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Fibromyasia
Any one with this condition going through serious pain right now???
I have been dealing with this for over 20 years & am really having serious pain the last several days...
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I'm assuming that you had back surgeries. That is really horrible to have pain 24-7 after having surgery. I feel for you 'cuz I do know what that is like & I wouldn't wish it on anyone.
Although I've been living with fibro for a LONG
OOPS...TIME, I've never been in a chat room (or whatever this is). All know is that I ned help. I am hurting so bad and so terribly sleepy that I just want to sleep all day. Not possible with 9 kids, 4 grandkids and all those other 'life goes on" things we always have to do. I was on the fentanyl patch for quite a while and it really helped with the pain. My problem with that was the way it made me feel like drug junkie, needing my next fix when I'd forget to change the patch on time. I finally gave up on it because of my severe dependency on it. I was on Celebrex and felt wonderful on it. Then, all the commercials on tv with the warning about possible dangers and my husband wanted me off that. i haven't been taking anything but Norco, prescribed for migrains. It helps the headaches some and helped very little on the fibro. I called a local dr and said I need something more because I can't function like this. (My regular dr has been out of the office for two months because she had pneumonia then got a fungal infection in her lungs...) Good ole dr gave me Oxycodone and 2 mg xanax to be taken 4 times a day. I don't know if i hurt or not cause I was so out of it, doing things I don't even remember. AND I WAS DRIVING!!! Anybody out there that can tell me some mircle drug that helps but still lets you function and carry on with life? PLEASE HELP ME.
Maybe the Fentynal patch you were on was too strong. Start out with the 25 & work up if you need to. I am on the 75 patch along with Flexeril & vicoden 750s. There are times when that doesn't help either. No matter what you take, it will most likely have some side effect, but I cannot live w/ the pain so, I prefer the
possible side effects that I may have from the meds. Everyone reacts different to meds & you need to find what works for you. For years, I played musical meds with the Drs. trying to find what will work.
I don't know if you are still there...your posts are 8 months old, but I am new to this site and wanted you to know that there is someone else here. I do not have anyone to talk to who can relate to me and I am currently in a state of mental exhaustion. I have played musical docs and meds for 21 years....and now am diagnosed SSI as of 2003. The good news is that no one can play musical meds, the bad news is...no-one can help me or wants to deal with me cause I cannot be curred. I am in the empty space between sick, but untreatable.It's a lonely feeling...let me know if you are still there...K!
Sorry to hear that you are going thru such a hard time. What was your diagnosis?
FMS, CMS, IBS, AXIETY DISORDER, DEPRESSION,HIVES ans SEISURES. Sensitivity to light, noise, smells, soaps, plants and meds. It began with the Ebstein Barr Virus....
You need to ask your doc to run a simple Blood Test for the EBV Virus...it's like severe Momno (CFS...or Chronic Fatigue Syndrom) and goes hand in hand with FMS. Any Changes in weather or routines will flair up FMS..and most drugs have an Adverse Effect, so your hubby was right about not wanting you on just any med the give you. Thay still do not know the why and the how to fix....so we are test subjects. I use a heat pad under my shoulders every nite. During the day I use lots of either menthol rubs "OR" opt for Thermal Care Heat pads as they worrk for up to10 hours. I put the neck ones....One across each shoulder next to both sides of the neck and the I take the x=large back one and put it just under the other two to get the knots under the shoulder blades. I then wrap it around my chest and hook it in front witha soft bra holding all in place. My hubby helps me put them on as I cannot reach back there..It is the best long lasting relief I get without any meds. Do not use with rubs...it will burn your skin, but...you can wear them out under your clothes, or to bed for a good nites rest...the effects last untill your muscles bunch up again.
The fact that you are sensitive to meds makes your medical issues more complex. I wish that I had a magical solution for you. Have you looked into any of the natural remedies? Have you ever gone to Mayo Clinic in Rochester, MN? They are very good there & take more tests than a GP can..
It is really hard to handle the pain some times..but, worse when know one knows what you go thru. Do you have support?