← Return to Cold feet due to neuropathy - need help

Discussion

Cold feet due to neuropathy - need help

Neuropathy | Last Active: Apr 28 3:43pm | Replies (200)

Comment receiving replies
@artscaping

Hang on you two.....@ebero and @smiddy73.....I want to try out for your team. Heaven knows I qualify. It's been 11 years since I was diagnosed with SFN (small fiber neuropathy. My feet are also cold almost all the time. When my life partner feels them, he says they are warm to him. At first, I thought he was teasing and then my MFR therapist told me the same thing. She works on my feet twice a week to keep the numbness under control in case I have to drive. She also notices when my toes are purple. Do yours change color? I just checked and the right one is very purple and colder than my left foot.

I don't play bridge but I do play mahjongg. Since I also have MCI (mild cognitive impairment). I could never learn bridge. My mahjongg partners very kindly help me. So sometimes I just give up and let them win as a reward.

At this point in my life, I am focusing on "Quality of life" choices meaning that I will work hard to gain some tolerance for these symptoms. However, I have a wonderful partnership with my PCP who I met right after my SFN diagnosis. We are good examples of shared decision-making. Just this week she reviewed my medications and realized that my urinary incontinence medication was not a generic and the price was elevating. So she did the research and found a substitute covered by my insurance. I'll take that kind of interest and commitment any day.

May you both have peace and ease in your lives.
Chris

Jump to this post


Replies to "Hang on you two.....@ebero and @smiddy73.....I want to try out for your team. Heaven knows I..."

Yes, Chris, I have had purple toes for years.....never thought it was a problem! And, I have had cold feet, dry eyes, dry skin and dry mouth for years. Again, it didn't occur to me that there was a problem until I was too fatigued to work and had to retire. Now I've learned that all those seemingly random little elements of my life have a common cause. Life is fun of surprises, that's for sure! Sounds like you have a good team on your side, I'm glad. Take care,
ebero