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Proton therapy close to outside of the esophagus discomfort

Posted by benz76 @benz76, Feb 4 9:55am

Could use some help! Anyone had or. is having proton therapy next to the esophagus? I just finished #15 series and oh my. Constant discomfort, hoarse, and difficultly finding anything to ease the discomfort. Any information on what you did or are doing will be greatly appreciated. I know soft foods but I'm looking at 15 more. treatments plus the healing time. I believe this would mean more intensity of discomfort. It feels like the worst elongated sore throat I've ever had. Thanks for any information you might offer.

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Mentor
Lisa, Volunteer Mentor | @lls8000 | Feb 5 1:19pm

Hi @benz76, That sounds so painful. I'm including a link to a different general lung radiation discussion in case you haven't seen that: https://connect.mayoclinic.org/discussion/radiation-treatment-on-lul/
One member (@vlpr) had radiation that impacted the esophagus and mentioned numbing medication. I'm not sure if something similar may be an option for you.
Also, from the esophageal cancer group: https://connect.mayoclinic.org/discussion/just-advised-that-my-79-year-old-dad-has-esophageal-cancer-a/
Don, @dsh33782, may have some suggestions.
Has your doctor given you any feedback on how to manage the side effects?

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Mentor
Don Higgins, Volunteer Mentor | @dsh33782 | Feb 5 4:15pm
In reply to @lls8000 "Hi @benz76, That sounds so painful. I'm including a link to a different general lung radiation..." + (show)
@lls8000

Hi @benz76, That sounds so painful. I'm including a link to a different general lung radiation discussion in case you haven't seen that: https://connect.mayoclinic.org/discussion/radiation-treatment-on-lul/
One member (@vlpr) had radiation that impacted the esophagus and mentioned numbing medication. I'm not sure if something similar may be an option for you.
Also, from the esophageal cancer group: https://connect.mayoclinic.org/discussion/just-advised-that-my-79-year-old-dad-has-esophageal-cancer-a/
Don, @dsh33782, may have some suggestions.
Has your doctor given you any feedback on how to manage the side effects?

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During radiation and chemo, the side affects included being tired all the time, caughing up flem, loss of appitite, and some diaherra. I got some medication for the diaherra, and the caughing slowed down as the treatment worked. I was on a feeding tube for weeks taking 6 ISOSOURCE canisters per day to get nurishment. I'd be happy to answer questions you may have about these side affects.
Don

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aprilradek | @aprilradek | Feb 8 2:30pm

I had a similar experience- Aloe Vera juice helped a little as did Melaleuca Honey. How about liquid Sucralfate? Have you tried that?
This too shall pass-
I know how hard and uncomfortable it is sorry-

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