Weakness, dizziness, balance.

I have neuropathy and POTS among many other issues. I used to be athletic, eat well, and have a full busy life. I am 53. I take cymbalta and gabapentin for pain management as the pain is due to my autonomic nervous symptoms. I saw a highly recommended Physiatrist at UVA. I have CRPS in my right foot and leg. This is extreme neuropathy and it is starting in my back and in neck in head. I have the tingling in my feet and hands and sometimes my hands do not work. The medicine helps but will not cure or totally manage the pain. I was told by my Physiatrist that the best I could expect was that my pain would be reduced by 50%. In addition the barometric pressure wreaks havoc with my body and symptoms. I will probably never be able to fly again. I am wearing Oofos recovery shoes that help with walking when I can. I pace my activities to 20 minutes at a time (even on good days) and have had to make myself my main focus in life. Meaning I have to take care of myself before anyone else or I will be bedridden for days. My family is now more aware and understanding of this horrible mess. I only had the first 2 vaccine shots. I got long COVID from the initial start of the pandemic. I have been advised to not have anymore COVID vaccines. Ironically, I have not gotten COVID again but if I get anything including a minor cold it takes weeks and weeks fo me to recover. I wear an abdominal binder - you could also wear compression socks - that helps with the dizziness and passing out. I really don't like wearing it but it does help so it is worth the discomfort. I read someone mention feeling guilty for naps. I have finally gotten over that , after years of this. If you need to sleep, you need to sleep. I am not who I used to be. I have a new normal which took a long time to accept. I have things I can do that make me happy that are low energy. I am very careful with myself as I have multiple issues that cause me to fall. I wish everyone luck with navigating this awful new reality we live in. Another thing that really helped me was after years of getting nowhere with doctors and medical tests was getting into a Long COVID clinic and working on symptoms that can be mitigated. However, from what I have been told all of the issues I have are a life long sentence with no cure just symptom management. I am a survivor so I am now trying to be positive and find happiness in small things sometimes just the fact that I woke up and am alive. I am so sorry we have this, I am so sorry it has drastically changed our lives. Good luck to all!