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New to Pegasys for ET - advice please!

Blood Cancers & Disorders | Last Active: Feb 5 8:49pm | Replies (20)

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@healedbytheblood0119

Thanks for your comment. So Pegasus is about $1200 before insurance? Do they accept all insurances? I have BCross Advantage.

I’ll have to call BCross to ask. And my pharmacy.

I’m glad your Hema is doing what he’s supposed to.
I read bone marrow test are usually routine but mine only did genetic blood test and saw JAK2 mutation.
Is that normal? I mean trust me from what I’ve heard of how painful and bad bone marrow tests are I def rather not if don’t have to.

Yeah for me I need to get an MPN on board.
Even if my Hema was good regular Hema Onc don’t specialize in our issue, attend monthly and yearly conferences on it, stay up to date with progress and new meds, or work with many ppl like us.
Seems best chance to do well is MPN. Good luck to you too!

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Replies to "Thanks for your comment. So Pegasus is about $1200 before insurance? Do they accept all insurances?..."

Bone marrow biopsy is helpful in assessing any fibrosis in the bone marrow, which indicates disease progress. (Remember, MPNs are bone marrow diseases at heart.) Provides a baseline against which future progress could be measured.

Some docs don't do BMBs because patients are afraid of them. I have had bee stings that were more painful than the BMB. It took about 10 minutes. They numb as they they go and dope you up with Xanax. However, A lot depends on how skilled the doc is.

Ask the doc's office if you can be put under and if your insurance covers that.