Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
If their pain isn’t being managed, of course, chronic pain patients will not ask for the dosage to be lowered. They also don’t know how to lower their dosage on their own. Withdrawal is a given if the person has been on high dosages.
Again. Dependence and addiction are not the same thing. Just because you experience withdrawal does not mean you are addicted. The urge to pursue a high or elation from a drug is different than pursuing quality of life.
I’ve never experienced a high or rush from the high but then I’m not on a full therapeutic dose of opioids with my pain relief only at 40%. Without them though, I would be bedridden as I was when they reduced my dose.
The problem is that the doctors pharmacists are protecting not only their practices and livelihoods and therefore their families.
How do you get your opioids? Do you have a sympathetic provider? I had one in MT but for all I know she could have since been intimidated by the drug police. The small supply of hydrocodone is left from what she gave me and I moved from MT back to MN over 3 years ago.
PS--Prior to my finding the sympathetic provider in MT I had an MD who did give the hydrocodone that I needed for RA pain and guess what? He had Federal agents coming to his home to investigate him and he had a family. This is beyond excessive in my opinion. My present rheumatologist won't go near the subject of opioids.
Those examples are rampant in Wyoming. That’s why we only have 15 specialists remaining.
I have lots and lots of books about the near-death experience. I, too, have been in awe of the experiences people have had. I have gathered that it is not productive to commit suicide unless maybe there's no hope for recovery. We do not have answers for this. I think it's neat that you actually have a friend who had an NDE! My brother rose up out of his body once while he was sick at home and looked down at his body from the ceiling. My father appeared to my mother after he died. She touched him and he was solid! I've heard of the astral body and think that's what he was in at the time.
@ellens I had a out of body once. I was on the highway I looked up at a beautiful cloud before I knew it I was up to the cloud I guess my senses took over and I remember saying who,s driving the car like lighting I was back on car
@bustrbrwn22 Hi there, good for you.....how often do you have sessions in a week. Here is what I am doing. I am testing a twice a week series of MFR sessions. Is it possible that I can improve my quality of life by just adding one more MFR session per week? If so, can I hang back from some of the other pain control medications I am taking?
I am already noticing that I can make it much more comfortable with twice a week. However, the first session with greater intensity for the lower body parts led to the upper body complaining because it was ignored. Truly....I was sort of shocked. Anyway....we have now evened up the treatment locations and degree of treatment. Gotta keep those shoulders and that neck happy.
May you be free of suffering and the causes of suffering.
Chris
Hi all!
I am hoping this will provide another resource in everything I've been going through the last year.
Last fall I started experiencing daily sharp, stabbing headaches that would come and go all day long. My GP referred me to a neurologist as I already suffer from migraines and she felt that would be best for treating two headache disorders. Through a process, we got them under control with indomethacin. The initial diagnosis he gave me was indomethacin-responsive trigeminal autonomic cephalalgias. For seven months, I had no headaches, unless by my own fault I missed a dose. In August, the headaches flared up despite the medication, though not as severe as last fall, which has been very discouraging as once again I am in daily pain at various levels off and on throughout the day, and finding a solution has been challenging both on the medicinal side of things and in working with my neurologist. This Tuesday I'll try and SPG block for the first time which I'm hoping will at least provide some temporary relief. Until that relief comes, I will continue moving on one day at a time as that's all you can do.
Rebecca
When my pain specialist tried to lie and taper me, I involved my US Senator, John Barrasso. I proved that the CDC Guidelines were not written for Chronic Pain patients by the CDCs own warning letter issued after they were released (check the site).
I proved that opioids are necessary for quality of life and I’m not a seeker— I’ve never broken a contract by shopping illegally for my medications, pharmacy hopped, or had another doctor prescribe them.
The decrease was unwarranted, unnecessary, and fully driven by DEA pressure.
Barrasso got involved and it was quickly and forthrightly halted.
Dear Ones,
I realized that I left out an incredibly important piece of info in this post. That is that the head of the Kaiser Permanente Opiate Oversight Management Team, who happens to be a Psychiatrist (there are many disciplines on the team), met with my husband, PCP and I, quite some time ago, to tell me they validate me and my need for morphine! She was adamant that we knew and understood the team felt this way! I about died of shock LOL!! I have been on pretty much all of the opiates over the past many years (27+) I think.
I wish the same validation, respect and relief for all of you! Warmest wishes, Sunnyflower. 🙏😊🌹