How does hearing loss change you?

Posted by joangela @joangela, May 11, 2019

For me, hearing loss has always been a part of my life. Those darn hearing tests in elementary school always put me in the category of hearing loss. Now, that I am much older, in my late 50s my hearing loss is profound. It is so bad, even my hearing family, has a real hard time adjusting to it.
How it has really changed me?
I was a small business owner, and a top notch sales person. I was a huge people person and an excellent communicator. It’s all gone.
A major change in my life.
How about you?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@fluoride

So others have mentioned, you should definitely try InnoCaption. It’s a free service paid for by the federal government if you have hearing loss. It makes a huge difference in your ability to use a phone. You don’t need to get a new number because you can set it to forward your incoming calls to your InnoCaption line. And it shows captions almost instantly as well as providing audio church can be speaker amplified or via hearing aid Bluetooth if you have that capability. The other thing you can do is download transcribe to your phone and hold it or place on a table near you. It offers speech to text translation and I find it incredibly helpful. No , it’s not the same as being able to hear but these 2 apps can definitely lower the stress and energy drain caused by hearing loss

Jump to this post

No one can understand severe hearing loss until they experience it. An example people ask if i will learn sign language. I don't know any deaf people!

REPLY
@arieswoman

I had InnoCaption but found out that in the apartment I live in I couldn't use it. We have a call box to enter the property and the buildings. It would not work with the call forwarding. So I had to get rid of it.

Jump to this post

Go to Google and ask: What is InnoCaption? Some helpful information will come up.

REPLY
@lynnehenry21

No one can understand severe hearing loss until they experience it. An example people ask if i will learn sign language. I don't know any deaf people!

Jump to this post

Suggesting we learn ASL (American Sign Language) is a statement often made by people. They think it's a cool solution. ASL is a wonderful tool for people who are culturally Deaf. For the large majority of people who have varying degrees of hearing loss it is not a solution. ASL is a language just like other language. In order to use or benefit from it, you have to associate with others who use it. That just isn't a reality for the 40+ million Americans who lose hearing after they acquire language. Who would we communicate with?

Most people with acquired hearing loss, regardless of the severity, want to remain in the hearing mainstream. That is why advancements in hearing technology are so important. That is also why people with hearing loss need to open their minds to learning all they can about how that technology works and how it might help them. We have a responsibility to advocate for better technology, the availability of that technology, and acceptance of the usage of it.

Unfortunately, age old stigmas about hearing loss often prevent people from getting and using the help that is available. Some of this wonderful technology shows. Some of it we have to expose our unique need by asking for it.

Don't hide your hearing loss. Learn about it. Talk about it. Get involved in advocacy and take every opportunity you have to educate other people about how to help you participate in life.

Do you know that 'communication access' is defined and mandated by the American's with Disabilities Act? Do you know that it does not have to be provided if people don't request it? It is not automatic like curb cuts. And, even when requested, venues often don't have it available. We who need this kind of access have to be the educators and advocates. Are you willing to do that?

REPLY
@julieo4

Suggesting we learn ASL (American Sign Language) is a statement often made by people. They think it's a cool solution. ASL is a wonderful tool for people who are culturally Deaf. For the large majority of people who have varying degrees of hearing loss it is not a solution. ASL is a language just like other language. In order to use or benefit from it, you have to associate with others who use it. That just isn't a reality for the 40+ million Americans who lose hearing after they acquire language. Who would we communicate with?

Most people with acquired hearing loss, regardless of the severity, want to remain in the hearing mainstream. That is why advancements in hearing technology are so important. That is also why people with hearing loss need to open their minds to learning all they can about how that technology works and how it might help them. We have a responsibility to advocate for better technology, the availability of that technology, and acceptance of the usage of it.

Unfortunately, age old stigmas about hearing loss often prevent people from getting and using the help that is available. Some of this wonderful technology shows. Some of it we have to expose our unique need by asking for it.

Don't hide your hearing loss. Learn about it. Talk about it. Get involved in advocacy and take every opportunity you have to educate other people about how to help you participate in life.

Do you know that 'communication access' is defined and mandated by the American's with Disabilities Act? Do you know that it does not have to be provided if people don't request it? It is not automatic like curb cuts. And, even when requested, venues often don't have it available. We who need this kind of access have to be the educators and advocates. Are you willing to do that?

Jump to this post

I agree! Also the cost of hearing and needs to come down. Many people cannot afford them.
Lynne

REPLY
@julieo4

Go to Google and ask: What is InnoCaption? Some helpful information will come up.

Jump to this post

I use InnoCaption on my iPhone. It allows me to read
speech to text on my iPhone. It’s a free service that has changed my ability to communicate on a phone call.
Before I got InnoCaption, I was unable to understand anything on a phone call. I highly recommend it.

REPLY
@nellie1125

I use InnoCaption on my iPhone. It allows me to read
speech to text on my iPhone. It’s a free service that has changed my ability to communicate on a phone call.
Before I got InnoCaption, I was unable to understand anything on a phone call. I highly recommend it.

Jump to this post

Thanks for sharing your experience with it. I will look into it and share with my friend who is also struggling with talking on her iPhone.
Best wishes
Lynne

REPLY
@lynnehenry21

Thanks for sharing your experience with it. I will look into it and share with my friend who is also struggling with talking on her iPhone.
Best wishes
Lynne

Jump to this post

I use CaptionCall, previously known as Olelo, another free text to speech app for the phone which uses AI and has been life changing for me. At the Dr I use the Otto app for speech to text communication and it saves the conversation for a period of time. Also very helpful.

REPLY
@jcdf

I use CaptionCall, previously known as Olelo, another free text to speech app for the phone which uses AI and has been life changing for me. At the Dr I use the Otto app for speech to text communication and it saves the conversation for a period of time. Also very helpful.

Jump to this post

Sorry, typo, Otter.

REPLY
@jcdf

I use CaptionCall, previously known as Olelo, another free text to speech app for the phone which uses AI and has been life changing for me. At the Dr I use the Otto app for speech to text communication and it saves the conversation for a period of time. Also very helpful.

Jump to this post

Did you ever use Live Transcribe? I’m wondering how it compares to Otto

REPLY

Similar, however Otter records the conversation for a period of time so you can look at what was discussed vs there’s no recording with Live Transcribe.

REPLY
Please sign in or register to post a reply.