Ehlers-Danlos Syndrome banner

Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.

Public blog

The Ehlers-Danlos Syndrome (EDS) Clinic on Mayo Clinic's campus in Jacksonville, Florida, offers comprehensive evaluation by doctors with expertise in caring for people with every form of EDS, including the rare and complex — EDS of known genetic causes, hypermobile EDS and hypermobility spectrum disorders (HSD). They evaluate, diagnose and develop care plans tailored to the needs of each person. It's important to be evaluated by an expert in this disease. EDS is rare and can be hard to diagnose, as its signs and symptoms may overlap with other conditions. Getting an accurate diagnosis as soon as possible will help you avoid further complications.

Meet the Care Team

Ashley Zeman MD      Shilpa Gajarawala PA-C     Rachel Botella ARNP

               

Savannah Clark RN      Dustin Towers RN

 

 

 

 

 

Blog Guidelines

  • Be respectful and kind. Disagreements are fine, but mutual respect is a must.
  • Realize that sarcasm and joking will often be misunderstood.
  • Be careful about giving out medical advice — sharing your own experience is fine, but don't tell other members what they should do.
  • Know that abusive or offensive behavior is not tolerated.
    • Profanity, vulgarity and abusive language are out-of-bounds. Personal attacks against members or health care providers are not acceptable. Such posts will be removed.

See the complete Community Guidelines.

  • Keep in mind that Connect is a public forum.
    • You are not required to use your full name or real name when posting.
    • Feel free to introduce and talk about yourself. But for your safety and privacy, do not post personal information such as phone numbers, addresses, social security numbers or any other private information.
    • Remove personal identifying information from images before uploading.
    • Personal contact information on the public forum will be removed. You can use secure private messaging.
    • Do not post personal information of other people.
    • Keep your password confidential. Don’t share it with anyone.

Disclaimer

All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.