About ready to scream, been bad month

Posted by reibur1951 @reibur1951, Fri, Jul 5 7:37pm

P let the lavender piton Siamese out on the 2nd we both walked the yard i did till could do no more Monday1st i woke up with shoulder hurting and it got where could barely move it event o get dress was a chore – any way to hunt the kitten he decided tiller had to be started in the tall gras wrapped the tines up good with the grass and the cable from the satellite dish to bedroom tv argued with direct-tv about what was wrong they would not accept that i knew a well bent if not broken cable repairman came out on Thursday 3rd and decided to screw it to the side of the mobile home – and right through the electrical wiring for the offset had to call P’s brother-in-law in for re-enforcement as I wanted it repaired properly right – as we had to be in Indy on the 5th I was going to cancel if not repaired right do not need an electrical fire and lose what little i got and my genealogy records trailer would be no loss really its a piece of s–t 1978 falling apart would be faster excuse to get out of here to better accommodations but not way to do it …. supervised he fixed it properly… hauled a load of scrap off and found someone to help cut up heavier stuff so better $$ out of it – got one hugh homemade fork lift gone that has sit out in front yard since 2016…. Friday 28th was bad i sat in hare and semi cried all day think the whole year month hit been a year since RUss died (June 28th)… Sat 29th went to town and the van/car vibrate more than usual and very different so called P’s brother-in-law to test drive he did not have to – – passer side tires had flat spots – – drivers side major problem the wire cord was showing out of tire and it had busted through on the inside
could only see by taking pic with camera it was frayed splintered and looked like a “bad hair day” cancelled his ct’s scans out for Monday made them on the 3rd and then went back today – good news/bad news by ct’s the right Supraclavicular lymph node(s) are slowly shrinking don’t go back to radiologist tll 17th dec – left axillary lymph node in armpit has started to swell & their is one or two around the esophagus that is enlarged – he had he labs/dr/ infusion today he still wants to keep him on the Prembo KEYTRUDA® (pembrolizumab) | Anti–PD-1 Immunotherapy as everything else is looking good and main tumor too – ct’s in 6 to 9 weeks to see what is goign on not suree what plans is if still growing 🙁 The survey done – the variance passed and the appraisals done – just waiting to get into lawyer to deed off the 5a to the sister to see if there is a nice attitude and more help but i doubt both work – and she wanted the full 69a…. been a wet farm season a lot of ground not planted – the 69 is the 40 thats on sale hold did not get planted but its cash rent when get the 5a deed off I will know what i got left have been scouting out new/used newer model trucks too and start on my house in culver its 114+ i think its beeter try to make a part of it livable rather than buy more property but cross that bridge when get there or find place to rent but will have to where we can take the doxie and cat…. P’s birthday Sunday will be 58… Sep/Oct will be 3 years when it all started with him seems like yeasterday… I am hanging in maybe just by a thread buy i am hanging on tight I know God will provide

@reibur1951 So sorry to hear all of that together- not exactly a hot dogs & lemonade month! Sending a hug & a prayer from here.

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Thanks life is a bowl of cherries…. f you do not buckle under you do survive it could be worse Alive and still kicking 🙂

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Sending good thoughts and prayers your way. At least you are doing what you can. God bless you.

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I think everyone here can relate to needing to vent. Being the caregiver is hard!! When you are responsible to keep the life raft afloat, and things start to run amok it can be overwhelming. I know you said you are hanging by a thread, but tie knot in that thread and hang on. I know it seems trite, but it is heartfelt to say, when you look back, you will be glad you did. Thinking of you.

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@reibur1951

Thanks life is a bowl of cherries…. f you do not buckle under you do survive it could be worse Alive and still kicking 🙂

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Hello @reibur1951

As it has been about a month since you last posted, I was thinking about you and wondering how you are doing. How are the property and vehicle matters coming along? I hope that you made it through the anniversary of Russ' death OK, anniversary's like that can be difficult.

I was glad to hear that your son's friend had some good news but sorry to hear of some of the lymph node enlargement. How is he doing now?

I'm looking forward to hearing from you again.

Liked by bluelagoon

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Update Synopsis as Not sure what posted this summer… friends neck lymph node started growing in Jan. by March really bothering him tried a clinical study of chemo for a few weeks but was still growing by late April when decided to do radiation & genomic testing 10 radiation treatments in May and nothing came of the genomic testing for markers what ever was off the Keytruda during radiation and then went back on it Oct 2nd CT scans brought bad news on the 7th that the lymph node in armpit started growing and one in the chest area these were original old ones – the neck lymph node remained same as the July Ct scans and under control the main tumor has not changed thus far since the end of the 1st clinical study in April 2018 when he began the Keytruda only all other lymph nodes remain stable and unchanged… on the 7th the Keytruda could not be given because of the CT results was told a harsh treatment & possibly keytruda too or that a clinical study was available ( Ant-IDO-1 Agent maybe combined with Anti-PDL-1) it’s a Pahse 1a/1b and last resort would be radiation… Chose the clinical study Eli Lilly it is 10 weeks with on Thursdays and then there are 3 times we have to go back on Friday for blood testing ekg and the 3rd Friday a biopsy… signed papers on the 7th today (18th) we went back for the labs tests, biopsy and ct scan of the abdomen and pelvis … .

Thursday 24th we start in oral dosing with infusion, 8 hour post blood draw and go back of Friday 25th for blood draw oral dosing and ekg then next to weeks only the labs and oral …..

Been while since posted… summer went way to fast… been cleaning up 5.3 acres a long .ways to go… things finally settled the daughter & husband got her 5A but had to get a variance so could keep farm land frontage nothing ever has been simple bu t went through without question… sale of 40A cent through on Sep 11 and went got new vehicle 2019 GMC Sierra 1500 Elevation series a 4by4 did not have it but 4 days someone keyed/scratched the drivers side from drivers door to taillight .had to totally repaint that side… thus can not be Ziebarted till late December. its paid for in full going to stick it out here another winter if can and put money into restoring my house… me i am hanging in sometimes by a thread i think turned another year older on Sunday trucker friend came in helped us get dyer out of garage/barn not attached to trailer into laundry/furnace room so will provide extra heat when ran and another problem solved that's been on going for 3 years but his family would not help solve… God will provide and guide

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