Three Reasons Why Getting a Second Opinion Is Worth It

Jul 6, 2017 | Mayo Clinic Transplant Staff | @mayoclinictransplantstaff | Comments (11)

Getting a second opinion when you’ve been told you need a transplant takes time, travel and money, so why do it?

A new Mayo Clinic study shows that it just may be worth your while.

The study has found that more than 1 in 5 patients referred for a second opinion—for many different conditions—may have been incorrectly diagnosed by their health care providers.

2017-06-22 Second opinion

James Naessens, SC.D., of Mayo Clinic’s campus in Rochester, led the study that looked at medical records for 286 patients whose healthcare providers referred them to Mayo Clinic for a second opinion.

Dr. Naessens found that 21 percent of the time, the final diagnosis was completely different from the original diagnosis. Sixty-six percent of the time, the second diagnosis further clarified or better defined the original diagnosis. And 12 percent of the time, the second diagnosis confirmed the first one.

Why, especially, would it be beneficial to get a second opinion if your doctor has recommended you need a transplant? We chatted with Harmeet Malhi, M.B.B.S., transplant hepatologist in Mayo Clinic’s Transplant Center, and this is what she said:

  1. To make sure you have the right diagnosis. Malhi explained that just as Dr. Naessens’ study found, it is really worthwhile to ensure your diagnosis is correct. In fact, just recently, she said, she saw a patient who arrived with one diagnosis and left with a completely different one.
  2. To get another potential chance if you were turned down. Transplant centers throughout the country do things differently than one another, Dr. Malhi says, making it wise to check with another center for a second opinion if one center tells you “no.”
  3. To be at a center of expertise for your specific condition. Seeking an evaluation at another transplant center for your particular case, especially if it is complicated, may make transplant a possibility. Transplant centers tend to have their “specialty areas,” or conditions they excel at treating. For example, Mayo Clinic’s liver transplant program has special expertise in bile duct cancer as well as transplanting patients who also need bariatric surgery for severe obesity. To make an informed decision about what center to see for your condition, visit the Scientific Registry for Transplant Recipients, which provides information on outcomes at transplant centers nationwide.

Therefore, if resources allow for a second evaluation and listing, it might be worth considering.

If you decide to pursue this, however, how would you even tell your doctor that you want to get a second opinion? Wouldn’t that be just plain uncouth?

“I don’t think it should be awkward to speak to your doctor about getting a second opinion,” says Dr. Malhi. “It should be done very openly. I don’t think it should be done in a secretive manner. I hope most physicians would feel comfortable with their patients seeking a second opinion.”

What has been your experience with getting a second opinion? If you have received a second opinion, what advice would you offer for broaching the subject with your provider?

Interested in more newsfeed posts like this? Go to the Transplant blog.

@kanaazpereira

Thank you, @rosemarya.
Hello @beagen06,

If you would like to start a discussion in the Heart & Blood Health Group, here are some suggestions:

1. Click the group that interests you, in this case, Heart & Blood Health.
2. Click on the “START A DISCUSSION” button to start a new discussion.
3. Give your discussion a title (maximum of 70 characters) that briefly describes your message and will help others who may want to participate find it.
4. Type your message in the field provided and then click “CREATE DISCUSSION” to post your discussion in the group. You will then receive email alerts when someone posts in the discussion you created.

You may also wish to join these existing discussions about transcatheter aortic valve replacement (TAVR), and leaky aortic valve in the Heart & Blood Health group:
– Aortic Valve Replacement: https://connect.mayoclinic.org/discussion/aortic-valve-replacment/
– My heart Dr talking about doing a TARV stent https://connect.mayoclinic.org/discussion/my-heart-dr-talking-about-doing-a-tarv-stent-i-would-love/
– Aortic Stenosis & Valve Replacement:: https://connect.mayoclinic.org/discussion/aortic-valve-calcification/

Here’s a video by Dr. Pochettino, an aortic surgery expert at Mayo Clinic, explaining what patients need to know about aortic surgery: https://www.youtube.com/watch?v=s3plTqJ9E4s

In the meantime, here’s some information on transcatheter aortic valve replacement (TAVR) http://www.mayoclinic.org/tests-procedures/transcatheter-aortic-valve-replacement/basics/definition/prc-20021101, and I'm tagging @cynthia2017 @hopeful33250 @jillheart @ch246cf10 @judytru @wandering to bring them into the conversation, as well.

@beagen06, are there certain times in the day when you notice you are short of breath? Did your doctor explain the results of the Echo?
And, please let me know if you have any questions about getting started on Connect or posting a message.

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Kanaaz, Thank you for you response and all the info, it will keep me busy for quite some time. In answer to your questions it was shortness of breath that sent me to my heart doctor 3 or 4 years ago and shortness of breath that brought me back several weeks ago. I was given blood thinners and more blood pressure meds 3-4 years ago and during my annual check up I mentioned the breathing was no better and maybe worse. Hence the talk of surgery and TARV procedure..pretty scary. I've had the echo and will see the doctor about the results next week. Thanks again for your help and advice. LaRRY b

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