I am 33 years with MUSK positive Myasthenia gravis...have spent years on low-dose prednisone and ultra low dose pyridostigmine AS NEEDED...had IVIG in January...back at my baseline. Because of diminishing calcium, doctors have suggested decrease in prednisone and start of Cellcept(liquid), I have been on it for 8 days and even with Ranitidine... it is hard to tolerate in my stomach.., AND my head fills Ike an inflated balloon encased in my skull so I take two/ three ibuprofens per day. Today I STOPPED the Cellcept, it’s been debilitating.... between the head pressure and the upset stomach.... I can’t leave my house.... not mention the fact that I am on TWO immune suppressants during cold and flu season.. I am taking 4ml of Cellcept twice a day and alternating prednisone 5/10 mgs a day.

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