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Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.
Public blog
Resources
Resources for patients with suspected hypermobility syndromes, including hypermobile Ehlers -Danlos syndrome (hEDS) and Hypermobile Syndrome Disorder (HSD).
Unless otherwise stated, Mayo Clinic does not sponsor or endorse these websites, nor does Mayo Clinic guarantee the accuracy of the information contained on these websites. These websites are provided for general education and information only and should not be relied upon for personal diagnosis or treatment. If you have questions about a medical condition, always talk with your healthcare provider.
Ehlers-Danlos Society
The Ehlers-Danlos Society is a trusted global resource for individuals, caregivers and healthcare professionals, on topics on Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions. Please see the below list of helpful sections of the site below:
hEDS - The Ehlers Danlos Society
HSD - The Ehlers Danlos Society
Genetics and Inheritance of EDS and HSD - The Ehlers Danlos Society
Management and Care Guidelines - The Ehlers Danlos Society
Healthcare Professionals Directory - The Ehlers Danlos Society
Affiliates and Support Groups Archive - The Ehlers Danlos Society
Helpful Books
Disjointed Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
by Diana Jovin (Editor) with Paldeep Atwal M.D. - Richard Barnum M.D. - Linda Bluestein M.D. - Pradeep Chopra M.D - Tania Dempsey M.D. - Shanda Dorff M.D. - Matthew Hamilton M.D. - Kristin Herman M.D. (Author), - Myles Koby M.D. - Petra Klinge M.D. - Anne Maitland M.D. - Andrew J. Maxwell M.D. - John Mitakides D.D.S. - Alan G. Pocinki M.D. - Lila Rosenthal M.D. (Author), - David Saperstein M.D. - Jill Schofield M.D. - Jordan Tishler M.D. and more..
Podcasts
Bendy Bodies: Your Guide to Hypermobility Health and EDS
Videos
The Benefits of a Good Night's Sleep: Describes the health benefits of a good night rest and includes tips about sleep hygiene such as sleeping environment and sleep schedule.
Improving Sleep: Explains sleep habits that can help people fall asleep, stay asleep and improve the quality of their sleep.
Living Life with Chronic Pain: | Offers suggestions for living a full and satisfying life despite chronic pain.
How Chronic Pain Works: Taking Charge of Chronic Pain:
Relaxation Abdominal Breathing : Provides information about abdominal breathing using audio prompting. The purpose is to offer practical techniques to manage stress and promote relaxation.
Relaxation and Relaxed Breathing : | Explains how to use gentle, paced breathing to help relax in times of distress.
Relaxation for your Mind and Body: Walks the listener through four ways to relax the body and mind. Included are Abdominal Breathing, Passive Muscle Relaxation, two Guided Imagery exercises and a Progressive Muscle Relaxation. The purpose is to offer practical techniques to manage stress and promote relaxation.
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