Facing it with Connect: Meet @markymarkfl

Oct 5, 2023 | Teresa, Volunteer Mentor | @hopeful33250 | Comments (14)

Markymarkfl, member spotlight

TERESA: What brought you to Mayo Clinic Connect? 

@markymarkfl: I was looking for an interactive forum with quality, high-traffic discussions where I could learn more about my pancreatic cancer treatment options and other patient experiences.

TERESA: What motivates you to take part in the community?

@markymarkfl: I learn more from reading different posts on Mayo Clinic Connect than I could ever offer in return. But I don’t let that stop me from trying to pay it back. I’ve been very blessed in many respects since my diagnosis. I want to give other people hope, and when possible, information that empowers them to be effective advocates for their own care. I’ve received a few truly moving thank-you’s that keep me inspired and engaged.

TERESA: What about Mayo Clinic Connect makes you feel comfortable to share and to be open with the community?

@markymarkfl: The openness and anonymity with no pretenses or judgment. Everyone has a close connection to cancer and is willing to share openly and honestly. Sometimes it borders on TMI (too much information), but that keeps it real. The moderators and volunteer mentors do a great job too!

TERESA: What groups do you participate in?

@markymarkfl: I’m active in the Pancreatic Cancer support group, but sometimes lurk in the other cancer, neuropathy, and heart-related groups to learn about other conditions affecting my family.

TERESA: Tell us about a meaningful moment on Mayo Clinic Connect.

@markymarkfl: I often reflect on the number of people who have contributed to the cancer forums but are no longer with us, but I’m extremely grateful for those who are cured yet stick around to share their wisdom. Member @stageivsurvivor is one whose every post is pure gold, including (paraphrased) what has become my mantra: “I’d rather have neuropathy than cancer.” I have adopted that mindset as the new normal as long as my treatment is working.

TERESA: What surprised you the most about Mayo Clinic Connect?

@markymarkfl: The geographic diversity, the commonality of experiences, and the large number of well-informed members who do their homework and take the time to share.

TERESA: What energizes you, or how do you find balance in your life?

@markymarkfl: I’m terrible at balancing things, but God and a patient, loving family help me focus on priorities. Coffee, B-12, and hunger to learn provide most of the energy.

TERESA: Tell us about your favorite pastime or activity.

@markymarkfl: I love board sports (surfing, skateboarding, snowboarding) and music. I’ve surfed in 7 countries, snowboarded in 11 states plus Chile, and attended hundreds of rock concerts.

TERESA: Do you have a favorite quote, life motto or personal mantra?

@markymarkfl: Two sets of song lyrics pop into my head at this stage of life:

Face it like a man or face it like a wimp, but either way, you’re facing it.
- Armored Saint, “Muscle Memory” (quoting a terminally ill friend of the band)

Some are born to move the world
To live their fantasies,
But most of us just dream about
The things we'd like to be.
Sadder still to watch it die
Than never to have known it;
For you, the blind who once could see,
The bell tolls for thee.”
- Rush, “Losing It”

TERESA: What food can you simply not resist?

@markymarkfl: Sweet tropical ceviche, Argentine churrasco with chimichurri, rice, beans, fried plantains, flan, and a fruit smoothie are my go-to meals whenever possible.

TERESA: What do you love about where you live or vacation?

@markymarkfl: Nature, especially water (including snow), brings me peace. I visit Costa Rica as often as I can. Florida is great, but I could live without hurricanes, sharks, and alligators.

TERESA: Puppies or kittens?

@markymarkfl: Puppies of all ages and sizes!

Member Spotlights feature interviews with fellow Mayo Clinic Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

See more Member Spotlights.

Interested in more newsfeed posts like this? Go to the About Connect: Who, What & Why blog.

Thank you for sharing your life and hope!
Thank for reminding us all of the great treasure there is in our Connect community.
Press on!

REPLY

Loved the quote from Rush - made me cry a little for some reason. I too had the same quite for awhile “I’d rather have neuropathy than cancer”; thankfully 2 months after ending chemo it went away. I applaud your bravery if you are still dealing with it. I also get a sense of calm from the ocean; we do live close by and even with all the political muck in California I dint think we could ever move away. God bless!

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Thank you for sharing your journey, thought and feelings. You have truly been an inspiration to me for helping my husband navigate through this horrible disease. We wish you nothing but more good days than bad and the continued strength to enjoy life to the fullest. God bless, always.

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It's great to learn a little more about you, @markymarkfl -- you sound like a fascinating and fun person who contributes a lot to the life of everyone around you (we know that you do here on the site).

Thank you for being so generous with your time here -- for guiding those of us who are newer, not so knowledgeable, often scared... I fervently hope that *you're* posting as a longtime survivor in 10 or more years. Thanks again.

PS: That pic of you and your wife is wonderful. I hope for all the best for you and for everyone who cares about you.

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