About ready to scream, been bad month

Posted by reibur1951 @reibur1951, Jul 5, 2019

P let the lavender piton Siamese out on the 2nd we both walked the yard i did till could do no more Monday1st i woke up with shoulder hurting and it got where could barely move it event o get dress was a chore - any way to hunt the kitten he decided tiller had to be started in the tall gras wrapped the tines up good with the grass and the cable from the satellite dish to bedroom tv argued with direct-tv about what was wrong they would not accept that i knew a well bent if not broken cable repairman came out on Thursday 3rd and decided to screw it to the side of the mobile home - and right through the electrical wiring for the offset had to call P's brother-in-law in for re-enforcement as I wanted it repaired properly right - as we had to be in Indy on the 5th I was going to cancel if not repaired right do not need an electrical fire and lose what little i got and my genealogy records trailer would be no loss really its a piece of s--t 1978 falling apart would be faster excuse to get out of here to better accommodations but not way to do it .... supervised he fixed it properly... hauled a load of scrap off and found someone to help cut up heavier stuff so better $$ out of it - got one hugh homemade fork lift gone that has sit out in front yard since 2016.... Friday 28th was bad i sat in hare and semi cried all day think the whole year month hit been a year since RUss died (June 28th)... Sat 29th went to town and the van/car vibrate more than usual and very different so called P's brother-in-law to test drive he did not have to - - passer side tires had flat spots - - drivers side major problem the wire cord was showing out of tire and it had busted through on the inside
could only see by taking pic with camera it was frayed splintered and looked like a "bad hair day" cancelled his ct's scans out for Monday made them on the 3rd and then went back today - good news/bad news by ct's the right Supraclavicular lymph node(s) are slowly shrinking don't go back to radiologist tll 17th dec - left axillary lymph node in armpit has started to swell & their is one or two around the esophagus that is enlarged - he had he labs/dr/ infusion today he still wants to keep him on the Prembo KEYTRUDA® (pembrolizumab) | Anti–PD-1 Immunotherapy as everything else is looking good and main tumor too - ct's in 6 to 9 weeks to see what is goign on not suree what plans is if still growing 🙁 The survey done - the variance passed and the appraisals done - just waiting to get into lawyer to deed off the 5a to the sister to see if there is a nice attitude and more help but i doubt both work - and she wanted the full 69a.... been a wet farm season a lot of ground not planted - the 69 is the 40 thats on sale hold did not get planted but its cash rent when get the 5a deed off I will know what i got left have been scouting out new/used newer model trucks too and start on my house in culver its 114+ i think its beeter try to make a part of it livable rather than buy more property but cross that bridge when get there or find place to rent but will have to where we can take the doxie and cat.... P's birthday Sunday will be 58... Sep/Oct will be 3 years when it all started with him seems like yeasterday... I am hanging in maybe just by a thread buy i am hanging on tight I know God will provide

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@reibur1951

He is back back on the Keytruda (Prembro) which was Monday (24th) that was a 8:50 a.m. appointment a sleepless night and long day - I came home and immediately crashed and slept tuesday morning away next one is on the 16th - which is combo with a labs/dr/infusion of .Keytruda (Prembro) Had his radiation simulation today 10 treatments starting the 4th off Sat & Sun's we had bad roads till out of Fulton county - and was a weather advisory out till tomorrow but was going hell or high water as its still growing & turning a dark red looks like it could bust open but between the size of a quarter and a half dollar. Some wheres in between is to be wound care session to see if way to keep bandage on has to be at Methodist at Indy this after a month of the battle 🙁 but its closing & healing up and not infected. Ct Scans sometime after the 18th has had none since Sept/Oct.

I have got restore on Culver house started a full Garage first to replace the Carport the Sewer project people destroyed aback in 2006 have to get a variance - may have to have a survey to combine the 2 parcels.. missed March BZA so have to wait till April... in between if warm i will start cleaning the basement and gettign things ready to store in the garage from house etc.....

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@reibur1951 - Good morning. I hope that last was also a good sleeping night for you both. Is there a way that his siblings would pay to have additional help for you? I worry that you will get ill yourself and not be able to care for him. Do you think that they would pay to have help driving him to his appointments or would you not prefer that? How soon is his wound appt?

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Are you joking the half sister can care a rats A$$ in ---- when her dad alive she told me there was more than i that could drive in the next breath she said we are going to North Carolina for two months... the older sister has had nothing to do with the family it was only her grandmother because even tho she worked the grandmother would dole out to her she also chose to live with her & her mother instead of her family when younger not sure exactly why but when of age abandoned helping them in their "old age" the grandmother lived to be 92 and the great-grandmother over 100 - the younger sister & her husband both works I remember standing in the kitchen and hearing her tell her mother her brothers are her "White slaves" and about the same time she took me for a ride alone to the local CVS and on the way there told me if anything happened to her parents I was to have them put into half-way houses... Sad thing it is their brother is the one who lived with the grandmother who helped take care of her and paid the mortgage that the grandmother took out on the farm ground for years to pay off her bills the the one sister - - The younger sister offered $20 for food when her dad was alive - only it took between $50-100 for as and food for each trip to Indy The brother-in-law did offer to go to see how to get there (he is and ex emt so really knows as EMT conferences were held at IU) but did a no-show that day with excuses later on 2 weeks down the road. The years I have been here I helped take care of the grandmother, friend - the parents who died June 28 & Dec 26 2018 the sister managed to get the younger brother commuted to a half way house that long story - but had mental problems due to sniffing & someone slipping some type of drug my understanding the straw that broke the camel's back for her was him sitting the north half of were iive on fire - she started the process and he done himself in by lying to the judge. The father & sis son my friend i am caring for did not want to go into nursing home so that is why the father h ad me file for adverse possession of proprieties to care for them and and protect me if any of them would of gotten they would be in nursing homes or half way houses and I out on the street - sad thing is the father did not live to see it happen and we had to sweat it out till the judge signed the papers a long wait Feb - - that has all went through Aug 8 2018 because of the adverse possession had to wait a year which was not told to us - all the sisters cared about was the property sad to say the one sister got the 5a. that her house sits on and I paid for the all survey, BZA (for variance) and Lawyer fees and gave her & her husband the 5a free and clear as a GIFT. July 2019 when I knew all was clear - 40a in sept 2019 (per the title company insurance) went to one of the brothers who had farmed it for over 35 years and I am on my way of restoring my house at Culver I still have 2 pieces of land to care for my friend with and I and am the bad ass - even when their dad was alive they did not come around it was i who took him to all his dr. appointments and blood transfusions and ER when he felt bad I guess I have "stupid sucker " written across my forehead but I also was through it with my husband so its "been there done that" I will survive and make it I can't even get help from them cleaning up this 5.3.a acres which was a half-a$$ junk yard for years the brother-in-law did till he found out he could not walk away with things - he took as couple of items of and sold to a antique shop brought back $20 and no receipt I tired to sell a car bought under my name no title for $30 and they called the person said I had not right i had the paid receipt with my name on it it was for parts for the windstar that had the broken axle - it had no motor no tires - and we used dor glass handles etc from it to keep the windstar running - I will SURVIVE and I will make it -

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@reibur1951

Are you joking the half sister can care a rats A$$ in ---- when her dad alive she told me there was more than i that could drive in the next breath she said we are going to North Carolina for two months... the older sister has had nothing to do with the family it was only her grandmother because even tho she worked the grandmother would dole out to her she also chose to live with her & her mother instead of her family when younger not sure exactly why but when of age abandoned helping them in their "old age" the grandmother lived to be 92 and the great-grandmother over 100 - the younger sister & her husband both works I remember standing in the kitchen and hearing her tell her mother her brothers are her "White slaves" and about the same time she took me for a ride alone to the local CVS and on the way there told me if anything happened to her parents I was to have them put into half-way houses... Sad thing it is their brother is the one who lived with the grandmother who helped take care of her and paid the mortgage that the grandmother took out on the farm ground for years to pay off her bills the the one sister - - The younger sister offered $20 for food when her dad was alive - only it took between $50-100 for as and food for each trip to Indy The brother-in-law did offer to go to see how to get there (he is and ex emt so really knows as EMT conferences were held at IU) but did a no-show that day with excuses later on 2 weeks down the road. The years I have been here I helped take care of the grandmother, friend - the parents who died June 28 & Dec 26 2018 the sister managed to get the younger brother commuted to a half way house that long story - but had mental problems due to sniffing & someone slipping some type of drug my understanding the straw that broke the camel's back for her was him sitting the north half of were iive on fire - she started the process and he done himself in by lying to the judge. The father & sis son my friend i am caring for did not want to go into nursing home so that is why the father h ad me file for adverse possession of proprieties to care for them and and protect me if any of them would of gotten they would be in nursing homes or half way houses and I out on the street - sad thing is the father did not live to see it happen and we had to sweat it out till the judge signed the papers a long wait Feb - - that has all went through Aug 8 2018 because of the adverse possession had to wait a year which was not told to us - all the sisters cared about was the property sad to say the one sister got the 5a. that her house sits on and I paid for the all survey, BZA (for variance) and Lawyer fees and gave her & her husband the 5a free and clear as a GIFT. July 2019 when I knew all was clear - 40a in sept 2019 (per the title company insurance) went to one of the brothers who had farmed it for over 35 years and I am on my way of restoring my house at Culver I still have 2 pieces of land to care for my friend with and I and am the bad ass - even when their dad was alive they did not come around it was i who took him to all his dr. appointments and blood transfusions and ER when he felt bad I guess I have "stupid sucker " written across my forehead but I also was through it with my husband so its "been there done that" I will survive and make it I can't even get help from them cleaning up this 5.3.a acres which was a half-a$$ junk yard for years the brother-in-law did till he found out he could not walk away with things - he took as couple of items of and sold to a antique shop brought back $20 and no receipt I tired to sell a car bought under my name no title for $30 and they called the person said I had not right i had the paid receipt with my name on it it was for parts for the windstar that had the broken axle - it had no motor no tires - and we used dor glass handles etc from it to keep the windstar running - I will SURVIVE and I will make it -

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@reibur1951- Woops, guess I asked the wrong questions. This might sound cliche but why not bring them to court and force the issue? You doing such a remarkable job for this man. He doesn't deserve a family like that. Do you stay at the hospital when he's being treated?

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@reibur1951

Are you joking the half sister can care a rats A$$ in ---- when her dad alive she told me there was more than i that could drive in the next breath she said we are going to North Carolina for two months... the older sister has had nothing to do with the family it was only her grandmother because even tho she worked the grandmother would dole out to her she also chose to live with her & her mother instead of her family when younger not sure exactly why but when of age abandoned helping them in their "old age" the grandmother lived to be 92 and the great-grandmother over 100 - the younger sister & her husband both works I remember standing in the kitchen and hearing her tell her mother her brothers are her "White slaves" and about the same time she took me for a ride alone to the local CVS and on the way there told me if anything happened to her parents I was to have them put into half-way houses... Sad thing it is their brother is the one who lived with the grandmother who helped take care of her and paid the mortgage that the grandmother took out on the farm ground for years to pay off her bills the the one sister - - The younger sister offered $20 for food when her dad was alive - only it took between $50-100 for as and food for each trip to Indy The brother-in-law did offer to go to see how to get there (he is and ex emt so really knows as EMT conferences were held at IU) but did a no-show that day with excuses later on 2 weeks down the road. The years I have been here I helped take care of the grandmother, friend - the parents who died June 28 & Dec 26 2018 the sister managed to get the younger brother commuted to a half way house that long story - but had mental problems due to sniffing & someone slipping some type of drug my understanding the straw that broke the camel's back for her was him sitting the north half of were iive on fire - she started the process and he done himself in by lying to the judge. The father & sis son my friend i am caring for did not want to go into nursing home so that is why the father h ad me file for adverse possession of proprieties to care for them and and protect me if any of them would of gotten they would be in nursing homes or half way houses and I out on the street - sad thing is the father did not live to see it happen and we had to sweat it out till the judge signed the papers a long wait Feb - - that has all went through Aug 8 2018 because of the adverse possession had to wait a year which was not told to us - all the sisters cared about was the property sad to say the one sister got the 5a. that her house sits on and I paid for the all survey, BZA (for variance) and Lawyer fees and gave her & her husband the 5a free and clear as a GIFT. July 2019 when I knew all was clear - 40a in sept 2019 (per the title company insurance) went to one of the brothers who had farmed it for over 35 years and I am on my way of restoring my house at Culver I still have 2 pieces of land to care for my friend with and I and am the bad ass - even when their dad was alive they did not come around it was i who took him to all his dr. appointments and blood transfusions and ER when he felt bad I guess I have "stupid sucker " written across my forehead but I also was through it with my husband so its "been there done that" I will survive and make it I can't even get help from them cleaning up this 5.3.a acres which was a half-a$$ junk yard for years the brother-in-law did till he found out he could not walk away with things - he took as couple of items of and sold to a antique shop brought back $20 and no receipt I tired to sell a car bought under my name no title for $30 and they called the person said I had not right i had the paid receipt with my name on it it was for parts for the windstar that had the broken axle - it had no motor no tires - and we used dor glass handles etc from it to keep the windstar running - I will SURVIVE and I will make it -

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Hi @reibur1951, As Merry said you are doing some remarkable work for a person who needs a friend! It is so terrible that he can't depend on his family. Just wondering, does he resent his family for their lack of help and caring?

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Yes - i stay at hospital - the keytruda/prembo is only half an hour at most - They did not contest the adverse possession so its not worth the extra money for a lawsuit - the 5a. the youngest daughter was was promised and only that by her grandmother & mother who was P.O.A. for her mother-in-law she got that and no more and no less They are the ones who will have to live with the treatment of their brothers brothers and parents I even left my fried from the eight days his mothers was laid dying Dec 18-26 with comfort care only because she did not deserve be alone dying in the nursing home where she had been sice Dec 4 200 with a full right side stroke - she never bothered to go see here bless she had to berated her mother to her father as a liar etc. - all she cared for was being able to have her dads truck as a 2nd vehicle when hers was down and he did not drive it but one or 2 times from Nov 2016-Jun 208 but i kept the insurance and plates up on it and they walked off with it of course it was titled in parents name - and it now just sits - the trailer sits here and they won't move it to their property but its going soon Saying is what goes around comes around Its just easier to do it myself than to have to constantly ask for something tho the husband has come through in a pinch this winter when ran out of fire wood - because i had to keep begging my suppliers for wwod and would promise and do a "now show"

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@hopeful33250

Hi @reibur1951, As Merry said you are doing some remarkable work for a person who needs a friend! It is so terrible that he can't depend on his family. Just wondering, does he resent his family for their lack of help and caring?

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I have not even asked - I think its been that way most of his life - like i said he was the one who lived stayed and cared for his grandmother from the 1980's ttill she died in 2002 at age of 92 and in the package was the great-grandmother who lived to be 100+ - till her other daughter forced her into the local nursing home after a house fire like i said below what comes around goes around. I just try to do what is right - and hope one day some one will do same for me I am basically in same boat - my kids could care less but their dad handed them everything they wanted even if mom said no and when he died in 1990 the hand-outs ended... I am lucky i have just been able to keep the house which has been in the family since 1944 again thats probably been stupidity on my part - did tried to sell it couple time but did not go but I think that was thanks to the second family deterring the sell of it thought they would pick it up for back taxes... Life is a bowl of xcherries if you stay strong and do not buckle under 🙂

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@reibur1951

Yes - i stay at hospital - the keytruda/prembo is only half an hour at most - They did not contest the adverse possession so its not worth the extra money for a lawsuit - the 5a. the youngest daughter was was promised and only that by her grandmother & mother who was P.O.A. for her mother-in-law she got that and no more and no less They are the ones who will have to live with the treatment of their brothers brothers and parents I even left my fried from the eight days his mothers was laid dying Dec 18-26 with comfort care only because she did not deserve be alone dying in the nursing home where she had been sice Dec 4 200 with a full right side stroke - she never bothered to go see here bless she had to berated her mother to her father as a liar etc. - all she cared for was being able to have her dads truck as a 2nd vehicle when hers was down and he did not drive it but one or 2 times from Nov 2016-Jun 208 but i kept the insurance and plates up on it and they walked off with it of course it was titled in parents name - and it now just sits - the trailer sits here and they won't move it to their property but its going soon Saying is what goes around comes around Its just easier to do it myself than to have to constantly ask for something tho the husband has come through in a pinch this winter when ran out of fire wood - because i had to keep begging my suppliers for wwod and would promise and do a "now show"

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@reibur1951- You are absolutely right, what goes around comes around. Someday you will be rewarded for your services, be it in Heaven or here on this Earth.

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@merpreb

@reibur1951- You are absolutely right, what goes around comes around. Someday you will be rewarded for your services, be it in Heaven or here on this Earth.

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@merpreb You are right. We tend to make our heaven here on earth through our decisions and actions.

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Wow way behind - he had an eruption on this right shoulder blade - had a 10 treatment for it and it responded well without breking open thank goodness it looked as if it could - but wound care only ordered sent 14 gauze pads, some tape and Iodosorb to be sent to house for me to care for it - they had sent a partial tube home with us - I had some gauze pads from radiology so it worked out okay but not if ithe new one busted oprn as the armpit was was still nasty for while it still has a small are but much better than was his last radiation treatment was in Mar 17th thereabouts and had 1st week in April had CT's/Labs & dr. was to have Keytruda infusion but had a new lump just over the radiated so Dr. said No his Left arm swells because of the radiation in the armpits area. (they done an ultrasound on the day too to check for blood clots) They biopsied the new one it had cancer cells they were doing conference on how to proceed there was a new clinical study to start May 28/29th but he is unable to participate as he has 15+ lumps around the shoulder blade one down the left side to the waist all are growing various sizes from a quarter to a dot and turning beet red. Was down today was to start paperwork for the clinical but Dr. was afraid to wait till the study was to start . they were able to fit him in for an infusion today instead of waiting till next week started him on Gemcitabine Back for infusion on 5/22 and then Labs/dr/infusion on 6/5 its a harsher chemo with more side effecs will see how it goes if it will help.

STarted on trying to get out of here but not sure how will go I can't save restore the old house so it will be demolish and rebuilt - awaiiiington approval of an Agricultural commercial loan on the 64.5A I will sell my soul to the devil to get out of here... been cleaning it up a trucker friend has spent a month and 2 weeks in Feb/April helping to cut up the old tractor, truck frames and whatever else we walk into its only 5.3A but it seems alot more with all the crap thrown around.... piing it up so when prices go up will haul into scrape yard.

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@reibur1951

Wow way behind - he had an eruption on this right shoulder blade - had a 10 treatment for it and it responded well without breking open thank goodness it looked as if it could - but wound care only ordered sent 14 gauze pads, some tape and Iodosorb to be sent to house for me to care for it - they had sent a partial tube home with us - I had some gauze pads from radiology so it worked out okay but not if ithe new one busted oprn as the armpit was was still nasty for while it still has a small are but much better than was his last radiation treatment was in Mar 17th thereabouts and had 1st week in April had CT's/Labs & dr. was to have Keytruda infusion but had a new lump just over the radiated so Dr. said No his Left arm swells because of the radiation in the armpits area. (they done an ultrasound on the day too to check for blood clots) They biopsied the new one it had cancer cells they were doing conference on how to proceed there was a new clinical study to start May 28/29th but he is unable to participate as he has 15+ lumps around the shoulder blade one down the left side to the waist all are growing various sizes from a quarter to a dot and turning beet red. Was down today was to start paperwork for the clinical but Dr. was afraid to wait till the study was to start . they were able to fit him in for an infusion today instead of waiting till next week started him on Gemcitabine Back for infusion on 5/22 and then Labs/dr/infusion on 6/5 its a harsher chemo with more side effecs will see how it goes if it will help.

STarted on trying to get out of here but not sure how will go I can't save restore the old house so it will be demolish and rebuilt - awaiiiington approval of an Agricultural commercial loan on the 64.5A I will sell my soul to the devil to get out of here... been cleaning it up a trucker friend has spent a month and 2 weeks in Feb/April helping to cut up the old tractor, truck frames and whatever else we walk into its only 5.3A but it seems alot more with all the crap thrown around.... piing it up so when prices go up will haul into scrape yard.

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It's good to hear from you, @reibur1951. It sounds as if you are continuing to help your friend and doing an awesome job as well! Once again, he is so fortunate to have you as his advocate. I hope the new chemo will help without too many harsh side-effects.

So, you will be demolishing the old house and rebuilding it? It sounds like quite a project, but you seem to be up to major projects. I'm glad to hear that you have a friend to help you with the clean-up process.

I hope your friend has some reduction in his eruptions/lumps. That sounds so painful and uncomfortable. Does he have problems with sleep?

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