified the Doctor who perscribed the medication of what the FDA has to say about the severe side affects from taking that antibiotic. I just hope the possible nerve and other tissue damage are not permanent.

Hello I think I have pudendal neuralgia. I was at Mayo clinic in the hospital for 11 days dealing with colorectal and liver surgery. I was in a very hard bed with the foam mattresses. I kept telling them my back was hurting. They gave me muscle relaxant. 5 or 6 days later I could feel the bed affecting my ability to sit and I worried this wasn't good. By the 5-6 day the gynecologist came bcs I had a UTI. I told them my vagina area was all numb and towards buttocks. And mentioned it to the nurse. Nothing was done. Then 2 days before I'm leaving a nurse not assigned to me that I saw passing in the hall/ had helped me before said to ne you'll sleep better now. I said I don't think so because the bed is so uncomfortable. She said I can fix that and put a machine on the bed that puffed up the mattress. They stuck a pillow under it because it was rattling into the bed. 2 days before i leave and this was a problem 5 days or less into my hospital stay. I was upset because it's like why wasn't this provided earlier. Or put in a different bed because I saw some rooms with real mattresses. The doctor who was in training and would come see me just gave me the muscle relaxant. Anyways I hate that I'm now dealing with this horrid pain. I live in a state where it's difficult to get care. Nobody knows anything except basic stuff. The cancer surgery isn't bothering me much it's this horrible pain in vag/buttocks numbness/pain in my side. I was smushed on my side in that hospital bed and now have excruciating pain on my right side under my ribcage cage and down my side. That is horrid as well. And it's not like its going away any time soon because it's been almost 4 weeks. Thanks Mayo Clinic for making me worse off than when i came in. I can't find anyone to deal with to help me here in HI the cesspool of healthcare. Plus, I'm put of leave from work. Now I have to go out and find someone to help me. An added bonus/more time off work when I'm in LWOP to my chemo treatment. I can't even get into a urogynecologist. Everything is delayed bcs it requires referrals so you have to wait a month to get into see one doctor who then gives you a referral but nothing stating urgency so you have to wait another 3 months for them. I don't like what went on in the hospital. Mayo clinic has me in more worse shape tgen when I went in. Surgery I guess successful but this other stuff. I don't think it should have happened. And since ce I live out of state they don't help you. Your left to deal with stuff on your own in place where healthcare system is s$%@!!!

So sorry to hear about your horrible experience with the bed. I had something similar when I was transferred to a rehab center that had only one kind of mattress. It didn’t feel like it was blown up at all, and I felt like I was lying on the metal infrastructure of the bed. I had just had a two level fusion in my lumbar spine, and I was really concerned it might end up doing some damage. When I couldn’t get any help, even a change in mattress, I signed myself out AMA because I had a new bed at home and lived around the corner from the facility. It was a horrible experience but at least it didn’t leave me with any sequelae.

@jsindc, I'm sorry to hear that you are living with such pain and having to take additional time off work because of it.
I encourage you to share your story with the Office of Patient Experience. I'm not sure if they can help, but they should know about the poor bed.
Mayo Clinic Office of Patient Experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu

I had this monster for 14 years. What worked finally was an anti-seizure medicine for an unrelated health problem. Topamax it was. My pelvic doc mentioned a year later that she had heard of this. Makes sense - a spasm. Try this first, please. Ask your doctor.