Has anyone had IVIG Infusions for Neuropathy?

Does nothing for my neuropathy

I have CIDP and small fiber Neuropathy and had 3 months of 5 days of Ivig and now get 2 days per month. The infusions helped the small fiber issues the quickest. It seems to take longer to heal the CIDP damage but l feel so much better already it is nice.

Welcome @marquis113, You mentioned being on the IVIG for 10 years but it's for treating your low IgG and infections. Do you mind sharing any treatments you have tried for your neuropathy symptoms?

After being diagnosed with CIDP my doctor suggested I try IVIG. I have the infusions every three weeks. They seemed to be keeping the symptoms from getting worse for about six months. But for the last two months my balance seems to have improved slightly. I’m hopeful that the improvement will continue to slowly improve.

I also have CIDP and neuropathy. I’m on regular IVIG infusions and know it helps my muscle weakness but I don’t know about the neuropathy. I think it would depend on the cause of the neuropathy if that’s been determined. I can barely walk with a walker and would be in a wheelchair without IVIG.

I am headed for my 5th month of ivig treatments. Balance is better, muscles relaxed, small skin nerve repair nerve seems quicker then large CIDP nerves but overall l feel much better. But l was only having minimal limited mobility issues it sounds like compared to you but l was starting to fall way to much, so this is great. Hope it keeps up.

I have chronic demyelinating peripheral neuropathy and am in Stage 4/5. I was up to pain level of 9.5 and my neurologist suggested we try IVIG. That took the pain level down to average of 7. We both acknowledged that it 'might' help with the disease itself, but determining that would be difficult. Three years ago, I had my first (superficial) thrombosis and we decided to pause the IVIG. Six months later, we knew the IVIG had been helpful because the disease advanced more quickly. Back to IVIG once a month for two days. But the REALLY good news was that I received a pair of C Braces. No more being confined to wheelchair. Going to be a long two months in physical therapy to enable me to walk smoothly, but being safely mobile is great. Ottobock tech rep says I can get back to cycling and even play golf.
Ottobock -- https://www.ottobock.com › c-brace › trial. The VA covers the cost and Medicare covers most of the cost.

I take gabapentin twice daily which helps some for my pain due to 2 failed back surgeries. I don't know if it helps for my neuropathy. I take aspercreme applied to my ankles for the burning pain and it does help. Unfortunately I have over 40 allergies to medications so I am limited to what I am able to take. Have an appt with a rheumatologist and neurologist tomorrow. Will see if they have any better solutions. Current neurologist is no help.

I have over 50 drug allergies and can’t take gabapentin or bacoflen by mouth. I am on a special compound crème my orthopedic surgeon prescribed for me.
Prescription
Pain cream
2% Bacflofen
6% gabapentin
10% ketamine HCL
2% cyclobenzaprine
10% Diclofenac Sodium
2.5% tetracaine HCL
25% propylene
10% lipoderm

Hope it helps my son or husband rubs it into my feet.