Encouraging hope: Meet @lbrockme

Apr 23 8:00am | Teresa, Volunteer Mentor | @hopeful33250 | Comments (28)

Member spotlight: Meet @lbrockme

TERESA: What motivates you to take part in Mayo Clinic Connect?

@lbrockme: My desire to encourage hope in others is what motivates me to be a part of the Mayo Clinic Connect community. As an individual who has dealt with cancer and chronic illnesses myself, as well as in others I have cared for, I know personally how difficult and dark those times can be. I understand how overwhelming and fearful things can feel at times. It can be so empowering and helpful to hear a hope filled sentence or two. That continues to motivate me and it encourages me in my journey with health challenges as well.

TERESA: What about Mayo Clinic Connect makes you feel comfortable to share and to be open with the community?

@lbrockme: The community interaction and the real-life statements just seem to compel you to share, and be just as open as others are. Hearing someone write their concerns and even their unspoken fears is moving. I have learned over the years that the weight of unresolved trauma and crisis is really just emotions and their painful residue from a lack of being heard and empowered in the process. That is a very hard circumstance. Everyone wants to be heard. I hope that I can be someone that makes them feel that they are heard.

TERESA: What support groups do you participate in?

@lbrockme: I participate in the Cancer, Thyroid Cancer, and Kidney Cancer support groups, as well as the Kidney & Bladder support group for chronic kidney disease and the Caregivers support group, right now. I also take part in any conversation when someone @mentions me to bring me into the discussion. 

TERESA: Tell us about a meaningful moment on Mayo Clinic Connect.

@lbrockme: As a crisis and trauma trained chaplain who is also an instructor in crisis and chaplain training, it was especially motivating for me to be able to identify the difficulties individuals experience when facing a new diagnosis, and recognize them as crisis and trauma. My health prevents me from being actively out in the field, but I can hear the escalating emotions in a new post and it is so rewarding to have them message you and share how much better they feel after I have shared just a few words with them, normalizing their responses and encouraging their hope. It is healing for both of us.

Several years ago, I was forced to physically retire from a rewarding position leading a large program serving underserved people in my community when I was diagnosed with a new cancer and a projected long-term recovery. I wondered if my skills would ever be useful again. Would my three different cancers, the resulting kidney failure and heart failure, take away all opportunity to serve others as well? I am so blessed to be a chaplain, to instruct others in how to support those in a crisis and to provide some one-on-one support to people experiencing what I have experienced. Mayo Clinic Connect allows me to do so.

TERESA: What surprised you the most about Mayo Clinic Connect?

@lbrockme: It surprised me that Connect is so simple, making it easy to reach out and support others within a unique community.

TERESA: What energizes you, or how do you find balance in your life?

@lbrockme: My faith is a large part of what helps me balance my life. It brings hope. It energizes me to bring hope to others that are wavering in uncertain times of crisis. Giving back to others and filling them with hope is very valuable to me. That’s why I also enjoy writing and have authored a few books. I am most proud of the self care book, Within the Fire, for first responders and others who serve people in crisis. It is humbling and invigorating to invest in others.

TERESA: Tell us about your favorite pastime or activity.

@lbrockme: My favorite times in life are with my family, especially my grandchildren. I love thinking of creative things that provide learning and fun, teaching them to help others, support each other and be the best “them” possible. For example, during the pandemic when they were out of school for months, I created a Secret Spy Agency… just to keep them busy and connected. I planned weekly tasks that were fun and taught them something, like decoding a secret message through the book on the native “CodeTalkers” . They each got a book and a message in code! Or the time we saved the world from ”no ice” through using our skills to solve the mystery, and the reward was a snow cone machine for each family! Great memories! Great fun! We celebrate each summer with a “Cousin Camp” with all the cousins and lots of fun, crafts and games. Even though I have been told in the past my time was limited, I am making memories and having an impact now in the lives of these children as best I can. I guess it is my legacy.

TERESA: Do you have a favorite quote, life motto or personal mantra?

@lbrockme: Jeremiah 29:11 is my favorite scripture and is the focus I keep… “I know the plans I have for you, declares the Lord

I believe He does have a plan and I trust Him with it. He’s not running around going “Oh look what she has gotten herself into now, whatever will I do? !” Right? I was told 30 years ago my first cancer was terminal and here I am. God has a plan.

TERESA: What do you appreciate the most in your friends?

@lbrockme: Friends are my family.

It’s hard being a friend when you have a chronic illness, but what came to mind with this question was the experience when my husband and I had COVID. We were very sick and confined to bed, taking turns to go downstairs to get nourishment.

Our friends bought us meals, but most touching was all of their ethnic-family-healing secrets! They would be almost apologetic, but they cared enough to share their family heritage and long time traditions in healing. So touching! That’s friendship!

TERESA: What food can you simply not resist?

@lbrockme: Ice cream. I lived on frozen yogurt for almost 6 months! Cancer has to have some perks! (That’s our inside joke!)

TERESA: What do you love about where you live or vacation?

@lbrockme: I love going places with my husband. Spending time wherever we are. But our favorite is taking a road trip. We have driven across the United States, sometimes even with me still recovering. Times of long conversations, or quiet moments, or singing to the music, looking at the views, just being together or sometimes me dozing off while he drives. They truly have been healing times for me, actually for us both. With illness like cancer, your family struggles just as much as you do, only different.

TERESA: Puppies or kittens?

@lbrockme: Babies!

Member Spotlights feature interviews with fellow Mayo Clinic Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

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@lbrockme, I am beginning my day, and your spotlight is my first reading for today! The meaning of title, "Encouraging Hope", is fully evident when reading your story. I think your ability to hear escalating emotions in the written messages from members..and to act on them is one of the most precious gifts than anyone can offer.
Thank you for participating in this spotlight feature.

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Amazing and beautiful woman!
Thank you for sharing your story, your faith, your insights.
I can identify with your loving goal of what I call, “being useful”! You really seem to be in just the right place to use your many talents and your Loving Spirit! I am inspired!
To share my story: I was in a helping profession for 34 years, doing what I loved and getting paid for it! I retired, then had some medical challenges that required me to give up even my part time private practice. I prayed and meditated about what my Higher Power’s will for me was in this phase of my life.
The answer I received was that I was no longer to have a role or a title, a position, or a “desk”, or my name on a door. What transpired was that He sent people to me: in the grocery store, in a retirement home, in my twelve step Program, in my family, among my friends and neighbors. My journey was to keep developing spiritually and keep an open heart, be ready to serve, and share my gratitude for my amazingly abundant life.
The journey has taught me to expect miracles, to have joy in precious, holy moments, and to be closer to my Higher power! My heart is full!
I love what Mother Teresa said, “ It’s not that we do great things. It’s that we do small things with great love!” I
Why, I can do that! When I do His will for me, I have joy, serenity, Peace, gratitude!
Life is good! God is good!

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@lbrockme Hi Lynne! Such an enlightening Spotlight. How wonderful that you found Connect to be a pathway for fulfilling your desire to give back and share your message of hope. Your expertise and knowledge on the importance of being heard as it relates to unresolved trauma and crisis was very helpful to process. Thanks for sharing.

Best of luck in your health journey, and keep being Super Grandma! (Wow, mental notes to self)

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I have been searching for this type of encouragement since January when my husband was diagnosed with multiple myeloma. Yesterday we learned he is resistant to standard chemo and he begins a new round of meds on Monday .

I feel socially isolated because I do not want to subject him to outside germs that would affect his immunity. After six months, people who showed initial signs of “being there “ are fading. They didn’t think it would be such a long haul.

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@rffreyberg

I have been searching for this type of encouragement since January when my husband was diagnosed with multiple myeloma. Yesterday we learned he is resistant to standard chemo and he begins a new round of meds on Monday .

I feel socially isolated because I do not want to subject him to outside germs that would affect his immunity. After six months, people who showed initial signs of “being there “ are fading. They didn’t think it would be such a long haul.

Jump to this post

Welcome to Connect, @rffreyberg. I know it’s not easy when you or a loved one is diagnosed with a conditions that changes the normal way of life. I’m one of those people too and it can feel socially isolating when trying to remain safe. However, with proper precautions such as wearing N-95 masks, avoiding larger crowds or even smaller groups in tight spaces, lots of handwashing or hand sanitizer, etc., we can live a fairly normal life.

We have a number of members in the forum who also have MM so you’ve come to the right place for support, encouragement and hope! I’d like to introduce you to @gingerw who is a fellow mentor in Connect, along with @vera101 @ranger358 and @heathermcfarland who share their experiences in this discussion. Feel free to pop into the discussion!

https://connect.mayoclinic.org/discussion/a-summary-of-my-multiple-myeloma-journey/

I hope your husband does well with his new round of meds coming up on Monday. What was the previous treatment plan that wasn’t working for him?

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Be strong, it's never easy especially early on, but when I was diagnosed with MM it was a struggle for me and my wife but we made sure that we followed the advice of my medical team(who were really supportive). Wearing a mask and staying away from crowds is the only way to grand waht my wife did, she took me on many scenic rides just to get me out of the house. I'm happy to say I survived all that and just had my one year post transplant and I'm still in remission. Thank God. I'm praying the same for your husband.

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@rffreyberg

I have been searching for this type of encouragement since January when my husband was diagnosed with multiple myeloma. Yesterday we learned he is resistant to standard chemo and he begins a new round of meds on Monday .

I feel socially isolated because I do not want to subject him to outside germs that would affect his immunity. After six months, people who showed initial signs of “being there “ are fading. They didn’t think it would be such a long haul.

Jump to this post

Oh, I so sorry to hear this. Welcome to Connect. Most of us really do " get it"! I remember during the height of Covid someone was asking how we were doing with the isolation... we thought , this is nothing new here for us. It's been our life off and on for years.
I found that media like this did allow connection. I also learned that I needed to reach out on occasion. That wasn't my comfort zone , and illness makes me want to isolate more , so I had to work on it.
We used to take long drives to get out of the house and see new scenery . Experiencing the wonder of creation , that awe , always put things in perspective for me.
Are there any fun things you enjoy together , that you can still do? It might take creativity!
I hope this weekend is a time of peace for you before the start of a new regime on Monday. In my prayers !

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@loribmt

Welcome to Connect, @rffreyberg. I know it’s not easy when you or a loved one is diagnosed with a conditions that changes the normal way of life. I’m one of those people too and it can feel socially isolating when trying to remain safe. However, with proper precautions such as wearing N-95 masks, avoiding larger crowds or even smaller groups in tight spaces, lots of handwashing or hand sanitizer, etc., we can live a fairly normal life.

We have a number of members in the forum who also have MM so you’ve come to the right place for support, encouragement and hope! I’d like to introduce you to @gingerw who is a fellow mentor in Connect, along with @vera101 @ranger358 and @heathermcfarland who share their experiences in this discussion. Feel free to pop into the discussion!

https://connect.mayoclinic.org/discussion/a-summary-of-my-multiple-myeloma-journey/

I hope your husband does well with his new round of meds coming up on Monday. What was the previous treatment plan that wasn’t working for him?

Jump to this post

Thank you, Lori!

His previous meds have been Lenalidomide, Darsalax and Revlimid.

Hoping for better results with a new round of meds!

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