1. < Neuropathy

Burning Feet syndrome

Posted by ndovu @ndovu, Mar 17, 2012

Hi everyone! Am 40yrs man in Africa - Country. Kenya. In 1993 aged 22 and in college, I developed burning feet. So hot have been my feet that I've not worn closed shoes all those yrs
All tests done over the yrs -,including blood sugar, pressure, vitamin test, nerve endings test etc. All have been negative. I'm generally healthy, with no major problem. I need anyone who has had such a problem and got help to help.

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helennicola | @helennicola | Jul 6, 2019
In reply to @allegro "MY KIDS TALKED ME INTO TRYING CBD OIL FOR MY BURNING FEET ...ACTUALLY, IT HAS REALLY..." + (show)
@allegro

MY KIDS TALKED ME INTO TRYING CBD OIL FOR MY BURNING FEET ...ACTUALLY, IT HAS REALLY HELPED ALOT..IT'S WORTH A TRY AS NOTHING IS WORSE THAN TRYING TO SLEEP AND YOUR FEET ARE SORE AND BURNING..GOOD LUCK......JAN (ALLEGRO)

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it is always great when something works to alleviate pain. Both my husband and I have tried CBD oil, he for back problems, me for anxiety, with no discernible results. I would like for him to try CBD/THC oil but can only get it where it is legal as co. can’t ship.

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hotfooted | @hotfooted | Jul 7, 2019
In reply to @wisfloj "From Amazon, Natra Cure socks! They have gel inserts to cover the top and bottom of..." + (show)
@wisfloj

From Amazon, Natra Cure socks! They have gel inserts to cover the top and bottom of your feet, they even stay on as you fall asleep, I would recommend two pairs so you always have one in the freezer ready for use. I have the smaller blue ones and wear a size 8 shoe, female. Just fit, Could be an inch longer. Definitely provide relief while you’re at home, I’ll take them with me when I travel, sometimes I even lay them on my burning calf or thigh.

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Wowzer! I checked these socks out on Amazon and they sound amazing.. Maybe they'll keep from sitting in the shower, spraying my feet with cold water.. altho that works fairly well, too.. I'm sitting now with my feet raised and am using an ice pack from my freezer on my legs.. The cold helps so much.. I'm not as jittery inside as I was ...

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notborntoburn | @notborntoburn | Jul 7, 2019

You sound like me!! I too tried the cold socks,wished they stayed cold longer,but any relief helps. I am beginning to feel the neuropathy crawling up my legs.
I wish the best

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brojoeh | @brojoeh | Jul 19, 2019
In reply to @helennicola "My neuro wanted me to try nortriptyline which is a second generation version if amytriptyline, instead..." + (show)
@helennicola

My neuro wanted me to try nortriptyline which is a second generation version if amytriptyline, instead of, or together with gabapentin. It is often prescribed for neuropathy and is a combination anti depressant and nerve pain reliever she said. My research showed no proof of benefit although she claims to have patients who did well with it. To date I have not tried it.

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I've had some success with Lyrica (150 mg twice daily) and Amitriptyline (75 mg nightly). The burning in my hands and feet lessened greatly and the Ami also helped me sleep.

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1 reply
newzbug | @newzbug | Jul 22, 2019
In reply to @skullborous "My symptoms exactly. All of those tests also. Nothing. Attempts to block nerves through shots in..." + (show)
@skullborous

My symptoms exactly. All of those tests also. Nothing. Attempts to block nerves through shots in back unsuccessful. Running out of ideas.

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I am so sorry for your pain. While I don't have the burning pain all the time, I do have it occasionally and have resorted to using a fan to keep them feeling cooler. And when that fails, I often use a cold water bath to soak them. It usually helps me get to sleep. I don't know if any of those will work, but I hope so.

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newzbug | @newzbug | Jul 22, 2019
In reply to @helennicola "My neuro wanted me to try nortriptyline which is a second generation version if amytriptyline, instead..." + (show)
@helennicola

My neuro wanted me to try nortriptyline which is a second generation version if amytriptyline, instead of, or together with gabapentin. It is often prescribed for neuropathy and is a combination anti depressant and nerve pain reliever she said. My research showed no proof of benefit although she claims to have patients who did well with it. To date I have not tried it.

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I was given the nortriptyline a few years ago as an antidepressant and it gave me a horribly dry mouth. I got cavities and lost a tooth as a result of it. Be careful and read up on side effects.

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somisgirl | @somisgirl | Jul 31, 2019
In reply to @skullborous "Greetings all, has anyone had any experience with dmso? Basically it is a solvent that takes..." + (show)
@skullborous

Greetings all, has anyone had any experience with dmso? Basically it is a solvent that takes whatever is on the skin into it. Knowing this and having read some books on it awhile back I decided to try it with lidocaine on my burning feet. I apply lidocaine gel to the feet then using a latex glove rub in about 1/2 tsp of pharmaceutical grade dmso. It seems to be working. I had the least pain today that I have had in many months. You must be careful not to have anything on the skin where you use it as it will pull it into the skin and some will enter the bloodstream. I’m no doctor so check with yours before trying this. And get only pharmaceutical grade dmso. They make an industrial product that is not suitable. It must be pure and free if other chemicals. I ordered mine online. I am encouraged with this so far. There are lots of articles on dmso. It is used extensively in veterinarian medicine. Both topically and orally and injectable.

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I have been using DMSO for several months now and it really seems to help numb all of the symptoms for a while. I have idiopathic small fiber neuropathy. I have also noticed that wearing compression socks helps with the feeling of swelling.

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Lisa Lucier | @lisalucier | Aug 5, 2019
In reply to @brojoeh "I've had some success with Lyrica (150 mg twice daily) and Amitriptyline (75 mg nightly). The..." + (show)
@brojoeh

I've had some success with Lyrica (150 mg twice daily) and Amitriptyline (75 mg nightly). The burning in my hands and feet lessened greatly and the Ami also helped me sleep.

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Hi, @brojoeh - how are your hand and foot burning symptoms lately?

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iceblue | @iceblue | Sep 30, 2019

I was diagnosed with small fibre neuropathy (which includes Burning Feet Syndrome) 2 weeks ago. Thankfully my feet don't burn all the time - but often enough to send me to the doctor. I especially hate the 3:00 am waking to take pain meds that I now keep on my bedside table.

The diagnosis was based on a nerve conduction study and thorough exam by a Neurologist. The bad news is there is no cure and it will likely get worse - the good news is there are some suggested medications. I opted for Gabapentin (recommended by the Pharmacist and my GP), which my doctor has me building very slowly (100 mg every night for 7 days; then 200 mg every night for 7 days; then 300 mg every night for 14 days - and at that point we will assess my pain levels. It's all about pain management for me.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 30, 2019
In reply to @iceblue "I was diagnosed with small fibre neuropathy (which includes Burning Feet Syndrome) 2 weeks ago. Thankfully..." + (show)
@iceblue

I was diagnosed with small fibre neuropathy (which includes Burning Feet Syndrome) 2 weeks ago. Thankfully my feet don't burn all the time - but often enough to send me to the doctor. I especially hate the 3:00 am waking to take pain meds that I now keep on my bedside table.

The diagnosis was based on a nerve conduction study and thorough exam by a Neurologist. The bad news is there is no cure and it will likely get worse - the good news is there are some suggested medications. I opted for Gabapentin (recommended by the Pharmacist and my GP), which my doctor has me building very slowly (100 mg every night for 7 days; then 200 mg every night for 7 days; then 300 mg every night for 14 days - and at that point we will assess my pain levels. It's all about pain management for me.

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Hello @iceblue, Welcome to Connect. I also have small fiber peripheral neuropathy but I only have the numbness and no associated pain. I posted what helps me in my story in an earlier post on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

There are a few other discussions you may want to join and meet other members sharing small fiber neuropathy.

> Groups > Neuropathy > Ideas for pain relief from Small Fiber Neuropathy (SFN)
-- https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

> Groups > Neuropathy > Scientific research and scholarly papers on Small Fiber Neuropathy
-- https://connect.mayoclinic.org/discussion/scientific-research-and-scholarly-papers-on-small-fiber-neuropathy/

Pain management is probably the number one concern for a lot of members. Side effects of the medication used for pain management is another concern for some members. Is it primarily your feet that are affected by your neuropathy?

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