Epstein Barr Nuclear AG AB IGG result of over 600

Posted by lsh @lsh, May 3, 2020

Hello, I am searching for information and also input because of my hideously high lab results for EBNA Nuclear AB IGG. My result was given as over 600. The range is less than 18 is negative. Over 22 is positive. To restate, my lab result is over 600.

I am 52. I did have mono at age 11. For at least four years I have complained on numerous times to my PCP of fatigue. We suspected thyroid but that has been treated and I still have suffered from bouts of fatigue, feeling like I was coming down with a bug, dizziness, etc for 3 or 4 days out of just about every month for the last eighteen months. I finally saw a naturopath who tested me for EBV.

I love my Naturopath, but I am wondering if I should be seeing a specialist because of this high lab result.
I am on a treatment plan of antiviral supplements, and immune supporting vitamins and supplements which she said will probably need to be taken for at least three months.

Has anyone else had numbers this high? I am having trouble finding much information on reactivated EBV.

Thank you!
Lisa

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

@loribmt

Welcome to Connect, @luv2lrn! We’re happy you found us too! It helps to know you’re not alone when you’re dealing with a condition that takes so much out of you!
You live up to your @name with “love to learn”. ☺️ It was that curiosity and tenacity that finally helped you find diagnosis.
EBV is an underrated virus. Something like 80+ % of the world’s population has had it and most often it’s a one-time event and becomes latent in the system. But for some people, the aftermath lingers or it can reactivate to stir up a heap of trouble. It’s finally being recognized as an underlying cause for some people with long term issues like fibromyalgia and other autoimmune conditions. It appears Covid produces the same type of issues in many people with longterm Covid.

You found a real treasure in the Integrative Healing Wellness, Inc. They took you seriously and went the extra mile to chase down your symptoms. That’s a big step towards finding a path to recovery!

Have your clinicians given you a treatment plan?

Jump to this post

Hi Lori

I received more blood results. If these aren’t allowed I’m sorry. Just looking for feedback and hopefully others will share their experience.

I’m wondering if I’m active now or if these numbers represent more of a chronic (lifelong thing).

Blessings,
Luv2lrn

REPLY
@luv2lrn

Hi Lori

I received more blood results. If these aren’t allowed I’m sorry. Just looking for feedback and hopefully others will share their experience.

I’m wondering if I’m active now or if these numbers represent more of a chronic (lifelong thing).

Blessings,
Luv2lrn

Jump to this post

Hi @luv2lrn. It’s fine to post your results here as long as there’s no personal information attached. Just know that members in Connect can’t read or interpret lab results. We can use our experiences to help out though. ☺️

From my understanding the early antigen Ab, Ig for EBV shows up when you’re still in the acute/active stage of the virus. After about 6 months that number should drop to undetectable. However, according to this article in Health Matters, (https://healthmatters.io/understand-blood-test-results/ebv-early-antigen-ab-igg), about 20% of those infected will continue to have detectable quantities for several years after the EBV infection has resolved.

The best person to check with would be your doctor. I’m happy to see you’re getting some followups from you new integrative wellness physician! Have you had a consult yet about the new numbers?

REPLY
@loribmt

Hi @luv2lrn. It’s fine to post your results here as long as there’s no personal information attached. Just know that members in Connect can’t read or interpret lab results. We can use our experiences to help out though. ☺️

From my understanding the early antigen Ab, Ig for EBV shows up when you’re still in the acute/active stage of the virus. After about 6 months that number should drop to undetectable. However, according to this article in Health Matters, (https://healthmatters.io/understand-blood-test-results/ebv-early-antigen-ab-igg), about 20% of those infected will continue to have detectable quantities for several years after the EBV infection has resolved.

The best person to check with would be your doctor. I’m happy to see you’re getting some followups from you new integrative wellness physician! Have you had a consult yet about the new numbers?

Jump to this post

Hi Lori

No not yet. I have a virtual call set up for this coming week. I’ve been reading about my results and while some of the info is clear and I understand there is some info that is about as clear as mud lol. So I like to “bounce” things off of others. I’m going to read the article you sent. EBV is a trip! Lol. On one hand I have “FINALLY I HAVE A DIAGNOSIS!” Then on the other it’s “What the heck is this?” Thank you for listening.

REPLY

Hello my numbers were over 600! Im 45 yo female. I am finding out if you have a mutated gene like MTHFR or if you have EDS which I am both youre more likely to suffer from mono. Its common to have mono but from what I hear only 10-15% of people suffer major long chromnic symptoms. I think Covid and hormone changes can trigger it to wake up also. My doctor is treating me with anti viral antibiotics and many other supplements. He is calling this form of mono "viral arthritis" Look into that maybe. I was never diagnosed with mono but not sure if I ever got tested but I was told I had viral arthritis once when I was 25! Hope this helps. Also consider looking into mast cell syndrome and lyme; there are connections.

REPLY

I'm 71 and just diagnosed. My new integrated doctor decided to order a test and my numbers for IgG was over 600. I am shocked to say the least. I've been fighting fatigue for many years... how are others dealing with this and have any suggestions on how to deal with this?

REPLY
@lisa191

Hello, I just found this post and am having similar issues. Also the same age as original poster. I am seeking advice, because I was in grad school 8 years ago when the school mandated a MMR booster and I got sick about 6 weeks later with a mono-like reaction which unfortunately has never gone away. I have been to PCP, rheum, and latest endocrinology. Get monitored every 3 months. So my latest results have the exact same EB >600; as an aside prior to the MMR my rubeola abs were over 300 which was also the ceiling for the test, normal value was 30 or under. Told me to just get it anyway.

Additionally, I have positive ANA, 'weak positive' sjogrens/lupus/RA antibodies and some fairly significant nucleolar patterns, plus the >300 measles and >600 EB. My main issues are joint pain, fatigue and muscle weakness. I need to sleep over 12 hours per day and can barely hold down a part time job which feels like a full time job. At first I was hoping I'd get better but after 8 years of basically feeling extremely tired I'm very discouraged. I hope the lisa who posted in 2020 and all the respondents are doing well. best wishes to all.

Lisa

Jump to this post

I know this is from a few years ago... but I hope you are doing well. I just got diagnosed with EBV, levels over 600 and I have had it most likely for years... last time I had strep/mono, was 8 years ago.

My doctor has treated another person I know with a similar diagnosis and they seemed to recover well. I am taking a supplement to heal my liver, because that is where the virus is, so if you have not been given information on that it might be worth looking into.

REPLY
@eblumer

I know this is from a few years ago... but I hope you are doing well. I just got diagnosed with EBV, levels over 600 and I have had it most likely for years... last time I had strep/mono, was 8 years ago.

My doctor has treated another person I know with a similar diagnosis and they seemed to recover well. I am taking a supplement to heal my liver, because that is where the virus is, so if you have not been given information on that it might be worth looking into.

Jump to this post

What supplement for your liver are you taking and how often

REPLY
@lisa191

Thank you for your reply! I'm due to visit Rheum next week and will try to research beforehand. I'm very sorry you and your wife have been ill with this condition for so long. I wonder if it is possible for a US citizen to participate in medical research abroad because I'm really very frustrated with my lack of results and that this has dragged on for so long already. It seems as though the majority of doctors I have spoken to act as though this has been happening to me all along and there has been no change of quality of life etc, and it makes me feel basically crazy. So I thank you again for validating my concerns.

Jump to this post

Hi Lisa, you are not crazy dear. EBV is a very sneaky virus that ebbs and flows at will, leading to a very frustrating life at times! I have had this illness for many years and my EBV Nuclear Antigen IgG has always read over 600. All other titers also read as ‘high’ on every test. I don’t know if my story will help you or not but I will post it below. I pray you will get something from the links I have provided. This is a post I made in another thread, and my whole purpose in posting is to give HOPE.

There are several Stages of EBV starting with the initial infection, to reactivated EBV and on to Chronic EBV. The very best you can do for yourself is to #1 – educate yourself on everything related, and #2 find a Functional Dr. who will test you regularly and help you manage it. Ask for a complete EBV panel with all 4 of the Nuclear Antigens, (VCA-IgG, VCA-IgM, EARLY AG, EBNA). This will give you the clearest picture of where you are with EBV. Dr. Been has a clear explanation of this serology testing and what the results mean at this link.
https://members.drbeen.com/library/epstein-barr-virus-ebv-serology/SJLy09WZF
Most GP's do not know how to advise you on EBV infection, other than to tell you to go home and rest.

I don't know if you are familiar with Dr. Been's lectures or not, but he explains a lot of details, and studies in his lectures in layman's terms. You might start with listening to some of his videos online to understand why you are feeling like you do, and just how sneaky this virus can be. Here is a link to get you started and this video explains how the Covid Infection has caused a huge amount of Reactivated EBV in the population referencing several studies worldwide. If you have the time he has (4) different videos on the subject of EBV.
https://members.drbeen.com/library/epstein-barr-virus-prevalence-in-long-covid/Hy3asLn-F
He is also featured in the forum of FLCCC.com at this link.
https://covid19criticalcare.com/courses/long-story-short-with-dr-been/lessons/long-story-short-4/
FLCCC.com is also a treasure chest of good research and solutions to help fight Long Covid and other illnesses developed from the infection and the shot.

As for my experience with the illness, it is extensive and long. I will share one of my previous post, in hopes that it might help you in your search for good health again. I have posted in the past in the "Chronic Reactivated EBV" thread of Mayo Clinic CHAT, as I have suffered with it for almost 40 years! In my 30’s I came down with Guillian Barre’ Syndrome which they suspected came from EBV. Within a couple of years after recovering from that paralysis I was diagnosed with Reactivated EBV which began my long journey with Holistic medicine.

My GP or my Infectious Disease specialist at that time did not know how to help me. My Infectious Disease Dr. did offer to send me back to Duke University Hospital, but I had already been there for months with the GBS and unfortunately, I don’t think back then in the 1980’s anyone knew what to do about it. I was told to go home and rest!

I found a book by a Holistic Dr. called ‘Chronic Fatigue Syndrome/aka Epstein Barre Virus’ by Dr Jesse Stoff. It was a life saver and had very specific directions and protocols for supplementing and diet. I followed it religiously and within 3 months was feeling recovered to where I could be up "ALL" day and not a partial day. As long as I maintained the discipline of watching my diet and supplements, I knew would help, I was able to maintain my improvement. Then as I aged into my 50’s I let my guard down. I stopped the supplements and paid little attention to my health. EBV came back with a vengeance, and I have struggled with it ever since. I am now 70! @lovelovelove you are very correct! There are alternatives out there that will help but if you suffer from Reactivated EBV in a Chronic form, you must tackle this from ALL fronts and be diligent with your approach. Do not put yourself on the back burner of importance in relation to your health, stress level, diet, rest and relationships. It all is Important!

Some of the medications and supplements I am on are Valtrex, Low Dose Naltrexone, Lauricidin/monolaurin, Vitamin C, D3, K2, Zinc, Quercetin, B complex, Turmeric, melatonin, magnesium, probiotics/IBS Clear (yes the gut issues are real with EBV), Omega 3, CoQ10, and Ivermectin if I am in the middle of a cold or flu. I do not take any vaccines and was told by Duke Drs. NOT to EVER take any, ever again, so it doesn’t surprise me that the vaccine from COVID has caused issues with reactivating this virus. I have found in the last 6 months while being titrated up with LDN (Low Dose Naltrexone) that I have felt better than I have in a long time, even though my numbers are higher than they’ve ever been, and I show I am in an active case of mono with every test. With that bit of information, I feel like it is really helping the way I feel even though my numbers do not reflect it. They have dropped ever so slightly in the last 4 months but are nowhere near normal levels! But I had a Dr. tell me once that this is not a sprint, it is a marathon and that it would take time, so I pray that with each recheck of my titers there will be improvement. Sometimes there is slight improvement and sometimes it is worse, especially if I have had an infection, cold, flu, covid, anything like that will cause a flare of the EBV. Which is why we should never let our guard down if you are suffering with a Chronic EBV illness.

Don’t get discouraged, just take extremely good care of YOU! You are the only one who can. REST when you need it, it's important! Eat as healthy as is possible, whole foods, stay away from junk food. Supplement your diet with what will support your immune system. Reduce your stress if possible. At least when the Drs. don’t have the answers you can research and go the holistic approach to help some. If you can find a Functional Dr. to assist you in this journey, you’ll be way ahead in your recovery. Interview your Drs. ask them if they have had any experience with treating EBV. Recovery is possible, you can put this beast back in a latent state, so there is HOPE!! Keep looking up!! Prayers for you all! God Bless.

REPLY

Hi everyone. I have a bit of a complicated case and wanted to see if I can get some opinions. I was diagnosed with Lyme disease, Babesia, and Bartonella a few years back. I have been seeing a new LLMD for the last 6 months and we also found I have EBV. While the results of the other tests are showing to be getting better, the result for EBV EARLY ANTIGEN D AB (IGG) has been consistently over 150 even though I’m on antibiotics. What could this mean and can I do anything else to lower it? I have an appointment next week and will also see what the next plan of action is.

REPLY
Please sign in or register to post a reply.