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My Experience on Evenity for Treating Osteoporosis
Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.
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Will you please ask about hrt including testosterone, too?
Sorry I cannot ask questions that don't pertain to me. I have limited time and a crucial decision to make.
HRT is not strong enough after Prolia. Maybe it would be good to do Reclast first and then HRT-? I had breast cancer so HRT is out for me and the doc knows that!
I had my first injection(s) 3 hours ago, and the injection sites are getting pretty tender. The nurse doing it must not have read the instructions on how to do it. I had to tell her to let the syringes sit at room temp for 30 minutes, and that it didn't have to be given only in the arm. I had her give both in the stomach. The site of the 1st started hurting almost straight away, now they are both sore. I hydrated well and took tylonol beforehand. Now, I'm just waiting to see what happens regarding further side-effects. Will update if any changes.
I hope she observed this part of the instructions.
" Stomach area (abdomen), except
for a two-inch (five centimetres)
area right around the navel."
She did so that correctly. I was watching closely.
I was told 30 days after your last Evenity shots.
You can wait a bit longer since you don’t get a rebound but not too long as you will begin to lose the gains you have made.
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1 ReactionI really appreciate all the input! My endocrinologist has recommended Evenity but i am reluctant because it is so new and because i have a family history of strokes. I wish i could become convinced that the benefits of osteoporosis meds (sometimes very small) outweigh the risks of side effects (sometimes horrible) but i just cant seem to get there.
May I ask your age? Sometimes I wonder if age is a significant factor in deciding if meds are the right path at any given stage of life
@sandrajhunt if you read the studies that caused the black box warning for Evenity, there was no difference in stroke risk between Evenity and placebo. There was a slight but apparently significant difference between Evenity and Fosamax, but it is possible (the study says) that that difference was because Fosamax is slightly protective.
I have a heart issue but didn't worry too much about Evenity in that regard.
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1 ReactionI am 77.