Any positive stories about Benzo tapering? I need hope

Posted by sears @sears, Nov 9, 2019

Would love to hear some positive stories from people whom have tapered off benzos. Positive only please. Give me some hope. No horror stories! I need some encouragement!

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@grandmaj5

I have been on 3 mg a day of clonazepam for about 8+ years. I had to find a new Psychiatrist. It took so long to find one. I can get into a NP Psychiatry in May 2020. When I called her office, she told the receptionist that she wouldn't see me until I got off clonazepam. She gave me a tapering dose for 3 weeks. I feel that this tapering is for everyone. I tried the tapering and kept getting worse. I got so bad that my heart was going fast. I was unable to do anything. I could only go to bed. I feel like a Zombie. This is happening right now, so last night I started up clonazepam again (taking 1.5 mg daily) to get through the holidays. I believe that my tapering was incorrect. I have not met or talked to the NP Psychiatric. I am not sure that she knows how many years I have been on clonazepam. I get anxiety attacks, have anxiety, have PTSD, depression, and ADHD. I believe I should call her back, but because she said she can't see me in May until I am off clonazepam, I am afraid she will not give me a proper tapering schedule and not see me. I only have so many pills left, so I have to be careful. My primary care physician just gave me a prescription of clonazepam of 50, 1 mg pills. At this time, I am unable to function. I feel I am living a nightmare. I feel extremely irritated. I feel bad for my husband. I am trying to fake my way through these feelings. I read that clonazepam is worse to taper off than opioids. I believe that a pharmacist would know more about tapering. I really do not know what to do. I am worried that the NP Psychiatry will not understand me (which she should). I don't know if I should contact her office or my Internist first. The reason I am saying this is because I have never met or spoke with the NP. I cannot believe that some medical practitioners cannot properly taper clonazepam. I have been studying this on the internet and I believe it should take more than 3 weeks for me to discontinue. I have been wondering if practitioners have been fully trained in tapering clonazepam differently for each individual. There is no way I can do this in 3 weeks. I have never felt so awful. I wish they could experience this feeling for just a minute. I am having company for Thanksgiving and then a birthday party. I started out preparing; now I cannot do anything. I am very scared that this will not work out. I am actually very lost. I am also afraid of what my Internist and NP Psychiatry will tell me. I was thinking of asking a Pharmacist first to get an idea. Does anyone have suggestions? Thank you.

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There is a beautiful new world awaiting you! Start by tapering .25mg. I started Klonopin in 1986 at 1 ml. X 3
Everyday is a new awakening. I truly feel as if I have
been reborn. I want to stop and smell all the roses!
Today is February 1st. Spring is in the air and I want to
dance in the rain. I also enjoy reading Jesus Calling by
Sarah Young. It is a daily devotional and I focus on that
days message. Here comes the morning!

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@horowitz71

Glad to hear your story; Congrats & thanks for giving me hope and inspiration. I feel safe when using benzos, but I'm a different person when I don't take the med's and the person without the benzos is quite a different one. I'm in Parkinson's Disease group, and three of us were talking about our neurologists. When I told them who I was seeing, they turned and looked at each other, laughed, and then said "Vitamin K" for klonopin. One of the women then said, "no way was I going to take that junk." I wish I knew more about the junk med's before I began taking them more than twenty years ago.

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I am on benzos, can’t function without them. I need them for terrible and sleep. I am terribly scared of side effects .

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@skullbasecancer4

I am on benzos, can’t function without them. I need them for terrible and sleep. I am terribly scared of side effects .

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You know now. Benzos will turn on you and become
your worst nightmare. A journey of one thousand
miles begins with a single step.

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@skullbasecancer4

I am on benzos, can’t function without them. I need them for terrible and sleep. I am terribly scared of side effects .

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I’ve been on a benzo for 10 years and nothing negative came from using it. Without it, I’d have a horrible time with quality of life issues.
If a benzo is helping you , why quit or try to cut down?
My psychiatrist recommended them and I’ve nothing negative to complain about. Except one time I spent 2 months in a hospital and they had my older med list that they used because they lost the updated list I brought with me in the emergency room.

I was not on klonopin at the time so they wouldn’t give them to me. One adavan every 24 hours didn’t do it. I was fit to be tied and followed the med administrator for my adavan. (A useless benzo at a low dose.

I suffered for 2 months when I finally got discharged I went straight to the klonopin at home and within an hour I was myself again. Why should I suffer for up to a year just to cut my benzo out.

It’s been six months and I’m not doing excellent but much better. I get half of one in the morning and one milligram at 4:00 pm. Benzodiazepines aren’t killing me but helping keep me stable day by day. Benzodiazepine is not addictive . Getting off them is. Dancerintherain is it possible that your newfound happiness is from reading the Jesus book along with benzodiazepines?

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Thank you for your comment . Do you take other meds with Klonopin ?

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@dancerintherain

You know now. Benzos will turn on you and become
your worst nightmare. A journey of one thousand
miles begins with a single step.

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Absolutely this!!! Pay attention people. Your benzo, especially if taken daily, will stop working for you sooner or later. You’ll be thrown into withdrawal, the nightmare begins and you won’t wake up for a very, very long time. Please taper while you’re still in control of the situation.

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@skullbasecancer4

I am on benzos, can’t function without them. I need them for terrible and sleep. I am terribly scared of side effects .

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I'm glad to hear that you want to find a way to get out of benzos ... (or other drugs that can have negative side effects). But sometimes we use them because the positive trump the negative.

Going thru Clevelend Clinic (Mayo must have something similar) one can find one main reason
is ANXIETY and a few other ... and among the side effects that it can be (for some) Habit Forming.
But whatever the reason YOU are taking it for, have you not looked into your life choices where you might make a just a little healthier change to overcome the issue behind your benzo use?

In my 80 years I only have occasionally used standard pills like Aspirin. No tests, surgeries, few pains and even doctor visits are rare, my last one maybe ten years ago. I sleep soundly refreshingly 8 hrs, am physically active each day (actually every 2 hrs or so) try working thru my stresses with reflective thinking and remind myself that life is fragile but also full of simple pleasures to help us ALL have a on-balance a 'good life.' (Yes I'd three ups and downs, more down years tho in my life)

So, let's start with with general healthy life style; wholesome food, physically challenging and Enjoyable activities ... and doing our own CBT (I did mine when I'd an anxiety attack for one day) Let's hear your Next step.

My motto after years of research: More (simple) Pleasures equal Less Problems!

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@dancerintherain

You know now. Benzos will turn on you and become
your worst nightmare. A journey of one thousand
miles begins with a single step.

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I was on benzos for 25 years, I took them as prescribed for sleep. Two years ago my primary doctor retired I had no one to continue my medication for me. I went to see a physiatrist in hoping she would help me. I was told in the state I lived Drs were not able to prescribe them anymore. She put me on a taper for four to six weeks to get off of them. I was unaware of the terror and hell I was about to go through. For a month or so I thought I was fine, then one day I had the most terrifying experience I’ve never had before. I had panic attacks that lasted days then a seizure in the middle of the night. I never had a history of either of those. I went back to the doctor and was told it was impossible to have withdrawal symptoms because they were out of my body. It’s been two years now. Iam suffering every single day. This has left me with disabling symptoms not being able to function or to do the smallest daily tasks. I do believe our nervous system can heal, but it can take years for some of us. Much more research and awareness needs to be done. Whatever you do NEVER fast taper any type of physic drugs. Extremely dangerous. The Dr was so wrong putting me on a 6 week taper when it should of been 18 to 2 years. I was doing fine on them, never wanted to stop them. Once you are in protracted withdrawals there is nothing anyone can do to help. Get a good support system. People that have been or going through this. I don’t mean to scare anyone just being truthful. Please bring awareness about the dangers of benzodiazepines.

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@sears

Absolutely this!!! Pay attention people. Your benzo, especially if taken daily, will stop working for you sooner or later. You’ll be thrown into withdrawal, the nightmare begins and you won’t wake up for a very, very long time. Please taper while you’re still in control of the situation.

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I am scared ……. My husband has cancer and my anxiety is not good and I can’t sleep at all, unless I used Restoril . It lets me me sleep about 4 to 5 hours . I know I have been on it way too long . I also need klonopin to function . I am
so scared of taking it but need it .😢😢😢

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@skullbasecancer4

I am scared ……. My husband has cancer and my anxiety is not good and I can’t sleep at all, unless I used Restoril . It lets me me sleep about 4 to 5 hours . I know I have been on it way too long . I also need klonopin to function . I am
so scared of taking it but need it .😢😢😢

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I know you’re scared. I took Xanax daily for 25 years. I was never told by any of my doctors that eventually I would build up a tolerance and it would no longer work. It was a nightmare that I still have not fully woken up from after 4 years of this mess. Please try to get off the Klonopin before it turns on you. Do some research and you’ll see exactly what I’m talking about. Another thing to consider here is that doctors are becoming extremely hesitant to prescribe Benzos. Should your doctor die or retire will you have another doctor willing to prescribe? You have to bear in mind that the vast majority of doctors really do not understand the benzo withdrawal process and will in all likelihood have you taper the klonopin much too quickly leaving you in dire straits. Something you need to seriously think about. I hate to tell you this but unfortunately it’s true. Please refer to Dr. Josef Witt-Doerring’s videos on YouTube. He’s extremely knowledgeable and knows exactly what he’s talking about when it comes to these addictive drugs. Good luck and once again I’m very sorry for what you’re going through.

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