Connect
About ready to scream, been bad month
P let the lavender piton Siamese out on the 2nd we both walked the yard i did till could do no more Monday1st i woke up with shoulder hurting and it got where could barely move it event o get dress was a chore - any way to hunt the kitten he decided tiller had to be started in the tall gras wrapped the tines up good with the grass and the cable from the satellite dish to bedroom tv argued with direct-tv about what was wrong they would not accept that i knew a well bent if not broken cable repairman came out on Thursday 3rd and decided to screw it to the side of the mobile home - and right through the electrical wiring for the offset had to call P's brother-in-law in for re-enforcement as I wanted it repaired properly right - as we had to be in Indy on the 5th I was going to cancel if not repaired right do not need an electrical fire and lose what little i got and my genealogy records trailer would be no loss really its a piece of s--t 1978 falling apart would be faster excuse to get out of here to better accommodations but not way to do it .... supervised he fixed it properly... hauled a load of scrap off and found someone to help cut up heavier stuff so better $$ out of it - got one hugh homemade fork lift gone that has sit out in front yard since 2016.... Friday 28th was bad i sat in hare and semi cried all day think the whole year month hit been a year since RUss died (June 28th)... Sat 29th went to town and the van/car vibrate more than usual and very different so called P's brother-in-law to test drive he did not have to - - passer side tires had flat spots - - drivers side major problem the wire cord was showing out of tire and it had busted through on the inside
could only see by taking pic with camera it was frayed splintered and looked like a "bad hair day" cancelled his ct's scans out for Monday made them on the 3rd and then went back today - good news/bad news by ct's the right Supraclavicular lymph node(s) are slowly shrinking don't go back to radiologist tll 17th dec - left axillary lymph node in armpit has started to swell & their is one or two around the esophagus that is enlarged - he had he labs/dr/ infusion today he still wants to keep him on the Prembo KEYTRUDA® (pembrolizumab) | Anti–PD-1 Immunotherapy as everything else is looking good and main tumor too - ct's in 6 to 9 weeks to see what is goign on not suree what plans is if still growing 🙁 The survey done - the variance passed and the appraisals done - just waiting to get into lawyer to deed off the 5a to the sister to see if there is a nice attitude and more help but i doubt both work - and she wanted the full 69a.... been a wet farm season a lot of ground not planted - the 69 is the 40 thats on sale hold did not get planted but its cash rent when get the 5a deed off I will know what i got left have been scouting out new/used newer model trucks too and start on my house in culver its 114+ i think its beeter try to make a part of it livable rather than buy more property but cross that bridge when get there or find place to rent but will have to where we can take the doxie and cat.... P's birthday Sunday will be 58... Sep/Oct will be 3 years when it all started with him seems like yeasterday... I am hanging in maybe just by a thread buy i am hanging on tight I know God will provide
Like
Helpful
HugInterested in more discussions like this? Go to the Lung Cancer Support Group.
Connect
A great wrap to put around gauge or any pads is Vetrap (bandaging tape, which is used on horses ankles. Works better than any tape and does not tear skin or break it down.
-
Like -
Helpful -
Hug
3 ReactionsAlso vet wrap which is kind of like Koban, comes in wide or narrow and is less expensive. Here’s a hint. You don’t have to stretch it much, it really just sticks to itself. Some brands are a rougher texture than others and more irritating to that area. After you wrap it it, can he tolerate a tank top over the bandages?
-
Like -
Helpful -
Hug
2 ReactionsNo problem. Used it on husband who became a quadriplegic and his skin was very sensitive. Bought it at mills fleet for $1.74. Walmart has it also but 3.99.
-
Like -
Helpful -
Hug
2 ReactionsHello @reibur1951, thank you for checking in with an update. I'm sorry to hear about the new cancer site, but I admire the work you are doing to keep it clean and covered. You are a real hero to your friend. Does he live far from you?
-
Like -
Helpful -
Hug
2 ReactionsI am not sure I am a hero - just trying to do right by him where his 3 sisters (1 half) and 2 brother-in-laws (1 half) have lacked the last three years - they have not made effort to help take him io I U Medical / SImon Cancer Center - I promised his dad and his mother if she understood anything that was going on with I would stick by him to the end it will be 3 years come Oct 25th it been a long road...
Have him here with me I don't think could handle it otherwise... hopefully can be out of this antiquated dilapidated 1975 motile home was just trying to be cautious main thing was to get better vehicle - which proved correct thing to do been 20 plus trips fro the third clinical and will be 12-13 in total for the radiation since I got it its turned over 9000+ and it was around 2000+ as it was used bb one of the employees and a demo - by time radiation is done it will be 12,000 miles on it I love it -
Thanks @auntieoakley, the Koban even did not help I wrapped it around it near bottom to catch the bottom edge of the pads , then done the X-crossing across the the pads and then wrapped middle ways, the gauze stretch band they provides was under neath the koban - and crossed it over his left shoulder - the pads still worked out of it - at last they are providing the syringes of saline, gauze pads and stretch bands - the koban was my ideas guess its the arm movement lifting up down etc causing hte problem - They will have to come up with some more saline solution and gauze pads on Monday.
-
Like -
Helpful -
Hug
2 ReactionsUpdate The radiologist seems happy with he treatment for the auxiliary lymph node tho it still but it is still looks raunchy looking and smelling but it has diminished in size
May be crazy - friends report was the node on the shoulder is growing... gee i could see that it has doubled in size has a yellow center... options given was could watch for while or could could radiate immediately and with both continue Ketruda (prembro) friend was indecisive but i pushed buttons I can not see allowing it to continue to grow and rupture as this one has. Radiation starts again as soon as assessment is done - the one just treated went from small - to golf ball size sometime in between started to open up to baseball size and from Jan 31st to Feb 4th to over softball size and completely exploded open... . hoping the assessment takes place Monday afternoon when go down for the labs/dr/ Ketruda (prembro) infusion they stopped that in Sept because the lymph node was starting to grown and began a 3rd clinical study which failed options then was to go on harsh chemo or layoff see what happened for a couple of months with possible radiation or the clinical study
Monday's appointment for labs/dr./infusion starts at 7;50 a.m. which means a wake up call at 3 a.m. and headed for Indy by 4 a.m. Today's appointment was for 9:30 this includes the every 2 hour alarms for fire the wood stove... so little sleep the last 2 weeks and for the next few when this all starts over again... but I will have later appointment for the next labs/dr./infusion in 3 weeks.
-
Like -
Helpful -
Hug
3 Reactions@reibur1951 I so admire your persistence and the good care you give to your friend. Wishing you both well.
Will you post an update after Monday's appointment?
-
Like -
Helpful -
Hug
1 ReactionYes I just imagine it will will be lads - dr. visit and the infusion as the radiologist said he could do both the same time this time around Ketruda (prembro) - the way its growing and the other grew so fast and it is in the same lymph glands area I can not see just watching it as the infusion will be three weeks apart that to me just spells trouble and same problem dealing with now - an open wound
-
Like -
Helpful -
Hug
2 Reactions@reibur1951- Good morning. We haven't spoken in a while.I don't know how you are doing what you are doing for your friend. All of us should be so lucky. I'm wondering how you are sleeping and your friend too. DO you need to be up during the night with him?
-
Like -
Helpful -
Hug
2 ReactionsYes, I will do a update.... I saw my cardiologist yesterday... Says I'm good for another five years... Till I'm 90 at least. Nancy
-
Like -
Helpful -
Hug
3 Reactions