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My Experience on Evenity for Treating Osteoporosis
Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.
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I, too, contacted the Amgen. The nurse I spoke with wanted to know any high and low markers in my pre and post bloodwork. I only completed 6 months of treatment due to side effects. Hopefully, patients will document side effects and call Amgen so they can get a better picture of after market patient issues.
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1 ReactionThat's just not right. So many of us have experienced similar symptoms. As I said before, I will never go back to that doctor. Something's not right.
Yes, I found out that my reactions were right there on the site. Then I thought: Hmm... I must know more than my doctor does. That was an uncomfortable situation in which to find oneself.
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4 ReactionsJust wanted to circle back to you . It has been 8 days since my 6th injection and so far no neck or back issues. It’s like it all went away.
That's fantastic! Unfortunately mine is still there. I went to a physiatrist on Tuesday and he put me on Meloxicam for inflammation. Says I have arthritis from my osteoporosis and compression fractures. Still waiting to feel relief from the medicine. I go for my 8th injection in a week and a half. On a different topic, what will you do after Evenity? I'm thinking of Reclast but those side effects look a bit worrisome.
@artcscaping Amgen called me today to discuss my side effect and requested permission to contact my doctor. This is the only way we won't hear "I haven't heard this from any other of my patients"!
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1 ReactionI am thinking of Recast or Actonel also know as Risedronate sodium .
I will do Reclast after Evenity. Anxious. Coming up in June.
I have never heard of actonel. I’ll have to research and talk to my dr about that one.
@nwyatt I am curious how osteoporosis and fractures could cause arthritis. I think of them as separate entities.
Evenity inhibits sclerostin. People with osteoarthritis and rheumatoid arthritis have low sclerostin naturally, so low sclerositin is associated with these issues. It is possible therefore that Evenity could cause or exacerbate arthritis of both kinds, though whether that is temporary or permanent has not been determined. One doc told me that 40 % of his Evenity patients have joint pain. It is a new drug but I personally hope that any effects are short term and it seems the pain fades, from various posts on forums.