Video Q&A about Adult Congenital Heart Disease

Wed, Aug 22, 2018
11:45am to 12:15pm CT

Description

Dr. Sabrina Phillips, a cardiologist, discusses and answers questions about congenital heart disease.

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I have occlusion of SVC syndrome. Been ballooned once Will stenting be a possible option? It has totally occluded again and developed collaterals. I get short of breath when I do anything that requires bending.

Please explain Left Ventricular Non-Compaction Cardiomyopathy

Hi @michelle39 @kelovich @hollybell21 @uconn @jmculhane1 @paulajahlers @neha4 @jhoffmanj @janicepike @wandikarnadi @ninimurphy @thiles @mehlisue @tkterrell @1949 @fayette @gitanjali @nancyirene @grward @gcatalfamo @dorothyma3 @graceuk16 @katiehuston @joannenz @bellheartmom @goodgrief16 @sascha2432, @ethanmcconkey,

I'd like to invite you to join us today, Wednesday, August 22 at 11:45am CT for a live Q&A about adult congenital heart disease with Drs. Sabrina Phillips and Christopher McLeod, cardiologists at Mayo Clinic's campus in Jacksonville, Florida.
Simply click View & Reply in the email notification for details and to sign-up.

Drs. Phillips and McLeod will answer questions live. Post your questions below, before and during the broadcast.
You can participate in the Video Q&A on Connect by returning to this page; the video will be shown at the top of the page.

Liked by susancarter

@kanaazpereira

Hi @michelle39 @kelovich @hollybell21 @uconn @jmculhane1 @paulajahlers @neha4 @jhoffmanj @janicepike @wandikarnadi @ninimurphy @thiles @mehlisue @tkterrell @1949 @fayette @gitanjali @nancyirene @grward @gcatalfamo @dorothyma3 @graceuk16 @katiehuston @joannenz @bellheartmom @goodgrief16 @sascha2432, @ethanmcconkey,

I'd like to invite you to join us today, Wednesday, August 22 at 11:45am CT for a live Q&A about adult congenital heart disease with Drs. Sabrina Phillips and Christopher McLeod, cardiologists at Mayo Clinic's campus in Jacksonville, Florida.
Simply click View & Reply in the email notification for details and to sign-up.

Drs. Phillips and McLeod will answer questions live. Post your questions below, before and during the broadcast.
You can participate in the Video Q&A on Connect by returning to this page; the video will be shown at the top of the page.

Jump to this post

How do I access the Video Q&A?

@kanaazpereira

Hi @michelle39 @kelovich @hollybell21 @uconn @jmculhane1 @paulajahlers @neha4 @jhoffmanj @janicepike @wandikarnadi @ninimurphy @thiles @mehlisue @tkterrell @1949 @fayette @gitanjali @nancyirene @grward @gcatalfamo @dorothyma3 @graceuk16 @katiehuston @joannenz @bellheartmom @goodgrief16 @sascha2432, @ethanmcconkey,

I'd like to invite you to join us today, Wednesday, August 22 at 11:45am CT for a live Q&A about adult congenital heart disease with Drs. Sabrina Phillips and Christopher McLeod, cardiologists at Mayo Clinic's campus in Jacksonville, Florida.
Simply click View & Reply in the email notification for details and to sign-up.

Drs. Phillips and McLeod will answer questions live. Post your questions below, before and during the broadcast.
You can participate in the Video Q&A on Connect by returning to this page; the video will be shown at the top of the page.

Jump to this post

Hi @kwaltrip,

The video Q&A is live, and you can view it on this page. It will also be archived for viewing at a later time on this Connect page. https://connect.mayoclinic.org/webinar/video-qa-about-adult-congenital-heart-disease/

Liked by kwaltrip

I missed answer to explanation of LVNC

Thank you for watching today’s Q&A. The video will be archived on this page for future viewing.
You may also be interested in joining other members who are talking about congenital heart disease and other heart-related conditions.

Ask your questions, share your story, connect and find support here:
https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

See upcoming and past Video Q&As here: https://connect.mayoclinic.org/webinars

I have a question. Can stiffening heart muscle be reversed so that it won’t develop into CHF?

@msbailey75 My heart muscles are stiffening, and enlarging. They quiver and vibrate as they contract and ease. On a 12-lead ECH, the signal from the left ventricle wall looks like a sawtooth edge. If you have what I have, a hereditary Gelsolin Amyloidosis or any other Amy… with cardiac involvement, right now the answer is no. All you can do is make sure to stay in the best physical shape you can, and relax a lot. Sometimes my tracing is more the shape of a small dome made of saw blades. The QRS is almost non-existent sometimes. There are some meds coming along. Read the Mayo Cardiac Amyloid line. https://bit.Ly/1w7j4j8 "Amyloid and Old Karl"

@msbailey75

I have a question. Can stiffening heart muscle be reversed so that it won’t develop into CHF?

Jump to this post

Hello @msbailey75,

Welcome to Mayo Clinic Connect – an online community where people can share experiences and ask each other questions about any health issue. Mayo Clinic experts also participate in the community through live Video Q&A sessions where they respond to questions posted before and during a video event. After the live event, we archive the video (on this page) for later viewing, and invite members to continue to connect and discuss with each other in the community. However, questions for the expert are closed after the event.

I'd like to invite you to explore more of Mayo Clinic Connect as I'm certain you will find some answers from the insights and experiences shared by members like you.
– Join these discussions in the Heart & Blood Health group:
Stiff Heart https://connect.mayoclinic.org/discussion/stiff-heart/
Stiff Heart – diastolic heart failure https://connect.mayoclinic.org/discussion/stiff-heart-diastolic-heart-failure/
– Follow the Heart & Blood Health group https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

Please let me know if there’s a particular topic you’d like to talk about or members you’d like to connect with.

@kanaazpereira

Hello @msbailey75,

Welcome to Mayo Clinic Connect – an online community where people can share experiences and ask each other questions about any health issue. Mayo Clinic experts also participate in the community through live Video Q&A sessions where they respond to questions posted before and during a video event. After the live event, we archive the video (on this page) for later viewing, and invite members to continue to connect and discuss with each other in the community. However, questions for the expert are closed after the event.

I'd like to invite you to explore more of Mayo Clinic Connect as I'm certain you will find some answers from the insights and experiences shared by members like you.
– Join these discussions in the Heart & Blood Health group:
Stiff Heart https://connect.mayoclinic.org/discussion/stiff-heart/
Stiff Heart – diastolic heart failure https://connect.mayoclinic.org/discussion/stiff-heart-diastolic-heart-failure/
– Follow the Heart & Blood Health group https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

Please let me know if there’s a particular topic you’d like to talk about or members you’d like to connect with.

Jump to this post

Yes, thank you. I would like to know what will healthy eating and exercise do to help my current health problems, which consist of type 2 diabetes( non- insulin dependent) sleep apena, obesity, high blood pressure and stiffness of the heart( No CHF so far). Both my physicians tell me I eat right diet and exercise all of theses disease will go away.

@msbailey75 Baloney. I have all these, and I eat right, and am dying in a few months.

@msbailey75

I have a question. Can stiffening heart muscle be reversed so that it won’t develop into CHF?

Jump to this post

Here is Dr. Phillips' reply: Stiffening of the heart muscle, resulting in poor compliance or lack of “relaxation” of the heart muscle can lead to heart failure with preserved ejection fraction. Many things may cause this to happen, and reversing the cause if possible can slow the progress of the changes in heart function. Aerobic exercise has also been shown to be helpful. There is currently no specific medication to reverse the change in compliance of the heart.

@msbailey75

Yes, thank you. I would like to know what will healthy eating and exercise do to help my current health problems, which consist of type 2 diabetes( non- insulin dependent) sleep apena, obesity, high blood pressure and stiffness of the heart( No CHF so far). Both my physicians tell me I eat right diet and exercise all of theses disease will go away.

Jump to this post

Hi @msbailey75,

It may sound too good to be true that type 2 diabetes can go away or be reversed with exercise and healthy eating – but research and many clinical studies have established some truth to this statement.
Your physicians' have given you some great advice – eating a healthy diet, being physically active, and losing extra weight is the foundation of diabetes management. When you follow this healthy lifestyle, your body's cells respond better to insulin which then lowers blood sugar levels.
When people with type 2 diabetes can go off medication because their blood sugar is normal or controlled, then the diabetes is considered to have gone away or reversed. However, they must continue to engage in a lifestyle program in order to stay off treatment.

Here's an article from Mayo Clinic, about "Diabetes diet: Create your healthy-eating plan" https://www.mayoclinic.org/diseases-conditions/diabetes/in-depth/diabetes-diet/art-20044295

With regard to stiff heart, there are so many studies (https://www.ahajournals.org/doi/10.1161/CIRCULATIONAHA.117.030617)
that have shown the benefits of high- and moderate-intensity aerobic exercise and good diet.
The Heart Failure Society of America has this information about "DASH Diet Softens Stiff Hearts" that might interest you:
https://www.medpagetoday.com/meetingcoverage/hfsa/41865

@msbailey75, I would sincerely encourage you to join in any of the discussions in the Heart & Blood Health group, and/or in the Diabetes/Endocrine System group on Connect. https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/tab/discussions/
You’ve come to the right place to talk with people who have similar experiences with health, and to get support from incredibly informative members who understand your concerns.

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