Immunotherapy: How many lung cancer patients are 5 yrs post diagnosis?

Posted by stormmayo1 @stormmayo1, Feb 6 12:16pm

How many lung cancer patients here have lived beyond 5 years with Stage II, III, or IV non small cell lung cancer??

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@scared2

I'm really scared of my husband having Immunotherapy. If it can damage other parts of his body. He has kidney disease and currently on oxygen. Immunotherapy could kill him. I think chemo would be better. He has stage 4 lung cancer finished 6 weeks of radiation. Waiting for PT scan to see if it got it all. And to see what his oncologist will suggest if it's negative.
Scared2

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@scared2, Immunotherapy does have the potential for severe side effects, but it also helps many people live longer healthy lives. Your husband's oncologist should know which treatments are a good fit for his situation.
I do know that immunotherapy is sometimes used to treat kidney cancer. But you are correct, there is some risk to the kidneys. I'll be interested to hear the results of his PET and the proposed next steps.

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I've added links to other discussions below regarding immunotherapy and side effects. Some members have mentioned significant colitis and pancreatitis. I’m sure your doctors will be watching closely for any issues but be sure to speak up if/when you experience anything that seems out of the ordinary. Many people can benefit from immunotherapy.
https://connect.mayoclinic.org/discussion/immunotherapy-for-lung-cancer/
https://connect.mayoclinic.org/discussion/immunotherapy-and-chemo/

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It has been 13 years since my husband was diagnosed with Stage 4 lung cancer. However, he received Keytruda treatments and almost died. He got Pancreatitis which is a known side effect of Keytruda. It was because of our very good primary doctor and prayers, that he got to the right specialist and after a long battle, my husband was fine. However, he says he will never have another Keytruda treatment. The doctors didn't like that decision but it is my husband's body and money! (Keytruda cost $25,000 per infusion! It's probably more now!) He received two infusions per month. That was 6 years ago. My husband is doing great! He's 82 and leaf blows the yard, trims trees, carries heavy garbage bags to the dumpster, drives the car and fixes breakfast, lunch and dinner! We prayed a lot and our prayers were answered.
I would suggest doing as much research on Keytruda as you can before you make a decision. Don't just take what happened to my husband as the only result. Everyone is different when it comes to medication. Once you have a lot of information, then you can decide what is best for you. Pray about it and God will direct you.
I'll remember you in my prayers.
PML

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@maddie06

I’m coming up to my 5th year on March 6th when I was diagnosed with SCC. Still receiving immunotherapy once a month.

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That's an encouraging message - 5 years! Which immunotherapy do you take? Are the side effects manageable? How are you doing?

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@lls8000

Hi @3122, I hope your husband is tolerating the immunotherapy, and that it will be effective for him with minimal side effects. Here's a link to another discussion specific to mesothelioma and immunotherapy:
https://connect.mayoclinic.org/discussion/any-information-on-biphasic-mesothelioma-response-to-immunotherapy/
Was he diagnosed recently? Is the immunotherapy his first treatment?

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My hubby has had 1st treatment and 2nd one scheduled for 26th Febuary. No side affects as yet. 3rd treatment in March then a scan to see if there is any change. At best we are hoping that cancer hasn't grown or spread.

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Hi People, I am new to the group, am from Bangalore, India and recently got robotic done for Stage 2 lung Cancer. Chemo to begin next month. Anyone with the same stage.

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@sanyogita15

Hi People, I am new to the group, am from Bangalore, India and recently got robotic done for Stage 2 lung Cancer. Chemo to begin next month. Anyone with the same stage.

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Hello Sanyogita15,
There are a number of us on this thread who have been diagnosed as stage 2, had surgery, and then chemo. Have they completed genetic testing of your tumor and discussed the whole chemo and subsequent treatment plan?

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@sglaza

Hello Sanyogita15,
There are a number of us on this thread who have been diagnosed as stage 2, had surgery, and then chemo. Have they completed genetic testing of your tumor and discussed the whole chemo and subsequent treatment plan?

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They have removed 2 lobes n sent for lung panel testing. Still 1 month is not over of my surgery n i have told that chemo would start only after 1 month of surgery. They are awaiting NGS results. My buopay had shown stage 1 A but after the removed lobes were tested they told me it was stage 2B

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@sanyogita15

They have removed 2 lobes n sent for lung panel testing. Still 1 month is not over of my surgery n i have told that chemo would start only after 1 month of surgery. They are awaiting NGS results. My buopay had shown stage 1 A but after the removed lobes were tested they told me it was stage 2B

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Hi @sanyogita15, Welcome to Mayo Connect! I’m sure you have had your share of challenges in the past few months; processing the diagnosis and recovering from surgery. It’s good to hear that they sent your biopsy samples for further testing. The results can have a significant impact on treatment options.
Are you recovering from the surgery as expected? Do you have help and support of family or friends?

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Thank you Lisa. Ya my husband n family are there. The surgery went well. In the hospital it was very good. Almost painless. But once i reached home i got a bit of cough . While talking i get. The doc did a xray but was okay. A bit of heaviness on the right side is there ...i am just 45 n i never had any addiction plus i have been a sports person also. Dont understand how i got it. My moms mom had cancer of colon so may be genetic. I want to find peers so am here. The dic has suggested 4 cycles of chemo n then if lung panel report is positive he said pills daily for 3 years...details they will tell later..i had taken 1 week leave n tgen started working from home. But fully healed i dont feel yet after 2 weeks too. I just wanted to know if you have a watsapp group. If yes i f you can add me to it.

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