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Side Effects of Mavacamten (Camzyos)

Hypertrophic Cardiomyopathy (HCM) | Last Active: Feb 16 2:33pm | Replies (13)

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@deanna529

Yes, my taste has improved... but it has been almost 1 year. ;-( I thought I was going to be like this for life. LOL
Still have a dry mouth feeling sometimes and my tongue still is not right. But I do understand that chocolate and anything sweet tastes terrible. I couldn't even enjoy a steak. Or a piece of fruit. Everyone at NYU thought I was crazy. They said they never heard of this! Well, I guess I am the first and you are the second. Please report this to Bristle Meyers Squib and to the special pharmacy you get it from. It has to be documented. I just couldn't take it after 6 months. It really triggered something strange in me. I guess it is not common. I wish you well. Anything I can help you with, don't hesitate.

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Replies to "Yes, my taste has improved... but it has been almost 1 year. ;-( I thought I..."

What strength did you start on and what strength did you work up to? I have not had any of that but I am only on 5mg or the last 3 months but I expect they will be increasing my dose probably in month 5. Thanks for the information. Hope you get back to normal taste soon.