1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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loriec | @loriec | Dec 1, 2023

Interesting. I have been on Evenity for 7 months. My cholesterol went up also and they have me on Rosuvastatin. I’m not taking it every day. Doctor says even 2 week will help. I hate all these meds. I had to take risks of Evenity. I have broken both feet June and July!! Still don’t know why my cholesterol is high.
We do our best.

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mayblin | @mayblin | Dec 1, 2023
In reply to @susanfalcon52 "I’m currently on Tymlos - no problems with that. Was on Forteo a few years ago..." + (show)
@susanfalcon52

I’m currently on Tymlos - no problems with that. Was on Forteo a few years ago and that went well, too. The Forteo did improve my bone density.
When I finish the Tymlos next month, I’m going on Evenity.
I have been worrying about the side effects, but this site has made me feel better.
I will post again after my first injection. Wish me luck!

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May I ask what did you take after forteo before tymlos?

Will you take anything after tymlos before you take evenity?

If possible, could you share before and after treatment dexa scores and/or tbs please?

Thank you very much and best of luck!

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lynn59 | @lynn59 | Dec 2, 2023
In reply to @gpowr23 "Help! what do those initials stand for?" + (show)
@gpowr23

Help! what do those initials stand for?

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I had a one hour phone consultation and half hour follow up with Dr McCormick recently on the phone. I would have preferred in person, but I live in Canada, so it wasn’t convenient. It went very well. I appreciated his insight and suggestions. He requires a brief medical history, three past Dexa scans (full report with pictures), plus a copy of your most recent bloodwork.

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auntievintage | @auntievintage | Jan 26 8:14am
In reply to @gina4bella "My T-scores: -4.7 Lumbar Spine (L1-L4) -3.4 Left femoral neck -3.0 Left hip Age: 56 Crohn's..." + (show)
@gina4bella

My T-scores:
-4.7 Lumbar Spine (L1-L4)
-3.4 Left femoral neck
-3.0 Left hip
Age: 56
Crohn's Disease dx'd at age 15 and treated with long term, high dose Prednisone for years.

I've had chronic spine fractures and a broken wrist. My broken wrist went undiagnosed (no matter how much I cried to my docs about it) for 5+ years. It's now a SNAC wrist. (Non Union Advanced Collapse) My bones are currently too fragile for surgery.

I received my 5th Evenity injections yesterday. I get them behind my upper arms and have swelling and pain for a couple of days. Using a hot heating pad on the injection sites when I get home seems to help a lot. This was suggested by my doctor.
The only other side affects that seem to be from Evenity are, headaches, fatigue and rib cage pain.
The side affects are not enough for me to discontinue therapy. I am hopeful that Evenity will work for me and everyone else that's on it! Good luck everyone!

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Hi Gina,
I'm 46 years old and have similar T-scores (-4.3). I'm quite nervous about Evenity. I was trying to search to see a follow-up to your final treatments. I saw that you were having severe side effects and took a short break between 9th and 10th doses but I couldn't find any update afterward. Would you be able to share the final results and improvement in T-scores?

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2 replies
windyshores | @windyshores | Jan 26 9:36am
In reply to @auntievintage "Hi Gina, I'm 46 years old and have similar T-scores (-4.3). I'm quite nervous about Evenity...." + (show)
@auntievintage

Hi Gina,
I'm 46 years old and have similar T-scores (-4.3). I'm quite nervous about Evenity. I was trying to search to see a follow-up to your final treatments. I saw that you were having severe side effects and took a short break between 9th and 10th doses but I couldn't find any update afterward. Would you be able to share the final results and improvement in T-scores?

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@autievintage many people do really well with Evenity without side effects. I don't want anything that I post to affect anyone else because I react to flavored seltzer!! Docs generally follow-up with Reclast or Fosamax, and sometimes Prolia. There really aren't any other choices.

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auntievintage | @auntievintage | Jan 26 12:45pm

Thank you for the quick and thoughtful reply. At my age, I don’t see any other options but to try Evenity.

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1 reply
susanfalcon52 | @susanfalcon52 | Jan 27 7:16am
In reply to @auntievintage "Thank you for the quick and thoughtful reply. At my age, I don’t see any other..." + (show)
@auntievintage

Thank you for the quick and thoughtful reply. At my age, I don’t see any other options but to try Evenity.

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auntievintage,
I have been on Evenity for 8 months. I’ll receive 9th injections next week. I haven’t had any side effects other than fatigue after first injections.
I felt that I had to try Evenity. My mother had a compression fracture which made her life difficult. I do not want that.
I have a dexa in May and then go on Reclast.

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1 reply
kristie2 | @kristie2 | Jan 27 10:09am
In reply to @auntievintage "Hi Gina, I'm 46 years old and have similar T-scores (-4.3). I'm quite nervous about Evenity...." + (show)
@auntievintage

Hi Gina,
I'm 46 years old and have similar T-scores (-4.3). I'm quite nervous about Evenity. I was trying to search to see a follow-up to your final treatments. I saw that you were having severe side effects and took a short break between 9th and 10th doses but I couldn't find any update afterward. Would you be able to share the final results and improvement in T-scores?

Jump to this post

I am also in the same range of you guys with my T score in my spine of -4.6 and my femur not so bad at -2.1. I have been on Evenity for over 6 months now and tolerated side effects.

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joannethale | @joannethale | Jan 27 9:11pm
In reply to @susanfalcon52 "auntievintage, I have been on Evenity for 8 months. I’ll receive 9th injections next week. I..." + (show)
@susanfalcon52

auntievintage,
I have been on Evenity for 8 months. I’ll receive 9th injections next week. I haven’t had any side effects other than fatigue after first injections.
I felt that I had to try Evenity. My mother had a compression fracture which made her life difficult. I do not want that.
I have a dexa in May and then go on Reclast.

Jump to this post

I have had 11 of my 12 monthly Evenity injections without any adverse effects. Next I will start Prolia in July. I will have a DEXA test in a few months to see if there has been any improvement. I fell and fractured my femur in 3 places and also my right wrist. A year later, I bent over to pick up groceries and fractured my T12 lumbar vertebrae. That is when I decided to stop be afraid of possible adverse effects of Evenity and Prolia. But I do not want to take Fosamax because I have read too many negative effects.

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jillgirl | @jillgirl | Mar 3 2:17am

After my first infusion of Evenity I had an outbreak of herpes simplex on my lips and face. After taking valtrex the outbreak stopped. I have had these type blisters in the past, but never like this. I am interested in others who have had this reaction? Ths/

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