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People living with ET and taking Hydrea: Anybody setting records?

Blood Cancers & Disorders | Last Active: Mar 28 11:40am | Replies (63)
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@mdterp76

I've only been on HU for a year, 2x 500 mg. Gives me a lot of fatigue. I can't function until the afternoon. I take it for ET. I had no symptoms other than high platelets coming into this. Now, I am tired most of the time. I also have dry skin, dry eyes, bruising, and bleeding gums. I was an active 69 year old when diagnosed a year ago. Now, I am a tired 70 year old.

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johngrudnowski | @johngrudnowski | Jan 20 7:36pm

I hope that somehow turns around. I just moved to 2x500mg three days a week and today I was really tired. Muscles felt like there was just nothing there It’s only been a week on this dosage but it’s definitely heavier the days after the two pills. I’m waiting still for my body to figure it out.

The bruising and bleeding seems scary I’ve not had that happen…. I’m just hopeful this or something else works and thinking about you to send some positive thoughts.

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